Category: Autism Management

Autism Friendly Parking

Greetings Earthlings! 🙂

Following on from my post about autism and driving, this week I’d like to talk about autism friendly parking facilities!

So I was recently out looking for parking in my local shopping centre and was surprised to see a sign for ‘Autism Friendly Parking’ with designated spaces for autistic drivers/autistic passengers. Parking is perhaps, in my experience, one of the most stressful aspects of driving on the spectrum. The stress of trying to find a space, efforts to get into available spaces, the panic from holding up traffic when it takes you an age to get into an awkward spot- I would love to see what my blood pressure readings are like after it sometime!🙈 In all my years of driving I have never come across an autism friendly parking system, so naturally I had to investigate.

Many businesses have now started providing designated autism friendly parking. These spaces are located closer to the door of business’s (just like disabled sparking spots), to make life easier for autists, especially for those with mobility issues.

So in Ireland, you can apply to get an autism friendly parking permit. With proof of diagnosis and a small fee, you will be sent a permit to put in your car window which will allow you to avail of autism friendly parking spaces. These permits prevent abuse of the system and allow you to park in these spaces without fear of clamping. The permit also has the dual function of alerting emergency services that there may be an autistic driver/passenger in the car in the event of an accident, just like autism ID cards. So far this system is mainly provided by private businesses, but autism friendly towns like Dungarvan have implemented these parking schemes throughout the area. In recent weeks, Cork councilors are seeking to roll out a similar model to Dungarvan across the county, so this scheme could soon be a lot more readily available.

Similar schemes exist in other countries like the United States and the UK. In the UK for example, hidden disabilities like autism are now eligible for the blue badge scheme- the UK’s disability parking scheme, which enables autists to park in designated disabled parking spaces.

So if you find parking as stressful as I do, it’s worth investigating if there is an autism friendly parking scheme available in your area 🙂

Hope you enjoyed this post dear Earthlings!

Have a lovely weekend!

Aoife

0

Autism ID Cards

Greetings Earthlings! 🙂

As it’s autism awareness month, this week I’d like to discuss the topic of autism ID cards for individuals on the spectrum.

So what exactly are autism ID cards and what are the benefits?

Many autism organizations and charities offer autists the opportunity to apply for an ID card stating their autism status which they can carry on their person. This card can be provided to people to alert them of your diagnosis if you are struggling to communicate. For example, you can show your card in a restaurant to alert staff that you may need a little extra time, assistance or that you might have awkward dietary requirements (especially as some places can be weird about specific requests and substitutions). This can help reduce stress for autists knowing they have the card to help them communicate their needs better in social situations.

It can also be useful to have in your wallet for emergency services in the event of an accident. Having a card you can quickly produce in a crisis can rapidly help to de-escalate situations with emergency services where there is often confusion and miscommunication. My friends have often joked how they would love to have my literal autism card so that they could throw it down on the table in a social situation to get out of a bad conversation🤣

For a small fee, autists can fill out a form and provide a passport photo and proof of their autism diagnosis to the organization they are applying to to secure their card. Other organisations offer a simpler version of ID cards which inform the reader that the person showing them the card is autistic and provides emergency contact details.

In addition to their usefulness for emergency situations, depending on the ID card provider, some cards entitle you to discounts with corporate partners and free carer admittance. For example. you can see some of the discount benefits with ASD Ireland’s autism ID card here.

There is also another type of autism ID card called a JAM (just a minute) card. These free cards can be ordered for people with invisible disabilities like autism which can be presented in difficult social situations like in shops or on public transport so that people will be more understanding and give you extra time in an easy and private way. They also offer a JAM app if you do not want to use the card.

All in all, autism ID cards can be a very useful tool to have in your back pocket.

Hope you enjoyed this post dear Earthlings! 🙂

Have a lovely weekend!

Aoife

1

Autism and AI

Greetings Earthlings,

This week I’d like to discuss a bit of a hot button topic at the moment- Artificial intelligence (AI).

