Today I’d like to briefly talk about autism and attachment to toys and or objects.
Why Aoife I hear you ask? Is it not “normal” for children to be attached to toys, blankets, teddies etc.?
Indeed, as many as 70% of children will be so attached to a particular toy that they take it everywhere, however, for autists, the attachment can last late into childhood and beyond (some autists are even more attached to objects than people).
Take Jamie Knight for example (a computer programmer who was involved in the creation of the BBC iPlayer). Since college, Jamie’s childhood teddy ‘Lion’ goes everywhere with him.
In my own case, I had a particular rabbit “teddy” (although it was more sock than teddy by the time I let it go from all of my mother’s repairs 😬) that I couldn’t sleep without until I was 16, as embarrassing as that is to admit-but hey we can blame it on the Asperger’s! 😛 😉
Other autists have been known to be attached to more obscure objects than soft cuddly toys, such as batteries, fruits and vegetables, cereal boxes, even sticks!
But why does the attachment to such objects endure for autists beyond childhood?
The reasoning for attachment to objects remains unclear however, the general thinking is that these attachments offer comfort (especially as more textured items offer opportunities for stimming), and stability, helping to ground autists in a world (to their mind) spinning out of control.
In Jamie’s case for example, carrying around Lion is a coping mechanism, providing him with structure, consistency and a sense of comfort. When overwhelmed, the familiar texture and scent reinforces a sense of structure and routine to quickly soothe the mind.
Similarly, artist, comedian and performer Tilley Milburn relies on her pig Del to navigate everyday life, providing her with comfort and a medium through which she can communicate by proxy in overwhelming situations. For example, her mother often says that Del is more reasonable than she is, so she will often ask to talk to Del! 😂
These attachments might seem a little odd, but they can serve a very important purpose, so don’t be too quick to judge an adult carrying around a plush toy 🙂
Leading on from my previous posts about the different forms of autism (lesser known ASDs; Asperger’s Syndrome (AS); Broad Autism Phenotype (BAP) etc.), I’d like to talk about some changes in the classification of autism that have taken place since the introduction of the all encompassing ASD in 2013.
To recap- an autistic spectrum disorder (ASD) is an umbrella term to describe a range of neurodevelopmental disorders (such as AS, classic autism, PDD-NOS etc.).
In 2013, the fifth edition of the Diagnostic and Statistical Manual of Mental Disorders or DSM-5 as it is more commonly known, changed the previous diagnostic criteria to effectively subsume all previous separate diagnoses under the one term- ASD. As such, these separate diagnoses no longer exist in the eyes of psychologists.
However, in using the umbrella term without these separate diagnoses, it is difficult to determine levels of functionality among autists.
So how do we break it down?
Autism is now classified using 3 different levels:
Level 1 Autism:Â Requiring Support-Â These autists have noticeable issues with socializing and communication skills. This level is characterized by:
decreased interest in social interactions or activities
capable of social engagement but may struggle with conversational give-and-take
difficulty with planning and organizing
struggles with initiating social interactions, such as talking to a person
obvious signs of communication difficulty
trouble adapting to changes in routine or behavior
Level 2 Autism: Requiring Substantial Support- Symptoms for these autists are similar to level 1, but more severe as they often lack both verbal and nonverbal communication skills which can make daily activities difficult. These autists may also exhibit a number of behavioural problems
Level 3 Autism:Â Requiring Very Substantial Support- This level is where you will find the most severe cases of autism. These autists experience extreme difficulties with communication and also exhibit more signs of restrictive and repetitive behaviours than may be observed in the other levels.
The behaviours at each level can be broken down a little further than this, but these are the nuts and bolts of how autism is classified under this system.
Until recently, these updates have mainly applied to the American classification system, however in the last few weeks the global updated version of the “International Classification of Diseases” (ICD-11) now mirrors it’s US counterpart, dissolving all separate diagnoses of autism in favour of the all encompassing ASD.
So how do I feel about the dissolution of my own diagnosis?
In many ways, this new classification system is a good thing as it will greatly benefit autists who experience greater challenges. It also allows clinicians more flexibility in that the clinician determines if a patient is on the spectrum using their best judgement rather than the patient fitting a specific combination of traits/reaching a set number of traits, which may benefit borderline/masking autists who are highly functioning enough to pass just under the diagnostic radar.
