Travelling on the Autistic Spectrum- When Things Go Wrong

Greetings Earthlings! πŸ™‚

Leading on from my previous post about managing autism while travelling, after a recent mishap with a suitcase in the airport on my way to Italy, this week I’d like to talk about when things go wrong.

Ordinarily, travelling on my own through an airport is no great hassle for me. I’ve done it loads of times before with no issue, however, with all the disruptions to travel since the start of the pandemic, flying has become a little bit more stressful. Due to reduced capacities on public transport, I started out my journey on the wrong foot by driving the 2 hours to Dublin up a very busy motorway on a Friday afternoon- not the most calming of scenarios given some of the issues autists can have driving. Arriving in the terminal after a lengthy search for a free parking space (despite pre-booking), I made my way directly to bag drop off to relieve myself of the ginormous suitcase I was carrying, laden with goodies from home for an overseas relative.

That’s when things started to go awry…

The suitcase wobbled and rolled off of the self service scales as it was recording the weight, so the label the machine printed off displayed an incorrect value. I proceeded to put the bag on the drop off conveyor… buuuttt it wouldn’t take my suitcase! Now as we are in Covid times, there were crowds of people round me travelling, but not a lot of staff to ask for help from at these desks in order to reduce interactions. So I tried to re-weigh and reprint my tag a second time to find that my bag was 0.8 kg over the limit, leading me to frantically kneel down in the middle of the floor, pulling out shoes and baked goods to shove them in my carry on. I was enduring this stress while still wearing my coat and a face mask, so the heat from the situation was rising, not to mention I was still coming down from the stressful drive, was tired, hungry, and in need of the bathroom- so my sanity was hanging on by a thread! Once I had reduced my weight sufficiently, the machine then refused to print another label for my luggage, and tried to charge me €60 for the pleasure! πŸ™ˆ

Sooo I frantically searched for a an attendant to advise me, who did not have a solution only that I join the massive queue at the ticket desk…aannnnd then the meltdown hit! Thankfully it wasn’t more than a few tears, and once I communicated that I was autistic to the attendant, she was very nice and supportive πŸ™‚

But the saga wasn’t quite over yet! As I proceeded towards the ticket desk for assistance, another attendant saw me and asked where I was going with my suitcase (as the desk was in the opposite direction to the drop off). I communicated my issue and this no-nonsense lady firmly told me to stop crying! Believe me, I wouldn’t be crying in my thirties over something so stupid as an overweight suitcase if I had the choice πŸ˜› She eventually steered me direct to the drop off and fired the suitcase on the conveyor with a final parting order to stop crying. Five minutes later, I was sitting calmly in McDonald’s, my crisis was over and the mortification set in 😳

Granted, this experience was resolved quickly and could have been a lot worse (I’ve had a 24 hour delay on a previous family holiday), but it was still an extremely stressful few minutes!

Based on this mortifying experience, here are some modified tips for dealing with autism while travelling when it’s too late for prevention:

Take a moment to collect yourself– if you feel like a meltdown could be coming on, take a step back. My stress over increased airport traffic with international travel opening up pushed me to keep going, but I should have paused to take off my coat, grab a snack from my bag, and try the suitcase again.

Take a break in a sensory friendly room (if available)– Irish airports have pioneered sensory friendly rooms for travelling autists to enable you to take some chill time to come down from stressful scenarios. If a space like this is available, take some time out.

Approach a member of staff for help– if you feel that you are struggling and are in a position to communicate your struggles, reach out to a member of airport staff and they should be able to help make your journey a little easier. Dublin Airport, among others, has a special lanyard that you can get to alert staff that you are autistic if you are in need of assistance, so the training is there for staff to help you in your time of need.

Take a break from your face maskface masks can be quite problematic for a lot of autists, but are a requirement for travel at present. If you’re getting overwhelmed from wearing the mask for too long, go to the bathroom for a few minutes to pull down your mask and take some deep breaths privately. Pro tip– spend as long as you can in the food court as you will not be required to wear your mask in this area.

