Making Assumptions about Autism

Greetings Earthlings! πŸ™‚

I had intended to write a different post this week, however, after watching the most recent episode of ABC’s acclaimed ‘The Good Doctor‘ (a TV show that follows a surgical resident with autism), I’d like to talk a little bit about making assumptions about an autist and their abilities.

Just in case any of you are fans and are not up to date look away now *spoiler alert.*

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*Spoiler* In recent episodes, the new chief of surgery has made the decision to remove Shaun (aka the ‘Good Doctor’) from the surgical program following a minor social miscommunication with a patient, and place him in pathology, refusing point blank to get to know him or give him his job back. Naturally, this did not help Shaun’s mental state and need for routine, which ultimately led to the mother of all meltdowns and his subsequent firing from the hospital.

It was a nice bit of acting by Freddie Highmore if you’d like to see a clip following his firing:

Spoiler over!

Now it’s not often that I really feel a connection with Shaun (as we are very different in a lot of ways- no two autists are the same after all!), but this episode got me right in the feels.

Shaun’s predicament was one that I knew all too well. Shortly after my diagnosis I encountered a similar scenario in my career where assumptions were made about my abilities. Once the ‘A’ word was on the table, my employers opinion of me changed overnight, but alas, not to my benefit. Suddenly I found myself adrift in career limbo because someone jumped straight to the conclusion without stopping to discuss.

This is something that we’re all guilty of, not just employers. We hear the word ‘autism’ and suddenly our brain paints a picture. We see traits that may not be there, we imagine difficulties that may not even exist, we make assumptions on a persons character, interests, idiosyncrasies etc. based on what we know of autism without first taking time to see the person in front of us.

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I’m worn out trying to tell people that no two autists are the same! Yes, there are similarities and common traits, but just because John hates to be touched, doesn’t mean that Mary automatically hates hugs. She may love them- but if the assumption is made you’ll never get to find out.

We cannot make assumptions on an autists ability. We need to educate ourselves, get to know a person, take time to see the person beyond the diagnosis. What I need is different to what Shaun the ‘Good Doctor’ needs; who I am and what I can do are worlds apart from him. Shaun is a skilled surgeon that sometimes struggles with communication, I’m an outgoing sciencey-artsy type who never shuts up, yet most people on hearing the word ‘autism’ would tar us with the same brush.

When it comes to autism, you can never judge a book by it’s cover-but especially don’t make an assumption as stupid as this one πŸ˜› :

https://www.betootaadvocate.com/uncategorized/i-took-my-autistic-mate-to-the-casino-and-lost-17000-in-ten-minutes/

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Hope you enjoyed this post dear Earthlings! πŸ˜€

Until next time!

Aoife

Autism and Climate Change

Greetings Earthlings! πŸ™‚

I know what you’re all thinking, she’s lost it- what on earth has autism got to do with climate change?!

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Well, nothing really, but what I’m referring to is the impact of the recent Lancet report about the need to change our eating habits to stave off climate change and it’s potential impacts for the autistic community. If you’ve been living under a rock and haven’t heard about the report you can check out the paper here:

https://linkinghub.elsevier.com/retrieve/pii/S0140673618331799

or alternatively here’s a handy little summary news report:

https://www.irishtimes.com/business/agribusiness-and-food/meat-consumption-must-drop-by-90-to-avert-climate-crisis-report-warns-1.3760363

The bottom line of the report- we need to reduce our meat consumption by 90% and significantly increase our consumption of fruits, vegetables, nuts and beans to achieve our daily recommended caloric intake (18 times as much dry beans, soy and nuts in fact! 😲)

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As a scientist, I’m all for finding ways to reverse the impact of climate change,Β  however, I have found this report quite infuriating!

I haven’t really talked about food too much as an issue on this blog (mainly because it’s a subject that’s going to take some time to write about!), but food issues are perhaps my biggest struggle. Troubles with textures, tastes, smells- it can be a nightmare sometimes; but if the Lancet report is to be taken seriously, my nightmare has only just begun!

I’m a real meat lover, and vegetables for me mainly consists of baked beans and the old Irish favourite potatoes (some stereotypes are based in fact after all! πŸ˜› πŸ˜‰ ). If this report is to be seriously considered, this would restrict my daily intake of chicken (my staple) to 29g or the equivalent of one and a half chicken nuggets. Worse still for my beloved potato the Lancet recommends 50g or 39 calories of potatoes per day- roughly a quarter of a medium-sized potato!