However, I am concerned for higher functioning autists. I would classify as Autism 1 under the new system, however, whilst I fit some of the bill for this level in my childhood, it does not describe me as well as my original diagnosis. In fact instead of benefiting an aspie, to my mind, it could in fact disable them further as the very word ‘autism’ infers a greater level of need than Asperger’s Syndrome.
Yes AS is a form of autism, but it is worlds apart from many of the lower functioning forms. If an employer for example were to hear the word’s ‘autism level 1’ or ‘high functioning autism’ rather than Asperger’s, this could have a serious disabling effect in their perception of the autist before them. Indeed, in recent years we have become a more inclusive society and are better educated about the spectrum, but for many the ‘A word’ still rings trouble.
On the other hand, the vagueness as to what classifies as support is concerning for autists at each level. Sure, this generalized approach widens the spectrum net, but we also cannot ignore the finer details and traits that ultimately determine the needs of the autist- every case is unique after all.
Hope you enjoyed this post dear Earthlings- enjoy the weekend! 😀
Today I’d like to briefly discuss a somewhat unusual topic- robots and autism.
Yes, I know what you’re all thinking, Aoife has finally lost it- but just before you call in the men in the white coats, let me tell you about the clinical benefits of using robots for children with autism! 🙂
Recent technological advances in the field of robotics offer great possibilities in the treatment of autism. As interactive robots are increasingly becoming more human like, this technology can be used clinically to help teach social skills to children with autism.
Whilst the research into the therapeutic benefits of robots is in it’s infancy, several schools across the globe have begun to use social robots reporting very positive results 🙂
So how do these robots work?
The robots engage autists with a specially tailored curriculum. For example, the robot makes a sad face or starts laughing and the child has to say what the robot is feeling, or when interacting with the robot if they do something that could hurt a real person, the robot will cry out so that the child can learn that this behaviour is not appropriate.
It’s really cool! 😀
You can check out Milo below- one of the many models of social robots helping kids with autism worldwide (try not to let him creep you out though, Kaspar the robot is way freakier….might have further to go in making these robots more approachable in my opinion 😬).
The benefits of using this technology currently include improved:
Engagement
Eye contact
Vocabulary
Attention
Self-motivation and regulation
Emotional recognition and understanding, and
Improvements in appropriate social behaviour
And all of this within just 1-4 months of using a robot like Milo! 😲
All in all the technology looks really promising in the treatment of autism, even if a few tweaks may be needed to improve the appearance of these robots 🙂 😛
Leading on from previous posts about shutdowns and meltdowns, today I’d like to discuss the “autistic burnout”.
So what exactly is that when it’s at home?
Autistic burnout (also known as “autistic regression”) happens when an autist has maxed out their capacity to mask and to socially cope following a period of prolonged stress (such as major change, attempting to be “normal”, poor self care etc.). This triggers a shutdown like state where the autist can become “more autistic” and is often unable to utilize the skills they have learned to cope- the mind is so exhausted that the autist no longer has to energy to try to overcome their difficulties.
Some people have even reported that these skills did not come back at all after recovering from a severe burnout- hence the name autistic regression.
From a scientific perspective, the autistic burnout has not been explored as of yet on a medical level, however, there is much discussion of burnout within the autistic community.
Thankfully I have not really experienced such a full on burnout, but I have circled the drain a few times. When you’re particularly under pressure from doing too many things at once, sleep deprived, dehydrated, hungry etc., that’s when the mask starts to slip. In times like these I have felt much more symptomatic than normal, causing me to snap or say inappropriate things and act more eccentrically than I ordinarily would. It’s as if a part of your brain switches off to keep from overloading- and that part seems to be the one that controls our cloaking device.
So how can burnouts be avoided?
Much in the same way as meltdowns and shutdowns 🙂
As I have discussed in a number of previous posts, the key things to remember are:
Self Care– Stay hydrated, get plenty of snacks, get lot’s of sleep etc.
Utilize stress busters– Find respite in hobbies, in exercise, specialist interests or relieve stress through stimming
Take a break– If a situation is taking it’s toll, take a step back. Leave the room, take a holiday (if work related) or go outside for a walk; time in solitude to decompress and reset can be particularly helpful 🙂
Here’s a useful chart from the Autistic Women’s Network summarizing autistic burnout:
So today I’d like to take a quick look at one of the most famous TV characters in recent years- ‘The Big Bang Theory’s‘ Sheldon Cooper.