Once upon a time, AI used to mean that atrocious Steven Spielberg film, but now AI is creeping into our every day lives. Chat-bots, deepfakes, AI research models, advanced searches and content recommendations- we can’t escape it. The applications are seemingly limitless, with great potential for people with autism.

But first things first, what exactly is AI?

AI is the technology that enables computers and other digital devices to do the things that humans do like read, write, learn, talk, analyze etc. While not human, the combination of human-like abilities and machine thinking can make it a powerful tool to be reckoned with.

So how can we leverage AI when it comes to autism?

Now here’s where things get cool. Robots are being used to help manage autism! Researchers are training robots how to interact with children with autism so that autists can get practice identifying facial expressions and social cues and help them to learn how to respond appropriately. Robots are the ideal companions as they have limitless patience and allow autists to practice their skills in a safe, non-judgmental environment. There are also a number of new AI apps that similarly work to help autists to practice their social skills, with AI technology being used to help move and learn what works best for the autist and help suggest the right kind of calming exercises depending on their mood.

In addition, AI models can be used to study the MRI’s of autists to help us better understand the condition, particularly how neurological changes and autistic traits vary between neurodivergents.

Most recently new AI systems has been developed that can quickly and accurately diagnose autism- one system by measuring how water travels in the brain by analyzing MRI images; and another that detects autism by measuring responses to a flash of light in the eye. This could revolutionize how we diagnose autism, allowing autists to get access to services sooner for better overall outcomes. Other cool AI apps allow parents to upload videos of their child’s behaviours to be analyzed by clinicians for remote diagnosis using AI to help categorize and assess them.

On the other hand, AI is a force that we must be careful with. It has great potential for use, but we need to be careful where we tow the line. This is especially true of Elon Musk’s Neuralink- a computer chip that can be implanted in the human brain, allowing us to control mobile devices through the power of thought. This week saw the first reported successful (though the evidence remains to be seen) implant where the patient has recovered well and is able to control a mouse on a screen with their brain. What was once the stuff of science fiction is rapidly becoming a reality. Aside from these tech applications, Musk claimed in 2019 that Neuralink has untapped medical potential to help “solve” neurological diseases like Parkinson’s, Alzheimer’s, Schizophrenia and…. autism.

Now… this was naturally met with a lot of backlash from autism charities- especially given that Musk has openly discussed how his autism has contributed to his success. Autism is a different way of thinking, it is not something that the majority of autists would like to “solve”. New approaches to help autists navigate life in a neurotypical world yes, but most would not wish to get rid of their autism if given the choice. Would modifying autistic traits through AI really help autists, or could it make things worse by taking away our unique way of thinking?

It’s a very fine line we tread, so we must proceed optimistically with caution when applying AI to autism.

Hope you enjoyed (or were horrified by) this post dear Earthlings!

Have a lovely weekend!

Aoife

0

Learning and Autism

Greetings Earthlings! 😀

Leading on from my previous posts about autism and memory, IQ, and studying, this week I’d like to talk about the topic of autism and academic learning.

First things first, autism is NOT a learning disability. It’s a neurodevelopmental disorder which impacts how our brain develops and the rate at which it develops having an impact on motor learning, social learning, language learning etc. That being said, ASD‘s can be co-morbid with learning disabilities such as dyslexia, ADHD and dysgraphia.

Everyone’s academic learning journey is unique, especially among autists. Autists can have problems concentrating in classrooms due to sensory sensitivities, issues with social skills can make it harder to interpret teaching cues, and difficulties with executive functioning and information processing can make it hard to process new information.

I’ve always had a passion for academic learning, but even I’ve had my struggles. I struggled hugely with maths in my teenage years. Once letters came into equations I regularly had meltdowns and got overwhelmed when I couldn’t immediately make sense of the topic. One of my most enduring memories of school is throwing my maths book at the wall mid meltdown while doing my homework 🙈

Buuuuuttttt I would usually be able to make sense of the exercises once the meltdown had passed. My teachers unfortunately didn’t understand this (the joys of being undiagnosed) which often made my learning journey challenging. Had I been given the opportunity to work slowly 1:1 with maths, I would have picked topics up a lot quicker.