Bonus tip– If you’re using a self service scale, place your bag on it’s side, not on it’s wheels- learn from my mistakes πŸ˜› πŸ˜‰

Perhaps the best tip I can offer is to make use of autism assistance programs where available. I have not previously used this service as I have not needed it, and also because other airports like Shannon Airport advocate the use of bright orange hats to quickly identify an autist, which as an adult, this concept would make me feel like a bit of a sore thumb πŸ˜› Check out if the airport you are going to has an assistance program for autists that you can avail of so that in the event that something does go wrong, you will be taken care of. Once I was able to communicate that I was autistic, the staff were happy to help, but other autists may not be able to communicate this mid-meltdown, so make sure to check out assistance programs ahead of time to ensure that the help is available to you in the event that things go wrong πŸ™‚

Hope you enjoyed this post dear Earthlings!

Have a lovely weekend!

Aoife

Autism and Noise Reducing Earplugs

Greetings Earthlings! πŸ™‚

Leading on from my previous post about sound sensitivity, this week I’d like to explore the subject of noise reducing earplugs. In recent weeks, I’ve been getting a lot of Facebook ad’s for noise reduction earplugs, so I finally decided to take the plunge and buy a pair to see what all the fuss is about.

So how exactly do these noise reduction earplugs work? Isn’t the whole function of earplugs to reduce noise anyway?

Noise reducing earplugs are different to your garden variety earplug in that they are designed to reduce background noise without compromising audio quality in your immediate surroundings. Most earplugs will muffle sounds, but this next generation of earplugs focus on filtering them instead of blocking them. There are a lot of different models out there at the mo, but I chose to test drive Loop Earplugs. Loop are designed with an acoustic channel in the earplug to mimic the auditory canal in your ear, and use a mesh filter to reduce the volume of your surroundings. They are particularly designed with concerts in mind, as music is often played above safe levels (85 decibels) which can permanently damage eardrums in as little as 15 minutes. They have a couple of audio reduction levels from as high as 27 decibels down to 18 (which I tried) so you can purchase whatever reduction level suits your needs.

Loop Earplugs Perfect for Work

So how did I find them?

This weekend, I tested them out on a busy day in the noisy city of Dublin. I popped them in while walking down the street and found it really did reduce the sounds around me, but I could still hear everything I needed to, such as the noises from pedestrian crossings. As I was attending a musical, I also gave them a test run in the theatre for a couple of songs. I was really surprised at the results as the songs were just as clear with the earplugs in and out, just different volume thresholds. Unlike other earplugs, the loop in the plug is quite cool, and looks like a trendy piercing in your ear, so it’s also great that you don’t feel self conscious for having awkward things sticking out of your ears (like those ugly yellow foamy ones they give you on airplanes).

Earplugs that Resemble Fine Jewelry  - Core77

However, while these filtered out a lot of background noise, they did amplify and alter some internal noises. My voice sounded really distant and far away like I was down a tunnel, but everyone around me sounded fine. While walking to the theatre I ate a Magnum ice cream, and as I ate, the earplugs increased the volume of the chocolate crunching in my mouth to unsettling levels, and I could hear my jaw clicking as the upper and lower jaws rubbed against each other. It really weirded me out so I would not recommend eating while wearing them! I also found they didn’t sit in my ear that well and kept popping out, but I do have smaller ears (or so I’m told) so it’s possible that my ears are just not built for earplugs! πŸ˜›

I would definitely recommend trying out these earplugs or similar models (there are some that are more geared specifically for noise sensitivities such as Calmer) if you need to turn the volume of your surroundings down a smidge- I will certainly be adding mine to my handbag for days when I find myself in an auditory nightmare.

Hope you enjoyed this post dear Earthlings!

Have a lovely weekend! πŸ™‚

Aoife

Autism and Diet

Greetings Earthlings! πŸ™‚

Leading on from my previous post about autism and food, this week I’d like to focus specifically on diet and autism. There are a lot of articles floating around about the benefits of certain diets to manage autistic symptoms, but the research is tenuous and in some cases non-existent.

Ketogenic Diet: This is a high-fat, low-carb, adequate-protein diet that drives the body to burn fats faster than carbohydrates and is recommended in the treatment of some forms of epilepsy in children. Research has shown that in some cases, a modified version of the ketogenic diet led to improvement in repetitive behaviours and social communication in autists. The diet is thought to work by increasing the number of ketones in the brain (an energy source produced from fat breakdown when insulin levels are too low to convert glucose to energy) to produce more energy and offset biological stress and dysfunction in mitochondria (the energy producing cells of the body) which contributes to autistic behaviours.

