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Autism and Perseverance

Greetings Earthlings! πŸ™‚

As I’m currently attempting to add dressmaking to my list of skills (which is not coming as easily as I thought it would!), this week I’d like to discuss the importance of perseverance when it comes to autism.

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As the saying goes, “Rome wasn’t built in a day“, so too the same holds for learning new skills and autism. Many autists struggle with learning difficulties (I will discuss this in greater detail at a later stage) which can be challenging when trying to learn social or motor skills and develop coping mechanisms.

But just because things don’t come as naturally to an autist as they do to their neurotypical peers, doesn’t mean that they won’t.

Perhaps some of the most frustrating challenges I’ve faced in my life have come from my efforts to learn new motor skills such as riding a bike, learning to knit, learning to drive etc. Attempting to formulate the necessary neural pathways to forever commit these skills to memory was beyond frustrating! Book-based learning I can handle, but ask me to use my hands and it’s an entirely different kettle of fish!

Knitting was a particular struggle- I would sit and watch my peers making headbands and knitting scarves whilst I sat tangled in a ball of wool. Frustrating as this was however, with a LOT of practice, (and several litres of blood sweat and tears) , before long you couldn’t keep the needles out of my hands, and even today I regularly commit to large knitting projects in my spare time.

Similarly, perseverance was key to developing my baking skills. When I first began to use fondant, I was HOPELESS- I could never get it to go smooth, it was always full of holes, it was too dry, or too wet, it never seemed to go right! So bad was I in fact that one of my friends told me that an early creation of mine was so terrifying that it belonged in a horror film πŸ˜› :

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Needless to say I have not been able to attempt a canine cake since πŸ˜›

BUT- I did get the hang of cake decorating eventually as you can see in one of my most recent (and most complex) creations for my Granny’s 90th birthday:

When you get frustrated trying to learn new things like this, it can be all too easy to throw in the towel (God knows I’ve wanted to smash my sewing machine to bits lately after sewing yet another wonky line! πŸ˜› ), but you can’t let your brain get the better of you. Granted it isn’t always as easy to forge new neural pathways and learn new skills as for neurotypicals, but it doesn’t mean that they cannot be formed. Like digging trenches through soil or stone- a stone trench will take longer, but the result will be the same.

Just focus on the three P’s- patience, practice, persistence!

It will take time, but persevere and you’ll get there in the end πŸ™‚

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Have a good weekend Earthlings! πŸ™‚

Aoife

Autism and Public Transport

Greetings Earthlings! πŸ™‚

Following a recent trip to the chaotic city of London I decided that this week I would explore autism and public transport.

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Navigating public transport in a busy city can be challenging for the best of us, however for autists, this can be completely overwhelming. The throngs of human traffic, strangers accidentally touching/sitting next to you, the stress of late buses/trains, the smells, the noise (the screeching of the brakes on the London underground was one of my least favourite parts of my trip!)- it can be a lot for the autistic brain to take.

As scary as public transport can be however, an autist can’t always avoid using it (especially if you struggle with getting the hang of driving/or prefer not to deal with the stress of driving to/and or around busy cities).

So here are my top tips for navigating public transport:

Plan ahead– sounds obvious, but if you’re prone to panicking (as I often do) don’t wing it! Check out your travel options, look at the timetables, allow enough time for delays with your service (if you have a time sensitive engagement), make a backup plan- Google Maps is particularly useful to show you the public transport options if you give them your start and endpoints. You’ll be a lot calmer and far less overwhelmed if you know all of your options, especially if you’re travelling round a busy tourist city with lots of intersecting travel lines.

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Pre-book tickets– if you’re concerned about getting a seat on a service (or getting the right seat), if the service allows, you should pre-book. This can guarantee you your seat, or for some bus services will at least entitle you to priority boarding at a busy bus stop and cut out a lot of stress.

Aim for a single seat– if you’re anything like me and don’t like sitting next to people when you’re travelling alone (have had far too many unpleasant experiences sitting next to people who make me uncomfortable/smell funny/take up so much space that you’re squished against the window :P), keep an eye out for an individual seat. There are usually a couple of these on buses nowadays, you can even book ahead for a single seat in some countries such as Spain. Failing that, having a lot of stuff on the seat next to you can help as (in Ireland anyway) people are less likely to bother you when you have lot’s of stuff to move- unless it’s one of the few seats left, then sadly there’s not a lot one can do.