Everyone’s learning style is different, especially when considering the challenges of autism. There are several different learning styles:

  • Visual learning– where learners take in information better visually through pictures, graphs and mind maps to help make connections
  • Auditory learning– where learners listen to information for optimal processing
  • Verbal learning– using verbal approaches like reading out loud and mnemonic devices
  • Reading/writing learning– classical learning approach by reading and writing
  • Kinesthetic learning– physical learning by doing tasks or needing to move while learning
  • Logical learning– where logic and pattern recognition skills are used to connect concepts
  • Social/Interpersonal learning– where you learn best by observing others, and talking and communicating with a social group
  • Solitary/Intrapersonal learning– where you just need to be by yourself to learn on your own with no distractions

Sometimes a mix of learning styles can be the best approach- I have employed all of these styles at different points in my life, but I would largely fall into the visual and kinesthetic learner categories. Seeing things drawn out and or doing tasks is often the best way for me to process information. For example, I tend to take notes using coloured pens as the visual stimulation from the colours makes it easier to process and retain the information.

There are so many different ways to learn, it’s just a matter of sitting down and figuring out what kind of learning style works for you, or working out a plan to limit classroom issues like sensory challenges that can derail your learning process. Lot’s of apps and supports are available for autists these days that can help make learning a lot easier.

The key thing is to not get discouraged. No two autists are the same and it can take a while to find what learning style works for you. When I took maths and biostatistics in college, the lectures were overwhelming, but once I sat down to a tutorial session where we worked hands on with the sums in an intimate environment, I flew through the work and got excellent marks in my exams. It takes time, but once you find the right approach, learning can be a breeze 😊

Hope you enjoyed this post dear Earthlings! 🙂

Have a lovely weekend!

Aoife

0

Autism and Relaxed Performances

Greetings Earthlings! 🙂

Happy new year! Hope you all had an enjoyable Christmas holiday! 🙂

This week I’d like to talk about relaxed performances in the theatre and how they can be beneficial to autists.

So what exactly is a relaxed performance?

A relaxed performance is pretty self explanatory- it is a performance in the theatre where the normal rules and etiquette are “relaxed” and the ambiance is adjusted to be more sensory friendly for the audience. Oftentimes the theatre can overwhelm the senses with loud music, strobe lighting and sudden noises (I jumped so high when a prop gun went off during Phantom of the Opera!), which can make it problematic for autists.

But how is it tailored?

Different theatres will offer different experiences, but in general, a relaxed performance focuses on sensory elements such as removing strobe lighting, turning down the stage volume, and brighter house lights. The normal rules of the theatre are relaxed, meaning that the doors are not locked, you can get up and move around if you are getting overwhelmed, and many theatres even provide a designated, quiet chill out space.

As an avid lover of musical theatre, I was naturally eager to attend one, and was delighted to see that the Watergate theatre in nearby Kilkenny was putting on a relaxed performance for their pantomime performance of Aladdin. The theatre had a very detailed plan on their website for the performance to make the show inclusive for all:

  • The auditorium doors were opened 45 minutes ahead of the performance (way earlier than a standard show) to allow the audience extra time to come in and settle down and familiarize themselves with the room
  • Strobe lighting and loud/sudden sound effects were removed, and the overall lighting and sound was adjusted for a more comfortable sensory experience
  • The house lights remained on and low over the audience, who were free to move around as needed
  • Sensory tools and service dogs were also welcome
  • They even provided a detailed preparation journey document outlining the theatre facilities, with multiple pictures to help orient visitors with the theatre to fully prepare an autist for their theatrical experience

So what did I make of it?

For me personally as a high functioning, seasoned theatre goer, it was a bit of a mixed bag. In theory, the concept is amazing, but in practice it’s a lot more difficult. The lighting and sound adjustments were great, the experience was far more relaxed without the likelihood of jumping out of my seat unexpectedly, buuuuutttt these adjustments created another sensory quandary.

