Autism and COVID-19

Greetings Earthlings! ๐Ÿ˜€

bubble

As I am writing to you this week from an Ireland on near total lock down, I’d like to talk to you about the COVID-19 pandemic and how this affects the autistic community. While many autists will be content in isolation, concerns over contracting the virus, disruption to routine and difficulty obtaining preferred foods due to panic shopping can make this time quite stressful.

coronavirus

Here are some of my top tips for navigating the pandemic on the spectrum:

Try to remain calm– I know, easier said than done for the anxious and over-thinkers, but panicking will solve nothing, and will trigger meltdowns and shutdowns. If you’re struggling with your emotions surrounding the pandemic, try to write them down or talk about them with your family. A problem shared is a problem halved.

Stay positive- I know it’s hard to see the sun through all the cancellations (Eurovision and my recent non-holiday were particularly heavy blows for me), and the rising number of cases, but this shall pass. Try to see the positives of our situation- more time for family, new hobbies, a break from the office the environmental impact of restricted movements etc.

Know the facts– do not allow yourself to get distracted by fake news, this will only make things harder. If you must read about the virus, educate yourself using the official information released by the World Health Organization. Knowledge is power.

Turn off the news/take a break from social media– if you’re the kind of person who get’s easily weighed down by all the fake news and mass hysteria on our airwaves at the moment, just take a step back from the media. Limit and reduce your consumption- perhaps taking a break from social media might help to drown out the panicked buzzing all around you?

Keep busy– this is crucial for the easily bored autistic mind. Cabin fever comes on all too quickly when you’re not adequately entertained, so try to keep yourself occupied. Indulge your specialist interests and hobbies (why not even take up a new one?) take plenty of walks (if you can), sort out all of the items you’ve been procrastinating on your to-do list etc. Find a way to keep both body and mind distracted and the time will fly by!

And most importantly, stick to the following rules for preventing the spread of the virus:

 

 

I know it seems like the world is spinning out of control, but we need to do our best to stay calm to get through this time. We all have to do our bit to combat the virus- sacrificing our routines for a few weeks may seem difficult, but it’s the only way to lock this thing down and stop the spread.

Stay safe everyone! ๐Ÿ™‚

Aoife

Autism and the Catherine Noone Controversy

Greetings Earthlings! ๐Ÿ˜€

This week, I’d like to talk about a highly controversial incident that’s happened this week in Ireland in the run up to our general election on the 8th of February.

 

Image result for catherine noone

Fine Gael election candidate Catherine Noone has gotten herself into hot water this week for making the following comment about Taoiseach (aka our prime minister) Leo Varadker while out on the election trail:

“He’s autistic like, he’s on the spectrum, there’s no doubt about it. He’s uncomfortable socially and he doesn’t always get the in-between bits.”

In the wake of these comments, she initially denied them before a tape emerged of the conversation. Since then, Catherine has apologized profusely to the Taoiseach, which he has accepted, and she will not face suspension or sanction from their political party.

Image result for catherine noone

This entire incident has naturally caused outrage among the autistic community in Ireland that autism was used in such a derogatory way.

The biggest issue here is Catherine’s lack of education about autism and her sweeping stereotypical comments. Most people have a certain percentage of autistic traits, but that does not mean that they are on the spectrum. Moreover, someone can be perfectly at ease in social situations, but can still be autistic.

8d05dcfbee0eb3e07600751e226b81a3d0350af9e5b3aa38165df1061c6f553f.0

In my opinion, I found it quite insulting that this statement would imply that I, as an autist, am like the Taoiseach. I do not appreciate being lumped in the same camp as a man with such a serious lack of empathy for the people over whom he governs. The housing and homelessness crisis, our abysmal health service (despite being a trained medical professional), the death of rural Ireland – the country has been falling apart while the salaries of his cabinet have increased. As I have discussed previously, contrary to popular belief, autists are quite empathetic. We may not always know how to convey empathy, but it does not mean we are devoid. Few autists could sit back and allow what’s happened to Ireland in the past few years as our clear cut understanding of right and wrong would forbid it. To imply that I am anything like an unfeeling politician is extremely hurtful.

To be fair, this lack of empathy is fairly typical of most politicians- but I’m not one for stereotypes ๐Ÿ˜›

The world needs to be properly educated in the range of ways that spectrum traits can manifest, maybe then we would be far less quick to resort to derogatory stereotypes.

Hope you enjoyed thisย  post dear Earthlings! ๐Ÿ˜€

Have a lovely weekend!