Keep earplugs near at hand– ah the trusty earplug, often an autists best friend! Why not keep a pair in your pocket/wallet/handbag for when the noise threshold begins to rise, this could be particularly useful for underground services where the sounds are amplified by the confined space.

Make use of smart phone apps– Most travel companies have their own apps with live information about their services and timetables all at the touch of a button. This can be a great tool to help you to keep track of your service/travel options options and set your mind at ease.

Get a travel smart card– to avoid panicking about the need for exact change/fumbling with coins, if you regularly travel round a city you should investigate smart cards; all you need do is top it up, tap and go! πŸ™‚

Always factor plenty of time– perhaps one of the most stressful parts of navigating public transport is when you’re under pressure for time. To lighten the load, make sure to leave plenty of time ahead of your journey- be sure to factor in events around your location which could cause traffic disruptions (such as marathons, concerts, holiday shopping or if you’re travelling though rural Ireland, the likelihood of being held up by farm machinery! πŸ˜‚), the weather, general service delays, road works etc.

There we have it dear Earthlings, I hope you enjoyed this post! πŸ˜€ Public transport can be daunting for an autist, but with proper planning and a bit of practice, it won’t be scary for long πŸ™‚

weee

Aoife

Autism and Fear

Greetings Earthlings! πŸ™‚

In light of this spooktacular week, I’ve decided to take a closer look at fear and autism.

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All of the Halloween themed memes floating around on social media this week have put me in mind of how strange some of my childhood fears were in comparison to those of my peers (in fact it’s estimated that as many as 41% of autists tend to have more unusual/irrational fears).

For starters, I was PETRIFIED of comedian Charlie Chaplin! πŸ˜› Absolutely TERRIFIED- he haunted my nightmares for years and I was convinced if I lingered in a dark room for too long that he would come out from the shadows to grab me! In addition to this, I was also irrationally afraid of chemicals and overhead power-lines (so afraid in fact I was convinced just touching the wooden pole would kill you- it was an innocent time before I learned about science and insulators vs conductors!πŸ€“).

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Fear has often been a dominant emotion in my life, fear of what people might think of me, fear of saying the wrong things, fear of losing my cool and melting down in public etc.Β Β According to world famous autist Temple Grandin, “the principal emotion experienced by autistic people is fear.”

But is there any scientific reason for this fear? Might autists be biologically predisposed to being more fearful?

When we experience a fearful situation, a biological fear response is triggered in the amygdala of the brain. Activity in this region when exposed to fearful stimuli triggers fear based changes in body functions such as sweating, shortness of breath, fight or flight, paralysis etc.

As discussed in numerous previous posts, changes/dysfunction in the amygdala are regularly attributed to autistic symptoms. So therefore it stands to reason that perhaps these changes in the amygdala may also influence/exacerbate the fear response in autists compared with their neurotypical peers.

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Other studies have also suggested that there is a muted fear response in autists which may explain the lack of perception concerning safety/danger often seen in young autists.

So there we have it, hope you enjoyed this post dear Earthlings! πŸ˜€

Have a great weekend! πŸ™‚

Aoife

Autism and Going Away to College

Greetings Earthlings! πŸ˜€

This week I’m going to to talk about perhaps one of the biggest challenges for a teenage autist- going away to college.

Ah college, some of the best years of your life- but years that can be difficult to adjust to for people on the spectrum. Granted, going away to college is a huge step for anyone, but considering an autists’ difficulty with change the stress can be tenfold. Living away from home, living with new people, finding your way around campus, the lack of routine, social expectations etc.- it can be completely overwhelming!

When I think about preparing for college, it always put’s me in mind of this Blink-182 song:

I haven’t been this scared in a long time, and I’m so unprepared…

This is exactly how it felt for me when I went away to college- sure, I was sick of school and excited to learn new things, but it is still one hell of a transition! I definitely cried a LOT those first few days/weeks settling in.