So the theatre has it’s rules and etiquette for a reason- to allow everyone to hear the performance un-distracted. But, without these rules, the audience is naturally much louder than a regular performance… In a room full of uninhibited, talkative/echolalic, snacking neurodivergents with lowered stage sounds, the performance becomes difficult to hear. I often missed jokes and lines due to the sound adjustments- and this was with me sitting in the front row beside a speaker. This created a greater sensory issue for me as I was surrounded by distracting noises everywhere, with constant chatter and rustling of snacks. While this was primarily irritating for me, a more sensitive autist could have had a meltdown in this scenario. As the stage sounds were reduced, normal sound reducing earpieces would not have improved the situation.

Granted, in my experience, audiences that have large numbers of children in attendance are much louder, but the stage volumes usually counteract the increased noise threshold. As such if sound is your primary sensory sensitivity, you would be better off attending a regular performance with ear defenders or noise reducing earplugs (I highly recommend these- I tested them out at Rocky Horror Picture Show and I lost no sound quality with the volume reduction).

All in all, while the concept of a relaxed performance is good in theory, it may not be suitable for all autists.

Hope you enjoyed this post dear Earthlings! 😀

Have a lovely weekend!

Aoife

0

Autism and Sensory Rooms

Greetings Earthlings! 🙂

Continuing on from my last post, this week I’d like to discuss sensory rooms and how they can benefit autists.

As I mentioned in my last post, while trying out the sensory pod on the Carlow campus of South East Technological University (SETU), I also had the pleasure of trying out the campus sensory room for students on the spectrum.

But first things first, what exactly is a sensory room and how can it help autists?

Sensory rooms are designated safe, calming spaces where an autist can retreat when overstimulated. Here they can relax and stim in a room designed to stimulate the senses and regulate emotions. As with sensory pods, sensory rooms are all different, but they may have dimmed LED lighting, water features, light projections, soft furnishings, swings, textured pads, sensory toys, punch bags etc. The concept is surprisingly not a new one, dating back to the 1970’s in the Netherlands where Dutch psychologists wanted to awaken sensory perception in individuals with disabilities through sensory stimulation.

Fun fact– they were originally called ‘snoezelen’, a portmanteau of the dutch word to sniff (snuffelen) and to snooze (doezelen).

Here’s a video discussing how sensory rooms can help neurodivergents in their education:

So how did I find the sensory room?

I booked in for half an hour into the sensory room and found that like the sensory pod, it was incredibly soothing. It was so nice to be able to take some time out on the beanbag in this soundproofed room away from the hustle and bustle of the busy student centre. I wasn’t a big fan of the whirring sound from the water pipe in the room, however, one of the great things about the sensory room was that I had the power to customize my experience. I was handed 2 remotes when I walked in which allowed me to control the lighting, water features, projections etc. so I could tailor the room to my needs- an essential feature given the level of diversity in sensory needs. Like the pod, this facility would have been great to have during my third level education to take time out when assignments and exams were frying my brain.

You can check out a quick Tik Tok of the sensory room I visited here:

@setusucw

Sensory Room on campus for our students. #ForYouPage #ITCSU #ItCarlow #OnCampus #StudentReturn #Carlow

♬ original sound – Blake Healey

While facilities like this are great in an educational setting, you can also create your own sensory room at home to allow yourself or your kids some needed respite during an overload. There is no one size fits all model for sensory rooms. Different autists have different sensory needs, so being able to create your own room with sensory stimuli that specifically calm you is a game changer. Here’s a handy article that gives some tips on how to build your own room https://www.irishtimes.com/life-style/2022/10/15/a-quiet-place-how-to-build-a-sensory-room/.

Hope you enjoyed this post dear Earthlings!

Have a lovely weekend! 🙂

Aoife

1

Autism and Sensory Pods

Greetings Earthlings! 🙂

This week I’d like to talk about sensory pods and how they can be beneficial for autists!