So basically if we start to crack down on these foodstuffs, I’ll be living on fresh air and sugar- I’ll have a killer figure for sure, albeit with a side of diabetes πŸ˜›

What I am most concerned about is the larger autistic community. My food issues are mild in comparison to other autists-what about the poor struggling parents who’s child will only eat the same meal day in day out, or will only eat McDonalds or foods of a particular colour? Has no one stopped to consider the struggles that these recommendations will bring?

Don’t even get me started on the implications for those with food and nut allergies, of which a high percentage of the autistic community suffer from!

The agricultural industry in Europe is responsible for a mere 10% of our carbon footprint whereas our energy consumption stands over a whopping 80%! Why must our food habits change when our energy consumption is so staggeringly high?

It beggars belief that the medical community would think that such a radical overhaul of our eating habits is our best option in the fight against climate change.

What we really need are cleaner fuel alternatives, better range of and services for hybrid cars, and better public transport systems for rural communities (a huge issue here in Ireland- if you don’t have a car, rural life is extremely isolating. Where I live one would have to walk for 45 minutes to get a bus to the nearest town!) to cut down our carbon footprint. Or if someone could invent apparition from Harry Potter that would also work pretty nicely too πŸ˜› πŸ˜‰

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Hope you enjoyed this post dear Earthlings! πŸ™‚

Have a wonderful weekend!

Aoife

Merry Christmas!

Greetings Earthlings! πŸ˜€

I’d just like to take this opportunity to wish you and yours a very Merry Christmas and to wish you every happiness for 2019 to come! πŸ™‚

As we come to the end of another year I’d just like to thank you all for your continued support and readership. I really appreciate your kind comments and that you’ve stuck with me for this long πŸ™‚

Who’d have thought 2 years ago that you’d all still be here listening to my ramblings! πŸ˜‚

I’ll be taking a break for a couple of weeks over Christmas, but I’ll be back again in the new year!

Wishing you all the very best for the festive season! πŸ™‚

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Aoife

Autism Profiles: Anne Hegerty

 

Greetings Earthlings! πŸ™‚

This week I’d like to discuss a celebrity with autism that has been featuring in the news a lot lately- Anne Hegerty, better known as the Governess on the ITV quiz show ‘The Chase‘ in the UK. Anne is an elite quizzer, one of six, whom challengers head off against to win large sums of cash for their team.

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As an avid fan of quiz shows I’veΒ  been fascinated by Anne and her brain for some time, and even more so after I read about her diagnosis of Asperger’s syndrome at the age ofΒ  45. Before her diagnosis, Anne was on the brink of homelessness and struggling to “keep it all together”. However, following her diagnosis, she was introduced to the world of elite quizzing by her social worker and the rest is history! πŸ™‚

Most recently, Anne has been appearing in the news due to her participation in the ITV reality show ‘I’m a Celebrity, Get Me Out of Here!”. For those of you unfamiliar with the show, a group of celebrities (although the term is often used loosely these days due to the decreasing calibre of celebs willing to participate πŸ˜› ) are deployed into the Australian jungle for a few weeks and the public votes to subject their chosen celeb to ‘bush-tucker trials’ to win their campsite meals and luxuries. These trials are torturous ordeals where the celeb is often exposed to creepy crawlies, may have to wade through slime/crocodile infested waters, could be buried alive (with unknown nasties) and may even have to eat a range of unpleasant jungle critters- meals often including some “unsavory” parts of the kangaroo/crocodile anatomy…😬

As you can imagine, this is not exactly the most hospitable of environments for the average autist!

In fact, Anne broke down in tears on the first night in the jungle as she struggled to adjust to life outside her comfort zone, and was very close to saying she couldn’t do it.

But Anne has persevered, and even powered through some disgusting bush-tucker trials which you can see in the links below (I know I wouldn’t be able for them!):

She has been widely praised during the shows’ run for talking openly about her diagnosis with her camp mates and raising awareness about the every day challenges of living with Asperger’s.

Here she is opening up about her struggles in the jungle:

You can see her chat a little bit more about her life with Asperger’s here on the ITV chat show ‘Loose Women‘.