Aoife

Autism Friendly Shopping

Greetings Earthlings! ๐Ÿ˜€

Shopping can be quite an overwhelming experience for an autist- the hustle and bustle, bright lighting, loud noises, strong smells etc.

As autism friendly events are all the rage at the moment, I decided to take some time to check out Lidl’s weekly autism friendly shopping hours.

bitmoji-20200108115640

So what’s so special about Lidl’s autism friendly shopping experience?

Every Tuesday from 6-8pm across all Irish stores, Lidl takes the following autism friendly measures:

  • Reduced lighting
  • No music or announcements
  • Lower till scan sounds
  • Priority queuing
  • Offers additional help if requested
  • Assistance dogs are welcome (sadly none of these cuties were around during my visit ๐Ÿ˜ฆ )

They also include a sensory map for kids which can be downloaded from their website to show you the layout of the store to familiarize yourself with it, even providing a key to indicate where there may be strong smells, cold areas, and items that you shouldn’t touch:

Image result for lidl sensory map

This map would also be of benefit for anxious adults on the spectrum, albeit the ‘do not touch’ symbols on the alcohol, pet food and cleaning products is a bit insulting. These symbols could be challenging for literal, rule-abiding adult autists- who says we don’t like to drink/cook with alcohol, have pets to feed or need to clean a toilet ๐Ÿ˜›

So how was my shopping experience?

I’ve lived and shopped on my own since college, so I’m perfectly at ease with the hustle and bustle of a busy shop (except for Lush in Dublin- so narrow, crowded and impossible to find what you’re looking for that I have to say a prayer before I enter ๐Ÿ˜› ). Nevertheless, I found the whole experience quite soothing.

bitmoji-20200108115447

My eyes didn’t recoil from the harsh transition from the darkness of the carpark to dazzling supermarket lighting, but rather gently adjusted to the dimmed lights. Even the freezer lights were turned off to reduce the sensory impact. The quietness of the store was similarly soothing. I could slowly walk around the store at ease, my mind clear to focus on the items in front of me.

I was really enjoying my experience, however, it was cut short abruptly without any warning.

Lidl’s autism friendly hours are 6-8pm on a Tuesday. At 7.45 I looked up from my phone to be blinded by the store lighting which had been turned on early. Granted, shops aren’t a sensory problem for me, however, had another autist been in the shop at this time it could have been a whole other story.

What if someone had started their shop at 7.30 under the assumption that they had a solid 30 minutes to get a few bits?

This begs the question as to why the hour ended early? Autists are very literal andย  would assume that when something is advertised to last until 8pm that that is when it ends- not 15 minutes earlier with no advanced warning. At this point in the evening, there were no children in the shop, so was it assumed that there were no more autists doing their shopping? My presence meant that there was one confirmed autist still shopping, who’s to say there were not others?

If the decision to end the hour early was based on the number of children in the store, it is highly insulting to adults on the spectrum. People still consider autism to be a childhood disorder, but it is lifelong. We keep forgetting that the child with autism will one day grow up. These autism friendly evenings appear to be mainly geared at children, but adults with autism may choose to shop during these hours too and this must be considered.

Aside from their disregard for accurate timekeeping, Lidl is nevertheless the perfect spot to go for an autism friendly grocery spree! ๐Ÿ˜€ If arriving later in the hour though, especially for adult autists, perhaps it would be worthwhile flagging it to a member of staff or carry a sign or something to avoid getting caught out like I did ๐Ÿ˜› ๐Ÿ˜‚

bitmoji-20200108115511Hope you enjoyed this post dear Earthlings! ๐Ÿ˜€

Enjoy the weekend!

Aoife

Happy 3rd Anniversary!

Greetings Earthlings!

Happy New Year!! ๐Ÿ˜€ Hope that you and yours enjoyed the holiday season as much as I did ๐Ÿ™‚

Here we are again- another year’s blogging under my belt! ๐Ÿ˜ฒ

bitmoji-20191218072718.png

No one is as shocked as I am that I have now been writing this blog for THREE whole years, and even more so that you’re all still enjoying my ramblings! ๐Ÿ˜‚ I am so appreciative for your continued readership and support. Reading your messages and comments about how my words have helped you has meant so much to me these past 3 years ๐Ÿ™‚

I’ve got some brand new ideas cooking away so roll on 2020! ๐Ÿ˜€

bitmoji-20191218072649.png

Aoife

Seasons Greetings!