So first things first, what is a sensory pod?

A sensory pod is an enclosed space designed to be calming and relaxing for autists. Each pod can be different but they are generally soundproofed to reduce outside noise, dimly lit with LED lighting (which has been scientifically linked to behavioural improvements) and may have cushions or a comfortable mat to sit on. Pods may also allow you to adjust the temperature, play white noise, project visuals on the wall, and you can further add in sensory toys, weighted blankets, vests, plushies etc. As autists can struggle with sensory processing and overload, sensory pods are an ideal way to help manage an overwhelming situation. You can see a video about sensory pods here:

I recently booked into the sensory pod on the Carlow campus of South East Technological University (SETU) to give it a try. The university has two sensory pods in the library that neurodivergent students can avail of for time out, or even just a quiet place to study.

So what was my experience like?

I can highly recommend the sensory pod. While it was a bit awkward climbing into it as a fully grown adult in her thirties, once I was lying down in the pod it was so soothing. The room was kitted out with an interactive screen on the wall where you could avail of streaming services like Netflix to take some chill time out from your studies. There was a mirror on the wall with a panel of dials to adjust the lighting to your liking- blue, green, red, white and even no lights. The college even provided a USB mouse and keyboard that students could avail of if using the pod to study. Lying there on the squishy mat, I could easily have fallen asleep with the sounds of the library dulled around me. You would forget that you were in the middle of a busy college campus on a Friday evening!

It’s great to see a sensory facility like this for neurodivergents in an academic institution, I would love to have had something like this to study in back when I was in university (then again, I was only diagnosed as I was leaving third level education 🙃).

I also had the opportunity to try out the sensory room on campus which I will talk about in my next post.

Hope you enjoyed this post dear Earthlings!

Have a lovely weekend! 🙂

Aoife

2

Autism and Auditory Processing Disorder (APD)

Greetings Earthlings! 🙂

Leading on from my previous post about autism and sound sensitivity, this week I’d like to take a look at auditory processing disorder or APD.

So what exactly is APD?

APD, also known as central auditory processing disorder (CAPD), is a condition where a person doesn’t fully process the sounds they are hearing. There is generally nothing wrong with your hearing ability, but a neurological issue in interpreting the meaning of that sound. People with APD often struggle to understand spoken instructions, sentences where they’ve missed words, thick accents, words that sound similar, and understanding conversations that place in noisy environments. For example, if someone said the word ‘dog’, you would hear the word perfectly, but might struggle to retrieve the meaning of the word.

So how is APD linked to autism?

APD’s are very common in autists, but the link is unclear. One of the leading theories however is that the hippocampus is immature and underdeveloped in the autistic brain. This part of the brain is responsible for processing auditory and other sensory information, so if the region is not properly developed, autists will struggle to process sensory input like sound. Other research suggests that autists are hearing and processing sound properly, however, they are processing this information at a slower level than their peers due to delayed development of the auditory cortex in the brain.

An interesting behavioural study proposed that autists are actually processing sounds correctly, however, they are choosing to not pay attention to certain sounds or speech due to variations in their attention span.

Some researchers have also linked difficulties in auditory processing to impairment and delays in language development in autism as the ability to process sound efficiently is critical to language formation.

To help autists struggling with APD to better process sound, it’s recommended that you:

  • Try to talk face to face
  • Avoid covering your face when speaking
  • Repeat or rephrase words if they are struggling
  • Reduce background noise in the environment
  • Avoid long and complicated sentences
  • Try not to speak too fast or too slow
  • Use pictures and text for younger autists

Hope you enjoyed this post dear Earthlings!

Have a lovely weekend! 🙂

Aoife

0

Autism and Sensory Socks

Greetings Earthlings! 🙂

This week I’d like to discuss a rather unusual item that can be used for management of autism- the sensory sock! Here’s a picture of what it looks like:

So what exactly is it?