But never fear- here are some tips that I found helpful for starting out in college:

  • Register with the university disability service– If you think you need a little extra support when starting out, don’t be afraid to ask. Even if you don’t currently need any of the disability support services the college offers, it’s always good to have the safety net there when academic problems related to autism arise
  • Join a club/society– I know it can be really scary and overwhelming at first, but you won’t regret it! There’s loads of societies to choose from, and surely one that will suit your interests- they even have Harry Potter societies and Quidditch teams in colleges now (which sadly didn’t come to my university until after I had graduated πŸ˜₯ )Β  It’s a great way to meet like minded people, make new friends and give you a break from the books πŸ™‚ And if there isn’t a society that you like, why not set one up?
  • Get to lectures early– This is one that could really have helped me out during my first few weeks in college (but sadly I tend to me a tumble out of bed, last-minuter in the mornings). Give yourself plenty of time to get to the right room/building; universities aren’t always designed well and can be an absolute maze to navigate (which won’t help your stress levels). But more importantly, this can help you to keep an eye out for people you know. In my first month in college, sitting in a lecture hall with 300+ science students, I found it very difficult to get to know people, and when I did get chatting, I found it even harder to physically find the same person to chat to a second time among the masses. In getting to class early, you can pick a prime seat to watch out for familiar faces so you can flag them down to sit with you
  • Get a head start on your assignments– An obvious one I know, but a critical one if you tend to be a last minuter. College life is stressful enough coursework aside; don’t risk needlessly stressing yourself out and melting down

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  • Invest in scented candles/air fresheners– If you’re anything like me, the smell of some unfamiliar dishes cooked by your roommates can turn your stomach! Find a scent that you’re comfortable with or something that reminds you of home when offending odors threaten your senses. But make sure you test it out before you buy it- some odors can be even worse than the offending stimulus (I had a bout of nausea from a Christmas Yankee Candle last year- although that could have been a side effect of the antibiotics I was taking! πŸ˜› )
  • Buy a decent pair of earplugs/noise cancelling headphones– the night time activities of the average student can often impact sensitive ears (I went through a few weeks of insomnia in my first year due to late night partying, fire alarms and drunken doorbell ringing), so plan ahead to ensure you get your full nights sleep
  • Google, Google Google– When navigating a new city, Google is your best friend, Google Maps, Google Street View, Google everything! When you’re not feeling confident about your directions, where to find shops, college facilities, timetables for public transport etc., pull out your smart phone and within a few clicks you’ll have everything you need. I would not have gotten through college without Google Street View. It really helped to put my mind at ease when travelling to unfamiliar parts of the city/university and kept me from getting overwhelmed
  • Make use of video chats– Video chatting has become far more accessible than it was when I started out in college, but nevertheless having the comfort of Skyping my family every evening really helped me to settle in during my first year (after that I rarely needed this crutch). Seeing my sisters in the familiar office at the Desktop after they came home from school every day really helped the transition from my old routines to my new college life

Going away to college can be a very scary experience, but try not to stress it- everyone finds it tough at first, but before long you’ll wonder why you ever resisted this change πŸ™‚

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Hope you enjoyed this post dearest Earthlings! πŸ˜€

Have a great weekend!

Aoife

Autism Assistance/Service Dogs

Greetings Earthlings! πŸ™‚

This week we’re taking a cuteness break to take a look at autism assistance dogs!

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❀

Just look at him!!! 😍

Sooo cute- but, they also provide a very important service to children, and adults, with autism (some days I wish I could justify getting one to have an official reason to always have a dog around! πŸ˜‚).

To state the obvious, an autism assistance dog is a service dog that has been trained to help autists to navigate the world and allow them to gain some independence. Some service dogs have been trained to keep their human from leaving the house unattended, Β alert children/adults with autism of dangerous situations, prevent self injurious behaviours and even induce calm by applying pressure to the foot or lap of their charge!

So smart!! 😍

Ever since the first autism assistance dog was trained 21 years ago back in 1997, these cuddly canines have made a world of difference to the lives of their owners.

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But what does the research have to say about these benefits?

There is limited research data to show the specific/scientific impact of service dogs as of yet, however the glowing reports from assistance dog owners speaks for itself.

As I discussed in a previous post, some studies have shown that the social skills of autists who live with an animal are much greater than those who do not have a pet as they act as β€œsocial lubricants”.Β Studies have also shown that animals in fact can have a noticeable biological calming effect on people with autism as stroking animals has demonstrated a measurable drop in anxiety levels! So just by being there, autism assistance dogs are having a huge impact to the mental and social wellbeing of their human.

These dogs do however cost around €15,000 to raise over two years, so if you’re thinking about applying for one, really consider yours/your childs needs first as there are many out there who could really benefit from their assistance.

Hope you enjoyed this post Earthlings! πŸ˜€ I do love it when I get an opportunity to chat about dogs! ❀

Okay- maybe just one more cute pic πŸ˜‰Β πŸ˜

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Have a good weekend everyone! πŸ™‚

Aoife

Autism and Colour

Greetings Earthlings! πŸ™‚

So this week I’m just going to expand a little bit on something I’ve briefly talked about in previous posts– autism and sensitivity to colour.