Greetings Earthlings! ๐Ÿ˜€

bitmoji-368720544

As 2019 draws to a close (and so two does my third year of this blog! ๐Ÿ˜ฒ), I’d just like to take this opportunity to wish you and yours a very Merry Christmas and every blessing for 2020 ๐Ÿฅณ

Thank you all so much for your continued readership, support and kind messages this year, and I look forward to writing for you all again in the new year ๐Ÿ™‚

Enjoy the holiday season dear Earthlings! ๐Ÿ˜€

bitmoji-20181214013654

Aoife

Greta Thunberg and Autism

Greetings Earthlings! ๐Ÿ˜€

So this week I’d like to discuss an inspirational young autist that I’ve been meaning to write about for some time- climate activist Greta Thunberg.

Image result for greta thunberg"

For those of you who’ve been living under a rock (and I mean, seriously living under a rock, this girl has been all over the news ๐Ÿ˜› ), Greta is a Swedish teenager who began striking from school on Fridays outside the houses of parliament in Stockholm for action against climate change in 2018 at just 15 years of age. Greta rationalized that the impending climate crisis means no future for her generation, so why should she go to school to prepare for a future that would not exist?

Since she began striking, Greta’s actions have spawned an international movement known as ‘Fridays For Future‘ where students the world over are striking from school for climate change action. She was even nominated for the Nobel Peace Prize for 2019.

What a girl!

Image result for fridays for future"

In recent months however, attention has focused on the fact that Greta has Asperger’s syndrome (I’m in good company!). In her viral Ted Talk, Greta speaks of how learning about the climate crisis at 8 years old led to her diagnosis. Unable to process the inaction of the world, Greta became withdrawn, depressed and stopped eating, which led her to be diagnosed with OCD, selective mutism and Asperger’s Syndrome. As Greta so eloquently explained in her talk, thisย means that she only speaks when necessary. Now, in the midst of the climate crisis, is one of those moments.

You can see her viral TEDx Talk here:

 

 

Like me, Greta does not see Asperger’s as a disability, but as a gift, calling it her “superpower”. She recently discussed this on the Ellen DeGeneres show where she talked about how autists are important in a crisis such as global warming as we are different, and we need to think differently to find solutions. Her tenacity, her passion and her black and white, no nonsense speeches (all autistic traits), truly are superpowers in her fight to save the planet.

 

Greta Fun Fact-ย her mother represented Sweden in the 2009 Eurovision Song Contest ๐Ÿ˜€

However, the media have recently begun to turn on Greta because she is neurodivergent. A guest on Fox News recently described her as “mentally ill” sparking much discussion about the state of her mental health. As is often the case, once people hear the ‘a’ word, they automatically assign you a box…

Just a reminder– autism is NOT a mental illness; it’s a neurodevelopmental disorder. We may be greater disposed to having issues with our mental health due to higher stress levels, but an autism diagnosis is not synonymous with mental illness.

Whilst I would echo some journalists concerns about the strain of her current international exposure (fellow aspie Susan Boyle had to check into rehab for exhaustion after her viral appearance in Britain’s’ Got Talent), ultimately what Greta needs is action. Saving the planet is her specialist interest, and as I’ve discussed previously, we are consumed by our passions. She will stop at nothing or for no one to save the world.

Without a doubt, Greta is an extraordinary girl, and really shows that you should not allow yourself to be limited by your diagnosis. Indeed, there are people out there vehemently trying to write her off, but the rest of the world is listening.

Hope you enjoyed this post dear Earthlings! ๐Ÿ˜€

Have a lovely weekend!

Aoife

“You Don’t Look Autistic!”

Greetings Earthlings! ๐Ÿ™‚

After reading a write in to an advice column in the newspaper this morning, the parent of a recently diagnosed child rationalized that the diagnosis didn’t make sense as their child was doing well in school, popular and “good socially.”

I found this particularly annoying as this type of attitude is something that we high functioning autists encounter all the time.

“You don’t look autistic?!”

“You’re normal!”

“You can’t be autistic!”

bitmoji110263557

These are some of the most common phrases I hear when I talk to people about my diagnosis, as do many high functioning autists. Whilst this is a great compliment to my upbringing and acting skills, this kind of reaction can be quite damaging for autists.