The sensory sock (also known as the body sock) is a stretchy Lycra suit of sorts that is designed to provide a unique, fun and intense sensory experience for autists. Once inside, the suit provides tactile and deep pressure stimulation to the wearer while increasing spatial awareness and improving balance. These sensory inputs can be quite calming for autists which can help us to regulate sensory issues. This can also be used for neurotypical kids to explore their environment and encourage creative movement.

But how exactly does it work?

The stretchy Lycra provides resistance to the wearer as they move around applying deep pressure to the joints which, as previously explained in my post about weighted blankets, causes the release of calming neurotransmitters in the brain, reducing the levels of excitatory neurotransmitters which are elevated in the autistic brain. The enclosed space can help the wearer feel calm and safe, allowing them to regulate their emotions- many autists find enclosed spaces to be particularly therapeutic, so having a portable space like this can be really handy!

I came across the video below of someone trying out a sensory sock online, so naturally I had to get one to try it out!

So how did I get on?

Well…it was…an experience! 😛 While I won’t terrify you with the images of me waddling around my kitchen like a deformed bright green T-Rex, the sock was certainly worth the laugh! My first impressions however, were not the most positive from a sensory perspective. I didn’t really like the smell or the feeling of my arms being so constricted, and found the velcro opening at the front quite distracting as it was reluctant to stay shut (sensory socks don’t seem to be designed for adult women of a certain chest size 🙈). I did try the sock again a week later, but this time I chose to lie down while wearing it which proved to be a much more positive experience. This time I felt the relaxing deep pressure around my limbs that was reminiscent of my weighted blanket. Despite my best efforts, I wasn’t able to bring myself to spend more than a couple of seconds with my head inside the suit. It either wouldn’t stay closed or the smell and claustrophobia got to me so I wasn’t really able to assess that feature.

All in all, I can certainly see the benefits this sensory sock might have for younger autists, but personally I think I’ll stick with my weighted blanket for now.

Hope you enjoyed this post dear Earthlings!

Have a lovely weekend! 🙂

Aoife

1

Autism and Dyscalculia

Greetings Earthlings! 🙂

Leading on from my previous post on dyslexia, this week I’d like to discuss another lesser known learning disability that can be co-morbid with autism- dyscalculia.

So what exactly is dyscalculia?

Dyscalculia is a specific type of learning disability characterized by a difficulty with numbers and arithmetic i.e, understanding how to do maths and manipulate numbers (that’s right- not all autists are good with numbers Hollywood 😛 ) . There are varying levels of dyscalculia but signs may include difficulties with numbers and mathematical symbols, pattern recognition, sequence issues, handling money, managing and telling time, visual processing, and memory issues.

So what causes dyscalculia?

Again as with most aspects of the spectrum, the exact mechanism is unclear. Thought to be related to ADHD, dyslexia and dyspraxia, dyscalculia seems to result from dysfunction in the intraparietal sulcus (an area thought to be involved in processing symbolic and numerical information) and the frontal lobe of the brain. The frontal lobe in particular contains most of the dopamine neurons of the brain which are involved in attention, planning and short term memory- all of which are important functions in comprehending numbers. As discussed in many previous posts, dopamine levels are dysregulated in the autistic brain which could explain why autists may be more prone to these types of learning disabilities.

Is there anything that can be done to help manage it?

As with most disabilities, early detection and intervention are key to helping those with dyscalculia cope with their struggles. There have been very few targeted programs specific to dyscalculia but in recent years a number of digital programs have been created to help improve basic numerical abilities. The gold standard one to one tutoring is also a useful option to help improve these skills through repetition and targeting areas of particular difficulty. Interestingly, there was a study conducted in 2014 where electrical stimulation of the left side of the posterior parietal lobe of the brain (an area involved in spatial reasoning and planned movements) improved numerical abilities in patients. As many as 43% of autists may have abnormalities in their parietal lobe, so further research into this region could provide us with new ways to manage dyscalculia in the future.

Hope you enjoyed this post dear Earthlings!

Have a lovely weekend! 🙂

Aoife

1

Blog at WordPress.com.

Up ↑