I’d just like to finish this post by wishing Anne the best of luck in her remaining time in the jungle (she’s one of the favourites to win) and to conclude with a fantastic quote from her about having Asperger’s syndrome:

“People say to me, ‘I understand you suffer from Asperger’s’ or ‘you suffer from autism’, and I’m like, ‘no, IΒ haveΒ Asperger’s, I suffer from idiots!” πŸ˜‚

Love this woman! πŸ˜€

It’s such a pleasure to witness to a real aspergirl showing the world that one should not be defined by a diagnosis, but by the strength of your actions πŸ™‚

Have a great weekend Earthlings! πŸ™‚

Aoife

Autism and Robots

Greetings Earthlings! πŸ™‚

Today I’d like to briefly discuss a somewhat unusual topic- robots and autism.

Yes, I know what you’re all thinking, Aoife has finally lost it- but just before you call in the men in the white coats, let me tell you about the clinical benefits of using robots for children with autism! πŸ™‚

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Recent technological advances in the field of robotics offer great possibilities in the treatment of autism. As interactive robots are increasingly becoming more human like, this technology can be used clinically to help teach social skills to children with autism.

Whilst the research into the therapeutic benefits of robots is in it’s infancy, several schools across the globe have begun to use social robots reporting very positive results πŸ™‚

So how do these robots work?

The robots engage autists with a specially tailored curriculum. For example, the robot makes a sad face or starts laughing and the child has to say what the robot is feeling, or when interacting with the robot if they do something that could hurt a real person, the robot will cry out so that the child can learn that thisΒ  behaviour is not appropriate.

It’s really cool! πŸ˜€

You can check out Milo below- one of the many models of social robots helping kids with autism worldwide (try not to letΒ  him creep you out though, Kaspar the robot is way freakier….might have further to go in making these robots more approachable in my opinion 😬).

The benefits of using this technology currently include improved:

  • Engagement
  • Eye contact
  • Vocabulary
  • Attention
  • Self-motivation and regulation
  • Emotional recognition and understanding, and
  • Improvements in appropriate social behaviour

And all of this within just 1-4 months of using a robot like Milo! 😲

All in all the technology looks really promising in the treatment of autism, even if a few tweaks may be needed to improve the appearance of these robots πŸ™‚ πŸ˜›

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Aoife

 

Holiday Break

Greetings Earthlings! πŸ™‚

Just a quick post to say that there will not be any new blogs for the next couple of weeks as I’m heading away for some much needed R and R πŸ™‚

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Hope everyone is enjoying the summer! 😎

Aoife

Autism and Gaming

Greetings Earthlings! πŸ™‚

Today I’m going to explore one of my favourite pastimes and it’s benefits for the autistic community- gaming! πŸ™‚

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Ah gaming- one of the true loves of my life! πŸ˜› πŸ˜‰ It keeps me entertained, it’s fun, and ironically helps me to switch off when my brain is cluttered with other matters, drawing me into the game and allowing me to escape from my troubles.

But gaming, whilst fun, hasn’t always been that well received. Concerns are regularly voiced about violence in shooter games, obesity, and the antisocial nature of gaming.Β  In particular relation to the autistic community, expert Tony Attwood has expressed concern at the addictive nature of gaming (especially with regard to specialist interests)Β and it’s potential to isolate autists and discourage them from making social efforts.

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I think it’s fair to say that I’ve wasted a significant portion of my life investing hours upon hours, weeks, months and even years into my craft, but has it all been a waste? Might gaming actually be beneficial?

Some studies have shown that gaming provides a number of cognitive benefits in improving basic mental abilities (think back to the days when brain training was a huge deal in the noughties). Other studies believe that gaming offers a healthier alternative to watching TV as gamers are less likely to snack on unhealthy foods versus a TV viewer (I’ve certainly forgone food and delayed bathroom breaks when I’ve been in the zone!Β πŸ˜‚). Moreover, research suggests that gaming canΒ help children developΒ executive, logical, literary, and even social skills- the latter being particularly beneficial for children with autism.

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One game in particular has shown numerous benefits for autists- Minecraft. For those of you who are unfamiliar with the game, Minecraft is “a game about placing blocks and going on adventures”, where the player uses colourful blocks to create a 3D world in which to play. Experts say that the game encourages and motivates learning, increases perception, boosts creativity and improves hand eye coordination (I do have to wonder how much worse my coordination would be were I not a gamer πŸ˜›Β πŸ˜‚).