First things first- no one looks autistic ๐Ÿ˜›

It’s a neurodevelopmental disorder, how are we supposed to look? Unless you have eyes like an MRI or some type of X-ray vision, you won’t physically see our neurological differences! Roughly 1 in 68 people are autistic- that’s 1 person per double decker bus, 1 person per carriage on the average train, and 3 people on the average international flight. Would you say that you’ve seen someone that “looked” autistic every time you’ve used these transport services? ๐Ÿคจ

We’re everywhere, looking exactly the same as you do.

Phantom of the opera autism.jpg

^^^ Sorry couldn’t resist giving my favourite musical a shout out- 10 points if you get the song reference ๐Ÿ˜Ž

With autism, it’s very much a case of “don’t judge a book by it’s cover”.

With the increased generalization of the spectrum, from the outside, our books look alike, each with the same rainbow-coloured ‘autism’ cover on display. The stories inside however are very different. There may be similar themes, experiences and symptoms between books, but ultimately each is unique.

bitmoji-20190729090736.png

Contrary to popular belief, just like the child in the advice column, many high functioning autists have an active social life. In college I was at every party going and the last one on the dance floor- had you seen me, would you have said I was autistic? Appearances can be deceptive, you donโ€™t know how hard some of us have to work on our social skills behind closed doors. Eye contact isnโ€™t natural for me, but with practice and forcing myself out of my comfort zone, no one would be any the wiser when chatting to me now. I’m a social butterfly who doesn’t outwardly appear autistic, but I have a piece of paper and an autism spectrum quotient score that say otherwise

No, I do not “look” like the stereotypical image of autism, but it doesn’t mean that I’m not riding that spectrum.

This attitude towards autism’s outward appearance could in fact be quite detrimental. If we don’t recognize that a person is autistic when they don’t fit the preconceived mould; they may languish for years without adequate understanding and supports for their needs. This is especially true for females on the spectrum who have learned the art of social masking, often flying under the radar of male centered diagnostic criteria.

As I have discussed many times before, autism is a spectrum, everyone is different and therefore their traits will be different. Don’t judge us by the ‘autism’ cover adorning our story, delve deeper into the book and you may be surprised at what you’ll learn ๐Ÿ™‚

Hope you enjoyed this post and have a lovely bank holiday weekend dear Earthlings! ๐Ÿ˜€

Aoife

The Problem with High Functioning Autism

Greetings Earthlings! ๐Ÿ™‚

This week I’d like to discuss the term “high functioning autism”.

You may be surprised to hear that the term “high functioning” is quite controversial within the autistic community. In fact aย recent study strongly supports discarding the term “high functioning autism” completely.

So why is the term controversial?

bitmoji-20190710074854

Firstly, let’s quickly remind ourselves of what constitutes high functioning autism:

High functioning autism (HFA) is a term used to describe autists with strong language skills and an IQ of over 70 ( i.e they do not have an intellectual disability).ย 

Herein lies the problem- the term uses IQ as a predictor of functionality and does not take into account the day to day struggles of the average autist. An autist deemed to be low functioning may not encounter challenges in their daily life, but may struggle academically.ย  Similarly, an autist may excel academically, but something so trivial as writing an email may prove challenging. In many of the films I’ve reviewed, the autistic character is described as high functioning, but yet they are incapable of living an independent life.

Moreover, functioning levels often fluctuate from year to year, improving or dis-improving depending on circumstances and levels of support- there’s even evidence to suggest that, as with many things, autism can get worse with age! Levels can even fluctuate day to day where something as simple as lack of sleep can impact upon functioning. As a result of this, many autists deemed “high functioning” do not get adequate support for their needs.

bitmoji-20190710075012

Researchers have found in a recent study that there is a serious gap between an autists cognitive functioning (IQ) and their adaptive behaviours (i.e. their ability to adapt to their environment). The average results show that autists with higher IQs scored 28 points lower than their IQ in adaptive behaviour scales, suggesting that IQ is a weak predictor of daily functioning.

You can read more about the study here:

Large study supports discarding the term โ€˜high-functioning autismโ€™

Technically speaking, within the medical community the term “high functioning” is considered an informal term and is not in itself a definitive diagnosis, further fueling efforts to banish it.

However, I personally feel that removing the term could be problematic. In my case, both my IQ and functional abilities are high- I breezed through college, have an active social life, hold a job and live independently. To say that I am simply autistic to a person who doesn’t know me very well can skew their expectations and perceptions of me- especially in the workforce. Granted, public understanding of the spectrum is improving, but still the ‘a’ word can place you into a predefined box in people’s minds.