Sugar-Free/Additive- Free Diets: It’s common knowledge that sugar can alter a child’s behaviour, but even more so for autists (there was a limit put on my childhood coke consumption to curb my hyperactivity for example πŸ˜› ). It’s also thought that many autists are unable to tolerate a number of food additives such as aspartame, MSG and E-numbers. On a personal level, this one actually makes a lot of sense as I have had allergic reactions to certain E-numbers that have caused me to break out in hives in the past (not to mention how they used to make me super hyper!). While indeed lot’s of people reduce sugars and E-number’s to manage childhood behaviours, there’s little research on how sugars and additives impact autists.

Supplements: As it’s thought that autists may have impaired or abnormal biochemical and metabolic processes, vitamin supplementation could be used to improve this. While supplements can be beneficial, the research is inconclusive.

Gluten/Casein -Free Diet (GFCF): This is the most popular diet when it comes to autism treatment. Many people report improvements in autistic symptoms following the removal of gluten (a protein found in grains like wheat) and casein (a protein found in dairy) in their diet. It has been suggested that autists have a “leaky” gut that allows gluten and casein to leak into the bloodstream having an opioid effect on the brain and interfering with behaviours, but there is insufficient and inconclusive scientific evidence to support this. Many doctors have recently spoken out against these fad diets as they can be very bad for your health if youΒ unnecessarilyΒ remove these foodstuffs. Gluten free diets for example can increase your risk of cardiac problems through decreased intake of essential wholegrain.

Cholesterol: Cholesterol is involved in modulating the oxytocin receptor and the serotonin 1-A receptor- neurotransmitters that are dysregulated in the autistic brain. Cholesterol deficits could interfere with the functioning of these receptors and contribute to autistic symptoms. Research has shown that cholesterol supplementation can help improve behaviours. I will explore this in more detail in a later post.

Phenols and Salicylates Exclusion: Some studies indicate that autistic behaviours could stem from impairment of certain enzymes involved in the metabolism of phenols and salicylates- antioxidants that are found in fruits, vegetables and nuts. While these compounds are healthy, in high levels these seem to increase levels of serotonin in the brain interfering with autistic behaviours, but there is no evidence to suggest that total avoidance of these compounds is beneficial.

Probiotics and Enzymes: There is currently no research to prove the benefits for probiotics and enzymes in the management of autism. However, as I have discussed above and in previous posts, autists are deficient in certain enzymes and bacteria which can interfere with behaviours, so supplementation could be useful.

Yeast Free Diets: As discussed in my previous post about thrush and autism, candida overgrowth in the gut is thought to contribute to autistic behaviours. The theory posits that removal of yeasts from the diet can improve behaviours, but there is no medical basis for improvement.

Fish Oils and Fatty Acids: Imbalances in omega-3’s and essential fatty acids has been implicated in a number of neurodevelopmental disorders and behavioural issues, so it stands to reason that supplementation could improve autistic symptoms. However, there is much more autism specific research required to confirm these benefits.

Hope you enjoyed this post dear Earthlings!

Have a lovely weekend! πŸ™‚

Aoife

Autism and Periods

Greetings Earthlings! πŸ™‚

Continuing on from last week’s post about autism and puberty, this week I’d like to talk about autism and periods. I know, I’m about to alienate about half of my readers (sorry guys!), but this is a very important topic to cover for the often overlooked autistic female demographic.

Periods can be challenging for lot’s of women, however, for autists the experience can be somewhat of an ordeal. There can be a lot of overwhelming sensory issues where periods are concerned- new smells, sensations, and sensory issues related to the use of feminine hygiene products. Autists struggle greatly with change, and periods can be quite unpredictable over the course of our lives due to stress, hormonal changes, childbirth and eventually menopause (which I will discuss in a separate post at a later stage). As a result of this, female autists can develop a number of behavioural issues related to menstruation such as increased aggression and repetitive behaviours, not to mention changes in mood and mental health. Throw in a side of cramps and it’s no picnic!

In addition to the mental and behavioural toll, research has shown that periods are biologically much tougher on the autistic body. Studies have shown that women on the spectrum have higher levels of testosterone than their neurotypical peers (likely caused by dysfunction in the hypothalamus in the brain), leading to a number of menstrual related issues such as severe acne, hirsutism, irregular periods, polycystic ovary syndrome and dysmenorrhea. Premenstrual syndrome (PMS) is also highly prevalent in autistic women. Autists are also known to have high levels of inflammation in the body, which can further aggravate menstrual symptoms. Periods can even cause an increase in seizures in autists who also suffer from epilepsy due to hormonal fluctuations.