Strictly speaking, the show’s creators have said that Sheldon is not specifically autistic (and have been frequently criticized for stereotyping autistic behaviour), however, the evidence is overwhelming that he is a cornucopia of autistic traits. In fact, having seen every episode (and many episodes dozens of times thanks to the constant replays on E4!), I believe that he has demonstrated practically every single common autistic trait, and also many rarer traits which the average viewer may miss.
In case you haven’t seen him in action, here’s a video of some of his best “sheldonisms:”
So let’s take a closer look at who exactly is Dr. Sheldon Cooper?
Sheldon is a socially awkward, routine obsessed, theoretical particle physicist of genius intellect (*cough stereotype*!) who’s array of outrageous quirks have been the cornerstone of ‘The Big Bang Theory’s‘ enduring success. Much of the show’s humour hinges on Sheldon’s OCD, specialist interests (such as trains, physics, comic books and sci-fi), mind blindness and bluntness, with particular attention to his struggles to perceive sarcasm. Sheldon constantly has to be coached on appropriate social behaviour, including one particularly memorable episode where he had to practice smiling to feign support when his friend Raj was being obscenely obnoxious.
It may surprise you to hear that many autists have struggles with smiling, particularly in forced situations such as in front of the camera (or in Sheldon’s case in an attempt to endear himself). I certainly went through a phase of not knowing what to do with my face in pictures as a child- there’s some pretty awful photos of me from one particular holiday until I copped how creepy it looked 😬!
Sheldon has also shown signs of synaesthesia (a phenomenon where one sense is perceived in terms of another i.e. hearing colours, smelling sounds etc- which I will talk about in a later post), a common, but not widely known autistic trait in the following scene:
Immortalized by the line “I’m not crazy; my mother had me tested!” (a line which I have jovially used since my own diagnosis 😛 😉 ), Sheldon can be a lot to handle. His narcissism, OCD, TMI and childish tendencies whilst comedic, often alienate him from friends, family and the world in general.
As annoying as Sheldon can be however, we have seen huge improvement in his character over the course of the last 11 seasons- he has become more socially aware of others, more in sync with the ins and outs of humour, more comfortable with touch and has even bagged himself a girlfriend who will soon become his wife in the current season finale 🙂 This character development is particularly poignant as it shows how in spite of the difficulties associated with autism, with time, effort and a LOT of patience, autists can overcome so much! 😀
All in all whilst Sheldon’s character is highly exaggerated with many stereotypical autistic behaviours, I think it’s really important that a character like Sheldon features so prominently in a prime time TV show to help normalize the autistic experience, and more importantly to see the lighter side of things. So often we fail to see the funny side of autism- what can you do but laugh when Disney films trigger a happiness meltdown (wouldn’t know anything about that happening…😬😂)?!
Leading on from my recent post about voice control and autism, this week I’d like to briefly talk about non-verbal autism.
Granted, I cannot provide any personal insight into the matter, (I could never be described as non verbal 😛 ), but I’ll do my best to explain it! 🙂
So first things first, what is non-verbal autism?
Affecting approximately 25-50% of autists, non-verbal autism is pretty self explanatory- the autist is unable to speak.
So what causes non-verbal autism?
Again, as with most aspects of the spectrum, the cause is unclear. Non-verbal autism is highly under-researched and therefore poorly understood. However, one particular study does indicate that there may be differences in the structure of the brains of verbal and non-verbal autists in areas associated with language. Brain imaging analysis of toddlers indicated that autists who grew up to be verbal showed similar signs of activity in these areas to their neurotypical peers. Toddlers who grew up nonverbal however displayed signs of reduced brain activity in the same areas which would likely explain their struggles to formulate speech.
With early intervention and improved techniques, many nonverbal children can now learn to speak, however, a minority of autists will remain silent. But don’t despair, technological advancements in speech generating devices are now helping to reveal the inner voice of nonverbal autists.
Take the inspirational Carly Fleischmann for example. As I have discussed previously (lesser known ASDs), Carly is a non-verbal autist…and talk show host! :O Carly never let her inability to speak to keep her from her dreams of being a talk show host 🙂
Today we’re going to briefly talk about an aspect of the spectrum that many of you may not be familiar with- voice control.
We’re all aware that autism is often accompanied by difficulties with speech (non verbal autism, apraxia, speaking in monotones etc.) however, few are aware of the challenges to control the pitch and volume of our voices.