I worry that our move towards a more generalized view of the spectrum may effectively disable the truly high functioning. Recall how autism is divided into levels.ย Asperger’s syndrome has been swallowed up by level 1 autism, whereย autists have noticeable issues with socializing and communication skills. This level is characterized by:

  • decreased interest in social interactions or activities
  • capable of social engagement but may struggle with conversational give-and-take
  • difficulty with planning and organizing
  • struggles with initiating social interactions, such as talking to a person
  • obvious signs of communication difficulty
  • trouble adapting to changes in routine or behavior

where autists are vaguely classed as “requiring support”.

On paper, I fall under this definition, but it does not describe me as well as Asperger’s syndrome or the term ‘high functioning’. This definition paints an entirely different picture for people to that of my reality (for starters the only support I require consists mainly of a good bra, sugar, a hug and a box of tissues for unexpected meltdowns ๐Ÿ˜‚). Were I to have been diagnosed earlier in life, this definition may well have held me back.

For many autists, indeed the term high functioning can be tricky, but I do not believe it should be abandoned completely. Yes, it is time to reevaluate our classification of autism to better define functionality levels across the entire spectrum, but perhaps there’s a better way to go about it.

bitmoji84905202

Hope you enjoyed this post dear Earthlings! ๐Ÿ˜€

Have a lovely weekend!

Aoife

Autism- Breaking the Mould

Greetings Earthlings! ๐Ÿ™‚

In the last couple of days an audition video from America’s Got Talent has gone viral featuring Kodi Lee- a blind, 22 year old autist with an amazing gift for music. If you haven’t seen the clip yet, check it out below (such an amazing voice!):

After watching this video, it’s got me thinking about our tendency to put people on the spectrum into boxes. We’re constantly talking about tolerance, acceptance and equality in the world today, but still we can be quite quickย to write people off.

“You’re autistic”- this is you label, this your box, this is what we expect of you.

box

Having Asperger’s is just one aspect of me. It influences quite a lot of my quirks, but it is still only one piece of my jigsaw. This one word will not tell you about my talents, my interests, my active social life. It reveals a part of me, but not the whole.

My entire life I’ve never been one to conform, and autism is no exception. I refuse to fit into any particular mould- I’d much rather be an abstract painting, entirely unique.

Moulds are for bread and fondant ๐Ÿ˜›

mould.jpg

Something that really saddens me is that when a parent hear’s the word autism, there is a tendency to let go of the mental picture that they have for their child’s life. They mourn the loss of a “normal” life (whatever that is!). They worry that their child won’t make friends, will struggle in school, that they won’t achieve their dreams.

Life does not always run smoothly, and rarely fits the picture we first imagine. I never thought I would still be single in my late twenties, but that’s life. Some might think that I would scrap that picture of finding love from my mind after I got my diagnosis (as so often autists struggle romantically), but why would I? Sure it can make it difficult to read romantic situations, but it doesn’t mean I won’t find love one day. There’s no real reason that I can’t break the mould.

And sometimes in life, the picture has to completely change to give birth to something greater. For example, there is some evidence that there may be a hidden portrait underneath the Mona Lisa. Leonardo da Vinci had to let go of this original picture in order to create a masterpiece (one which he spent years editing I might add).

Our lives are like the creation of the Mona Lisa- the picture is always changing. An autism diagnosis may alter the projected picture, but it doesn’t mean that one day it won’t become a masterpiece.

The pictures we have in our heads for our lives/our children’s lives are not finite. We don’t have to let go of our dreams for the sake of one word. Look at how Kodi is breaking the mould- with one look you might think you know his story, but when he opens his mouth he paints you a brand new portrait. And let’s not forget Susan Boyle (a fellow aspie), one audition changed her life forever. Everyone laughed when she came on stage, but now she’s living her dream! (Side note- can’t believe this was 10 years ago…feeling old!๐Ÿ‘ด).

And let’s not forget how non-verbal Carly Fleischmann has become a talk show host!

The world is full of stories of incredible autists breaking the mould, challenging our preconceptions of what we think autism is. As I am repeatedly saying, no two are the same, so why do we insist on these moulds?

Give us the freedom to be who we are, lend us a blank canvas and we’ll paint you a picture you could never have imagined ๐Ÿ™‚

Hope you enjoyed this post dear Earthlings! ๐Ÿ˜€

Have a wonderful weekend! ๐Ÿ™‚

bitmoji-20190529114602.png

Aoife

 

Blog at WordPress.com.

Up ↑