So what can you do to help a young autist through her period?

  • Educate them clearly about their changing bodies– autistic women can be particularly vulnerable, so they need to know exactly how their reproductive system works and the importance of consent. Use clear language that can not be misinterpreted or taken too literally. Understanding their body will also help them to better normalize menstruation so it is far less scary. As discussed in my last post, autistic women enter puberty much earlier than their peers, so it is essential that they are educated sooner rather than later about their changing bodies.
  • Check out autism friendly books about puberty/periods– there are a number of books available targeted at growing autists to help them navigate this challenging time. There are even books specifically about periods for young autistic women that may help.
  • Chat about different feminine hygiene options– as no two autists are the same, so no one option is better or worse when it comes to feminine hygiene products. There are far more options available these days to young women than just sanitary towels and tampons- they even make absorbent period underwear which could be very helpful for girls with sensory issues.
  • Setup a calendar/diary to track periods- the unpredictable nature of life and unexpected change can be particularly frustrating for autists. While periods can oftentimes be unpredictable and don’t always run on time, a calendar can nevertheless be very helpful to prepare an autist for upcoming periods and establish a routine. Knowing that an event is approaching can help to offset the scariness of it.
  • Break the taboo– reassure them that periods are a normal part of life and that there is nothing to be ashamed of. Periods may be overwhelming for autists, but they are by no means alone in their menstrual struggles.

Hope my female Earthlings at least enjoyed this week’s post! πŸ˜‰

Have a lovely weekend! πŸ™‚

Aoife

Autism and Puberty

Greetings Earthlings! πŸ™‚

This week I’d like to talk about a frequently sidelined aspect of life on the spectrum- puberty. So often people focus on childhood autism we forget that autistic children will grow up and go through puberty just like everyone else.

Puberty is a challenging time for everyone, but often even more so for those on the autistic spectrum. Research is limited on pubescent autists, but some studies have suggested that behaviours can worsen in autists during this time, in particular, aggressive behaviours. The smallest of changes to routine can trigger meltdown’s in an autist, so imagine how this response is amplified when your entire body decides to change. You couldn’t pay me to go through puberty again- the raging hormones were a minefield (although there are day’s during this pandemic where I might consider it to travel back to a time when I had freedom πŸ˜› )!

There can be a lot of sensory issues arising from the onset of puberty that can trigger further distress- body odours, sensory reactions to hygiene products, and my own personal hell, the sensory discomfort from wearing a bra. As I’ve discussed in previous posts, I went to war for years with my mother against wearing one as the sensation of it against my skin freaked me out and I was incredibly uncomfortable- but as I was un-diagnosed, this was passed off as just being awkward πŸ˜›

During puberty, socialising, an already challenging task for autists, becomes even more complicated. When you’re a child, everything is easier as kids haven’t developed a filter yet, but once those hormones kick in, conversations become more nuanced, boys and girls interact differently and your peers start to become aware of your mind blindness and excentricities. It can be quite a socially lonely time for autists.

So how can we navigate this difficult time in an autist’s life?

  • Talk openly about the facts of life– Talk them through the changes their body will experience in clear, concrete language. Don’t leave any room for confusion or misinterpretation so that they will be fully prepared and less thrown by the changes to come- there were certainly a few books that I read growing up where overly simplified language such as “a special hug” was used to describe sex that would only confuse and misinform the more literal autist
    • An important thing to know about puberty and autism is that it can have a much earlier onset in girls. Studies have shown that female autists tend to enter puberty and start menstruation on average 9 and a half months earlier than their peers, so girls need to be prepared and educated about the facts of life earlier than you might expect
  • Use visual tools– Sometimes words are not enough to create the correct mental picture for an autist. Illustrated books about puberty can be very useful here, and there are now many books specifically targeted at autists which can really help them to navigate this time
  • Discuss appropriate/inappropriate behaviours– don’t leave it at just the facts themselves. Autists will need to be taught about consent, sexual behaviours and inappropriate conversational topics just like anyone else. As female autists often mask their behaviours, it is especially important that they are taught about these things as they can be quite innocent and may be taken advantage of if not adequately prepared for adulthood
  • Sensory friendly clothing– For the young women out there, the market is now opening up to produce sensory friendly bras to help combat the issues of traditional brassieres. Bralette’s and lightweight sports bras may also be helpful alternatives
  • Normalise the experience– Reassure them that everyone goes through this, that it’s a normal part of growing up. Don’t attribute the entire experience to their autism
  • Be positive– Don’t assume things will be harder for your child as everyone is different. A positive attitude can go a long way to easing your child into the murky depths ahead

Hope you enjoyed this post dear Earthlings!