This is especially challenging for me as I often struggle to accurately gauge my volume. For example, I may think that I am singing along at an appropriate volume, buuuuuut those who are listening to me may have slightly different reactions…
I’ve probably deafened several members of my friends and family at this stage! 😛
For years I could never understand how I was chastised for my mumbling in school, but a shouter at home- I just could never seem to get the balance right.
I naturally tried to rationalize my shouting with waxy ears and struggles to be heard over the din of the school- but is there any scientific explanation for my struggles to regulate tone?
Many acoustic studies have found that prosody (an area of linguistics that focuses on linguistic functions such as tone, intonation, stress and rhythm of speech) is impaired in autists. Prosody is used to reflect emotional states, sarcasm, stress, emphasis and other areas of language that are not conveyed through grammar and vocabulary- an area where many autists struggle.
MRI studies have shown that the areas of the brain involved in the perception and processing of prosody (the left supramarginal gyrus (SMG)) are abnormally activated in autists compared to their neurotypical peers. Neurons in the left precuneus, the left medial prefrontal cortex and the right anterior cingulate cortex should be deactivated when exposed to prosody, however these areas are active in the autistic brain.
As a result, we are often unable to discern the exact pitch, tone or emphasis we should use in conversation. This abnormal activation also explains why autists often struggle to accurately interpret another persons meaning/intention through their use of prosody in their speech.
Impairments in auditory processing of sound in the brain may also feed into this issue- so try not to judge me too harshly the next time I blow your eardrums out 😬 😉
In continuation from my blog post about autism in the workplace, this week I’m going to give some of my tips and tricks for finding and maintaining employment for autists.
Finding employment:
Job seeking can be a daunting prospect for anyone, but for autists in particular, this can be quite the overwhelming experience. Navigating career search engines, filling out applications, preparing for interviews, coping with rejection- it’s a lot to handle.
When it comes to applying for jobs, there are a few important questions that an autist should consider:
Is this job a good fit for me?
What areas may be challenging for me in this role?
Is this an equal opportunities employer?
It’s important that you apply to jobs that cater to your strengths with an employer that will support both you and your needs 🙂
Top Tip: Glassdoor is an excellent online tool for job hunters. It allows you to look up different companies, read employee reviews and interview experiences, giving you invaluable insight into what life could be like for you within that company.
Next comes the dreaded interview- a real struggle for autists, but it doesn’t have to be 🙂
Fun Fact: According to career experts, 95% of interview questions can in fact be predicted and prepared for in advance! And there’s nothing we love more than predictability 😉
There are a number of organisations out there that are dedicated to advising, training and preparing people with autism for the workplace. For example, Specialisterne is an international organisation dedicated to creating jobs for people with autism through partnership with several companies in the science and technology sector. Specialisterne coaches people with autism and Asperger’s syndrome to prepare them for the workplace and additionally provides employers with training so to best support their employees.
There are also numerous career coaches and communications agencies out there which can sit you down and help you to prepare for an interview, run through mock questions, give you tips on body language etc.
Here are a few tips that I’ve found helpful to get you through an interview:
Preparation is Key– research the company, prepare answers to common questions, look up your interviewers on LinkedIn (don’t worry, you can use a private setting so they won’t know you’ve looked them up! 😉 ) etc. A mock interview can also be very useful. The more you prepare, the more comfortable you will feel in the interview.
Keep your answers relevant to the question– I know it sounds obvious, but if you’re anything like me, beware of tangents!
Ask for a moment to think– if a question throws you, drink some water and ask for a minute to think. It’s perfectly acceptable to ask for this. It gives you time to gather your thoughts whilst remaining in control.
Aoife says ‘Relax’! – Easier said than done, I know, but it was only when I began to relax in interviews that I was finally offered a job 🙂
Maintaining Employment:
Congratulations-you’ve gotten through the interview stage and the job is yours! 😀 However, a number of people with autism will struggle to maintain this job. The workplace can be quite overwhelming as I’ve discussed, and we often do not receive the support we need from our employers.
So what can you do?
If you feel comfortable disclosing your diagnosis to your employer, steps can be taken to help accommodate your needs. For example, autism training can be arranged so that other members of staff can better understand and support you.
Having a work mentor or job coach to talk to and advise you about your workplace can also be helpful. This person can advise you on workplace ettiquette, social skills, interacting with co-workers and the unwritten rules of your place of work.
There are also some steps that you can take to better cope with the pressures of working life:
If you struggle with organization as I often do, making use of lists, diaries and Google Calendar can help you to stay on top of things
As I’ve said before, talk to someone about your problems with work- let it all out!