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Yes- I know it sounds like a silly thing, but colour sensitivity in autism is real!

Thankfully I have no such issues with colour (I’m all about that rainbow! πŸ˜€ ), but many autists actively gravitate towards a particular colour and/or actively avoid other colours. Autists have been known to eat only white coloured foods, or to only play with toys of one particular colour for example.

You can see this avoidance behaviour quite comically in the film ‘My Name Is Khan’Β where the title character sees a man in a yellow top and awkwardly turns around to walk in the opposite direction to him!Β πŸ˜‚

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But is there a scientific reason for such an unusual behaviour?

Due to some of the structural abnormalities in an autists’ brain, difficulties in sensory processing and the integration of this sensory info can cause colour sensitivity, as autists will often detect colours with higher intensity than neurotypicals.

The colour yellow has been particularly known to trigger this behaviour in boys with autism as studies show that they really struggle to process this colour.Β Scientists think that this may result from a sensitivity to luminance in autists. Alternatively this may occur as yellow is one of the most heavily sensory loaded colours (it’s the brightest colour in the visible spectrum), as it engages multiple colour detection cells (called cones) in the eye. Furthermore yellow has been known to be the most fatiguing colour to the eyes which could explain why sensitive autists avoid it.

From a psychological perspective, yellow has been known to increase a persons temper, and babies who are exposed to yellow rooms tend to cry more (will have to find another gender neutral colour when the time comes so! πŸ˜›Β πŸ˜‚). Yellow is also associated with danger/acts as a warning in the animal kingdom (i.e. bees and wasps). This is also true for fluorescent vests and street signs, which could also potentially trigger avoidance behaviour in the autistic brain!

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Hope you enjoyed this ‘colourful’ post dear Earthlings! πŸ™‚

Have a great weekend! πŸ˜€

Aoife

Lesser Known Signs of Autsim

Greetings Earthlings! πŸ™‚

So this week I wanted to briefly put together a post about some of the lesser known autistic traits. I’ve discussed most of these before, but I wanted to put them all in the one place πŸ™‚

Fecal Smearing– yep, really diving in at the deep end on this one! πŸ˜› As disgusting as this is to talk about, fecal smearing or scatolia, can be one of the earliest signs of autism. Reasons for smearing are generally thought to be either behavioural (attention seeking) or sensory. Scatolia in particular seems to be linked to periods of under-stimulation in autists and so the behaviour appeals on a textural and olfactory level… This is in actual fact a pretty common autistic behavaiour, but the vast majority of people are unaware of it- because let’s face it, who wants to talk about poo! πŸ˜›

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Skin Picking–Β Β As we’ve previously discussed, skin picking, or neurotic excoriation, is a pretty common autistic behaviour (an estimated 14.8% of autists may exhibit this behaviour). Autists may pick, scratch and squeeze their skin as a physical expression of emotional/psychological distress to relieve their discomfort through self- stimulation.

Regulation of Tone– Another common but lesser known behaviour is that of autists’ struggles to regulate their tone of voice. Impairments in audio processing and prosody in the autistic brain can make it difficult for an autist to accurately gauge the tone and volume of their voice, so try not to judge too harshly if they accidentally shout in quiet conversation 🀫

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Digestive IssuesPerhaps one of the most common but equally unknown challenges of autism is that of co-morbid digestive issues. Autists may be over 3.5 times more likely to suffer from issues such as diarrhea, constipation, food allergies, gastroesophageal reflux diseaseΒ (GERD), irritable bowel syndrome (IBS) and inflammatory bowel diseases (i.e. Crohn’s disease and ulcerative colitis)- the associated pain from which can exacerbate behavioural symptoms.

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Hope you enjoyed this post dear Earthlings! πŸ˜€

Have fun this weekend! πŸ™‚

Aoife

Autism on Screen- Atypical (Season 2)

Greetings Earthlings! πŸ™‚

Following on from last years discussion of the Netflix smash ‘Atypical‘, I wanted to see how the second season fared in it’s portrayal of autism πŸ™‚

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In case you need a reminder, ‘Atypical‘ focuses on autistic teenager Sam as he navigates his senior year of high school. The show also focuses on Sam’s wider family and friends so that we are not given a mere one dimensional look at the reality of living with autism.