Have a lovely Easter weekend! πŸ™‚

Aoife

Autism and MDMA/Ecstasy

Greetings Earthlings! πŸ™‚

Leading on from my previous post about autism and CBD, this week I’d like to explore another drug that is being researched in the treatment of autism- MDMA, the active ingredient in Ecstasy.

Yes, you’ve heard me correctly, the psychoactive drug MDMA is indeed being explored as a treatment option for autists!

So how can a recreational party drug help people with autism?

First synthesized for use in psychotherapy by Merck in the 1910’s, MDMA is the active ingredient in the street drug ecstasy and is thought to improve anxiety, sensory perception and sociability in those who take it. Many autists who have taken the drug recreationally have reported feeling more at ease in their body and increased empathy.

So how does the drug work?

MDMA increases release of neurotransmitters such as serotonin, noradrenaline and dopamine in the brain- neurotransmitters that are dysregulated in the autistic brain. In addition, MDMA is also thought to boost the hormones oxytocin and vasopressin the body which are also implicated in autistic symptoms. These hormones and neurotransmitters are heavily involved in anxiety and social behaviours, so targeting these makes pharmacological sense for autists.

That’s fine in theory, but does it work?

A pilot study (a small scale preliminary study) was conducted in 2016 to compare the impact of MDMA assisted psychotherapy on anxiety levels in autists versus psychotherapy alone. The study found that social anxiety significantly reduced in the group that received MDMA, a positive change that occurred rapidly and show signs of long term duration. This was however only a small pilot study and studies are ongoing with larger cohorts.

The drug does not currently have any legally approved medical uses, but if these clinical trials prove successful, this may change in the coming years.

In case you’re getting worried, the street drug itself is not being explored- ecstasy does not contain enough MDMA for therapeutic benefit, and it is often combined with other substances such as methamphetamine which make long-term use highly addictive and damaging to overall health. However, long-term use of MDMA does hold similar safety caveats such as sleep disturbances, depression, heart disease, decreased cognitive functioning and concentration so further research is required.

Nearly half of people who regularly consume ecstasy have tested their drugs

Hope you enjoyed this post dear Earthlings! πŸ˜€

Have a lovely weekend!

Aoife

Autism and Medical Marijuana/CBD

Greetings Earthlings! πŸ™‚

With increased public interest in medical marijuana and CBD oil in recent years, this week I’d like to a look at the controversial use of cannabinoids in the treatment of autism.

So what has pot got to do with autism?

Many recent studies have explored the implications of Cannabidiol or CBD (one of the non-intoxicating chemical compounds found in the cannabis plant) in the treatment of epilepsy, which can be co-morbid in some cases of autism. Through these studies it emerged that there were signs of improvement in autistic symptoms while the patients were taking CBD, suggesting that it may also be an effective treatment option in non-epileptic autists. Symptoms that showed improvement include ADHD, cognitive and motor deficits, communication and sleep disorders.

But how does it work?

The brain possesses proteins known as cannabinoid receptors (CB receptors) to which the ingredients in cannabis bind to and activate, resulting in the psychoactive effects we have come to associate with marijuana. These receptors are also found in neurons throughout the body. Tetrahydrocannabinol (THC), the main psychoactive ingredient in cannabis, binds to and activates these receptors, whereas the CBD component of the plant blocks them. Blocking the CB1 receptor appears to reduce the incidence of seizures and improves learning and sociability in animal models. Research suggests that CBD particularly alters brain function in the regions of the brain commonly associated with autism, potentially explaining why behaviours show signs of improvement. Studies have also indicated that THC may have an impact on reducing outbursts in autists, but unlike CBD, the intoxicating side effects are problematic.

CBD oil revolution: Introducing what it is and why the hype?

It sounds promising, but is it safe?