Take a breath- if you feel overwhelmed or a meltdown coming on, take a moment away from your workstation. Go to the bathroom, step outside the door (if possible), grab a coffee or a glass of water- do anything to distract yourself until you feel well enough to return to work 🙂
Try to maintain a good work- life separation. At the end of the day, we all need to leave work at work. It can be hard to switch off at the end of the day, especially for autists, so try to relax! Why not take up a hobby that will engage a different part of your brain such as art, exercise, music or gaming? Do what you have to do to unwind!
Take care of yourself- Keep snacks nearby, stay hydrated and get to bed early! Sleep tip– Blue light from screens interferes with the hormone that induces sleep, Melatonin. So ditch the laptop before bed; read a book instead!
Finding and maintaining employment as an autistic adult can be challenging, but remember, you have just as much to offer as any other candidate out there 🙂
Time for another autism on screen again, this time exploring the portrayal of autism in the 2004 musical drama film ‘Killer Diller.‘
The film follows Wesley, a young musician and troublemaker who is sent to live at a Christian halfway house for young offenders. Reluctantly drafted into the choir, Wesley encounters Vernon, an autistic savant with a gift for music. His captivating piano playing inspires Wesley to invite Vernon to form a blues band with the choir members and embark on a journey of music, understanding and friendship.
You can check out the trailer below (apologies for the poor quality, it’s not a very well known film- I found it very difficult to source):
So how did this film fair in terms of representation of autism?
Well, by now you all know how I feel about the over-representation of autistic savants in TV and film, so as you can imagine I was yet again disappointed to see this rare trait highlighted in another film. So let’s quickly move on from that! 😛
Much of the behaviours exhibited by Vernon were consistent with classical autism symptoms like rocking, missing social cues, inappropriate social behaviour etc.; however, as I previously found while watching ‘Cube‘, nothing felt unique about the character, Vernon was just another Hollywood carbon copy of autistic stereotypes.
In addition to this, many film scholars have noted that in films featuring autistic characters, the filmmakers choose to use autism for the purposes of redeeming the main character. This film is a prime example of this. Vernon’s presence in the film is used to redeem Wesley, who up until he meets Vernon, is selfish and wayward. However, like ‘Rain Man‘, ‘Snow Cake‘ and several other films featuring an autistic character, the protagonist is transformed following his encounter with an autist.
Thankfully in more recent years, the focus has since changed wherein autistic characters are no longer seen as secondary, but are protagonists in their own right as we have seen in ‘Atypical‘ and ‘The Good Doctor‘ (which by the way, is proving to be an excellent series as the year has moved on 🙂 )
Huzzah for Progress! 😀
All in all, this film (if you can find it) was worth a watch at least once- especially if you’re into blues music. It may not have been the greatest depiction of autism, but it’s an easy watch with some decent music to boot 🙂
Today we’re going to discuss a type of autism that lies just outside the spectrum- the broad or broader autism phenotype (BAP).
What on earth is that when it’s at home?!
BAP is a term used to describe a wider range of individuals just beyond the spectrum who have difficulties with language, personality, and exhibit a number of social and behavioural traits at a higher level than the average neurotypical, but not so high as to be diagnosed with autism.
In other words, this means that you have “a touch of autism” or “not quite autism (NQA)”. The individual has a high number of mild traits, but not enough to interfere with daily life.
So what do we know about BAP?
Relatively little- it doesn’t even have a Wikipedia page!
This intermediate description is most commonly associated with family members (parents, siblings, and other extended family members) of those with ASD diagnoses (14–23%), but it can also be found in the general population as well (5–9%).
Interestingly, evidence of an intermediate autism phenotype has existed since the late 1970’s (the term itself was coined in 1994), but it is only in recent years, with the expansion of the spectrum, that it has become a source of research interest for scientists seeking to understand the range of ASD’s that lie beneath the spectrum rainbow.
Much of the research in this area involves using the BAP to better understand autism- in particular it’s severity and genetics. By analyzing autism traits in families through the prism of BAP for example, researchers may be better able to identify the specific genes which underpin ASDs, paving the way for better therapies for autists.
Apologies for the shortness of this post dear Earthlings, but there is sadly very little information out there about BAP. Perhaps in the future there may be new research that will shed greater light on this subject 🙂
A Is For Aoife Not Autism 