Picking up where the last season left off, ‘Atypical‘ follows Sam through the latter half of his senior year in high school, charting his girl trouble, struggles with change, and his fears and ambitions for life after school. The season in particular focuses a great deal on the difficulties Sam experiences with change as he comes to terms with the consequences of his mother’s affair, needing to find a new therapist, his sisters transfer to a private school along with an assortment of other changes associated with the end of his school days.

You can check out the trailer for season 2 here:

Just like last season, I highly enjoyed this refreshing and endearingly comedic portrayal of autism. The acting was again excellent and I believe that the show gave a well rounded view of the autistic experience.

What I liked in particular about this season was Sam’s support group. In order to prepare himself for “the abyss” or his future after graduation, Sam joins a group for high-school seniors with ASD’s. The good thing about this group meant that it allowed for other autistic characters and their traits to shine through in the series.

In addition to this, many of these group members were themselves on the spectrum (as the first series was criticized for not making greater use of spectrum actors) which meant that we actually saw a realistic portrayal of several spectrum characters! πŸ˜€ This was great for showcasing autistic women, especially as one of the characters was shown to have “super empathy” after stealing Sam’s art portfolio to keep him from going to college as he was afraid of becoming a starving artist! πŸ˜‚ Additionally the struggles to regulate tone were also evident in this group- a common trait with limited awareness.

Furthermore the season highlighted a growing area of importance- first responder autism training. Sam get’s overwhelmed when he attempts to sleep over at his friend Zahid’s house and leaves for home in his PJs. He is subsequently arrested for his odd behaviour in his attempts to “stim” and calm down, even after Zahid tells the officer that he is autistic. Here in Ireland, autism charity AsIAm are particularly dedicated to offering training to a number of services in the public sector for encounters such as this one:

https://asiam.ie/our-work/asiam-public-sector-training/

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However, there was one major issue in this season, which we Irish found highly irksome- the mispronunciation (or absolute butchering) of Kilkea, Athy, Co. Kildare (https://www.independent.ie/entertainment/banter/trending/irish-netflix-viewers-bemused-by-atypical-characters-pronunciation-of-kildare-athy-and-kilkea-37308271.html). This town was pronounced as kill-kay-ah, ath-ee, county kill-daahr. For the record- it’s pronounced kill-key, a-thigh, county kill-dare (literally no reason to mispronounce the last one! πŸ˜› ).

I didn’t even realize where they were talking about until they said Ireland at the end! Perhaps the scriptwriters would do well to double check their place names in future πŸ˜›

All in all I highly enjoyed the sophomore season of ‘Atypical‘ and would highly recommend this quirky comedy for a weekend binge watch πŸ™‚

Aoife

Autism on Screen-Little Man Tate

Greetings Earthlings πŸ™‚

This week I’d like to focus in on the 1991 film Little Man Tate and it’s depiction of Asperger’s Syndrome.

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Directed by and starring Jodie Foster, Little Man Tate tells the story of Fred, a young genius (sigh) with Asperger’s syndrome and his relationship with his loving mother Dede. Fred struggles to relate to his peers due to his high intellect in school whilst his mother wonders why he can’t just be a “normal, happy little kid”. Life begins to change for the better for Fred however when his intellect is discovered by a child psychologist who wants to enroll Fred in a school for gifted children.

You can check out the trailer for the film below:

So how did this film fare in it’s depiction of autism?

Aside from the obvious genius/savant conundrum (I’m sick of giving out about it’s over-portrayal in film at this stage! πŸ˜› ), the Asperger’s traits portrayed here were highly stereotypical in my opinion. Granted, the film never explicitly mentions autism, however many experts consider the character as having Asperger’s.

The film is very dated in it’s portrayal, however, this would have been one of the earlier film portrayals of autism when knowledge was limited in contrast to newer more accurate representations such as in Mozart and the Whale,Β My Name is Khan and most recently in the Netflix orignal TV series Atypical.

However I have to give props to casting-Β  Adam Hann-Byrd could easily pass for Jodie Foster’s real son in looks and accent!Β πŸ˜‚

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In addition to this, Foster’s character has to be commended for her determination to make Fred’s life as “normal” as possible, despite him being delightfully unique (as I always say normal is overrated!). Far too often autism is used as an excuse these days which will ultimately impede autists from reaching their true potential.

Hope you enjoyed this post dear Earthlings! πŸ™‚

Have a lovely weekend!

Aoife

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