The jury is still out on whether or not it is safe to use. It is rarely lethal in large doses, but regular usage may cause long term effects. Research suggests that there may be a risk of liver damage with long term use, however there are limited long term studies available for the impact that CBD could have on the brain. Recreational use of Marijuana during teenage years has been shown to have long term impacts on cognitive functioning, however, given that medical prescriptions use much lower doses, it’s unclear if medicinal usage would have the same impact. As it is not widely available due to legal restrictions on medical marijuana usage in many countries, it is unlikely that there will be any further long term data any time soon.

All in all, the use of cannabinoids for autism management shows some potential, but are you willing to roll the dice on you or your child’s safety?

Hope you enjoyed this post dear Earthlings! πŸ™‚

Have a lovely weekend!

Aoife

Autism and Christmas

Greetings Earthlings! πŸ™‚

As we face into the holiday season, this week I’d like to talk about Christmas and autism.

It’s the most wonderful time of the year, yet as with most aspects of life on the spectrum, it can sometimes be overwhelming for autists. Flashing lights, busy and noisy crowds, interrupted routines and unexpected visitors can really throw an autist, even amidst the high jinks and excitement for Santa.

Here are some tips for an autism friendly Christmas:

Go shopping at off peak times– I know this can be hard to avoid over Christmas with shopping crowds (although perhaps this year human traffic will be lighter), but try to get out for Christmas shopping midweek or early in the morning to avoid getting overwhelmed by the crowds.

Wear sunglasses if Christmas lights are too bright– Ah the old reliable. I know I advise this as a solution to most light related sensory issues, but I do swear by my sunglasses! I rarely leave my house without them- I’ve even been known to wear them in clubs! Thankfully Christmas lights have never been an issue for me, but if you don’t want to miss out on any light displays, or official turning on of the lights ceremonies, just slip a pair on to take the edge off πŸ™‚

Use a stocking/sack instead of gift wrapping presents– This can help reduce sensory overload from all the bright colours, noisy paper and textural sensitivities. I always had a Santa sack growing up and it was great fun to dig around in it and focus on one present at a time as I pulled them out πŸ™‚

Autism friendly Santa Experiences- If your child tends to get overwhelmed with the crowds at Santa’s grotto, many places offer autism friendly experiences where the lights are turned down, there’s less noise, and the numbers are limited for a more calming experience. Granted, these may be harder to come across than normal this year, but something to look forward to in the future πŸ™‚ There are also a lot of autism friendly pantomimes and shows to watch out for.

Decorate the house gradually rather than all at once– The sudden change in decor might be overwhelming for an autist, so putting up the decorations bit by bit will allow them to get used to the change gradually. Equally, the decorations could also be removed slowly to avoid similar incidences.

Use a static light setting on the Christmas tree/outdoor lights- If flashing lights are a problem, try buying a static set or set the flash pattern to static. If colour sensitivities are a problem, try to stick with plain white bulbs, or if yellow is a trigger colour (as is the case with many male autists), calming blue might be a nice alternative.

Pre-arrange Christmas visits if possible– To reduce the stress of unexpected visitors, try to plan out times/days when your family or friends might visit. This way there is time to get used to the idea and your child will not be thrown by a sudden arrival/routine disruption.

Maintain routines where possible– To avoid added stress, try to stick to regular bedtimes, bath times and mealtimes.

Be cautious of holiday scents- Be careful if trying out Christmas scented candles, air fresheners or when buying a real Christmas tree in case these scents are a sensory trigger. A couple of Christmas’s ago, one seasonal Yankee candle made me throw up when I smelled it, so beware (it could also have been a side effect from the strong antibiotics I was on at the time, but I’ve avoided it ever since to be sureπŸ˜‚)!

Ho-ho-ho-pe you enjoyed this post dear Earthlings! πŸ™‚

Have a lovely weekend,

Aoife

Autism and Halloween

Greetings Earthlings! πŸ™‚

In light of the week that’s in it, I’m going to discuss how Halloween festivities can impact those on the autistic spectrum πŸ™‚

Halloween is designed to be a scary time all around, but if you’re on the spectrum, Halloween can be even more unsettling than you might think. From a sensory perspective, Halloween can be difficult to navigate with the noise from explosive pyrotechnics, the bright lights, open flames, itchy costumes and the unpredictability with potential jump scares and strangers in costume waiting around every corner. On another level, masked faces can also pose a problem given how autists struggle on a normal basis to read social cues and facial expressions.