Contrary to the belief that gaming encourages antisocial behaviour, MinecraftΒ is helping children with autism build healthy social lives and relationships through the “Autcraft” community. In 2013, Stuart Duncan, a web developer, set up a special server exclusively for people with autism so that they could have a social experience through Minecraft within the safety of this online community. Autists can chat to and game with other players online allowing them to thrive socially in a safe environment where they don’t have to worry about social cues or facial expressions- just fun πŸ™‚

Never been interested in playing it myself (I prefer higher quality graphics like in the Final Fantasy games), but the game certainly looks promising in helping autists πŸ™‚

You can watch a Ted Talk below about the benefits of Minecraft for kids with autism:

So there you have it dear Earthlings, I hope you enjoyed this post! πŸ™‚

Have a good weekend! πŸ˜€

Aoife

 

Easter Greetings!

Greetings Earthlings! πŸ™‚

Just a quick post to wish you all a very Happy Easter!! πŸ˜€

I know what my plans this weekend will be like… πŸ˜‰

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(Apologies for the shortness of this post I’m super busy at the moment! πŸ™‚ )

Enjoy the chocolate binge everyone!! πŸ™‚ πŸ˜‰

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Aoife

Accepting your Autism Diagnosis

Greetings Earthlings! πŸ™‚

To kick off the new year I’m going to expand a little bit on something I’ve touched on briefly in the past- coming to terms with your autism diagnosis.

As I’ve stated many times, getting my Asperger’s diagnosis was one of the best things that could have happened to me. Two little words clarified a lifetime of questioning, confusion and misunderstanding.

My entire life finally began to make sense.

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Whilst this diagnosis was indeed a welcome one (in spite of the way my diagnosis was sprung on me πŸ˜› ), I struggled to come to terms with it for some time afterwards. As an adult, the diagnosis shouldn’t have changed anything- Asperger’s syndrome explains me, but it does not define me.

However, just because the shoe fits does not mean that you will break it in overnight.

Logically, there was no issue in being diagnosed; the emotional aspect on the other hand was much tougher.

Getting my diagnosis was like seeing myself for the first time in a mirror. It felt like I had made a revolutionary discovery, and yetΒ  somehow, I was ill at ease. The more I read about Asperger’s, the more self conscious I became of my mannerisms and behaviours. I was hyper-aware of everything that I did.

I knew and accepted that Asperger’s didn’t define me, however, I felt compelled to define it. I talked about Asperger’s incessantly possessed by the niggling urge to explain every single thing I did for fear of being misunderstood. As a friend recently told me, she barely knew my name before I had filled her in about my diagnosis!Β πŸ˜‚

There were times when I felt as though I were beginning to disappear behind the smokescreen of the diagnosis, constantly questioning what was me and what was just Asperger’s.

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It took me over two years to learn to fully relax and embrace my diagnosis- somewhere along the way it just clicked. I no longer feel this need to go on about it. Indeed, there are times when I want to talk about it (for example in this blog), but I am also perfectly content to keep people guessing πŸ˜‰

Asperger’s is a bigΒ part of my life, but it’s not the whole picture πŸ™‚

Here’s just a couple of things that helped me on my journey towards acceptance:

  • Talk about it– Real original- I know, but if it ain’t broke don’t fix it!
  • Try CBT– Now I know that I’ve said CBT wasn’t particularly useful for me from a management perspective, buuuuuut cognitive behavioural therapy didΒ help to increase my knowledge of autism and better understand who and why I am πŸ™‚
  • Write it out– I know I’ve said it before, but writing can be so cathartic. It really helps to verbalize what you can’t describe, especially if you have alexithymia. My laptop is full of mini essays from deflating my overly full skull at 3am! πŸ˜›
  • Read – Whilst this may have partially fueled my hyper-analysis, it also allowed me to better understand and accept myself. The more I learned, the easier it was to accept and embrace my quirks. Just maybe steer away from some of the novelizations of autism- these don’t always paint the most realistic of pictures πŸ˜›

Learning to accept an autism diagnosis (as cheesy as it sounds) is a journey. There may be twists and turns and many a speed bump along the way, but you will one day reach your destination πŸ™‚

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Aoife

 

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