But just because Halloween can be challenging for an autist, doesn’t mean that it still can’t be fun. Here are some of my top tips for navigating the scary season:

Plan your costume ahead of time– some costumes are made from quite cheap materials which can be quite irritating to an autists sensitive skin, so it’s always best to get your costume ready in advance/get them to wear it round the house to make sure that they will be comfortable in their outfit. Try incorporating specialist interests into the costume as this will help your child feel more at ease as they navigate Halloween festivities. Pro tip– have a backup option with something comfy that you know your child will be happy to wear in case something goes wrong.

Do makeup trial runs– Halloween makeup can be quite irritating and sometimes smelly, so it’s a good idea to do a trial run, particularly if you’re planning anything with liquid latex (you would not believe the smell- I covered half my face in the stuff for a Phantom of the Opera look one year and the smell was so bad it burned my eyes all night!)

Discuss costume options with friends in advance: Children with autism may be scared or may not recognize a friend in makeup/wearing a mask. If they are heading out with a group of friends, have a chat ahead of time so that they will be prepared for the choice of costume and won’t find the change so unsettling.

Get an autism awareness card– for nonverbal autists that are unable to say “Trick or Treat”, you can get some fun Halloween cards that will explain this to show when you knock on a door, which can help make the night a little easier. Check out this this one below for example:

Halloween Autism Awareness Cards - Autism Dog Services

Use sensory aids such as earplugs and sunglasses: These can help to take the edge off the loud noises and bright lights. If you’re feeling self conscious, why not try and incorporate them into your Halloween costume- Halloween is the one night of the year where you can look like an oddball and no one can judge you for it πŸ˜‰

Head out early– if your child is uncomfortable in the dark, or you want to reduce the chances of them getting overwhelmed by the amount of people out and about, take your child out for early Trick or Treating. Alternatively, you could organize some indoor activities or a mini Halloween party with familiar friends to put your child at ease.

Halloween may be scary for an autist, but it doesn’t mean that you still can’t have fun πŸ™‚

Hope you enjoyed this post dear Earthlings!

Have a wonderful Halloween! πŸ™‚

Aoife

Autism and Emergency Services

Greetings Earthlings! πŸ™‚

Following the recent violent shooting of an unarmed, 13 year old autist by police in America during a meltdown (thankfully he is recovering in hospital), this week I’d like to discuss the importance of adequately educating our emergency services and first responders about autism.

emergency services

In this situation, Linden Cameron’s mother called 911 for assistance as Linden was experiencing a bad meltdown due to separation anxiety, and needed help to de-escalate the situation with the minimal amount of force. Shortly after arrival however, the police shot Linden multiple times instead of using lesser means of force (they claimed that he was armed, but this was not the case).

While the issue of police brutality in the States is an entirely separate debate, this incident really highlights the need to properly educate the emergency services about autistic behaviours.

Autists can’t always regulate their behaviours and emotions, especially when they are in distress. Loud noises and flashing lights from emergency vehicles can further impact this stress from a sensory perspective and make situations worse. Autists are also quite sensitive to touch, and as such, physical interactions could cause an autist to attack a responder.Β 

bitmoji-35911512

Here are some tips to keep in mind when interacting with a distressed autist/suspected autist:

Patience- always be patient when dealing with an autist and give them some space. Try to void making quick movements or loud noises that may distress them further. They may have difficulty communicating with you, so give them plenty of time to process and respond.

Try to use clear, concise language– avoid confusing sentences or turns of phrase that they might interpret literally (e.g it’s raining cats and dogs). They may already be struggling to process their situation, and too many words could be even more overwhelming.

Avoid touching an autist– unless absolutely necessary. Touch sensitivities could escalate the situation and an autist may react violently in defense.

Watch out for potential triggers that may escalate the situation– be conscious of potential sources of distress such as sensory sensitivities which could further agitate an autist.Β 

fire

Listen- take advice from caregivers (if present) or the autist themselves (as some autists may be able to communicate during a meltdown on some level). They will have a better understanding of their individual needs than you do.Β 

At the end of the day however, there is no substitute for a proper training program for emergency responders/law enforcement. Many autism charities run these programs such as AsIAm here in Ireland.

You can read more advice for the emergency services here:

http://asiam.ie/wp-content/uploads/2015/04/emergency_servicesFinal.pdfΒ 

Hope you found this post helpful dear Earthlings! πŸ™‚

Enjoy the weekend!

Aoife

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