Autistic Burnout

Greetings Earthlings! ๐Ÿ™‚

Leading on from previous posts about shutdowns and meltdowns, today I’d like to discuss the “autistic burnout”.

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So what exactly is that when it’s at home?

Autistic burnout (also known as “autistic regression”) happens when an autist has maxed out their capacity to maskย and to socially cope following a period of prolonged stress (such as major change, attempting to be “normal”, poor self care etc.). This triggers a shutdown like state where the autist can become “more autistic” and is often unable to utilize the skills they have learned to cope- the mind is so exhausted that the autist no longer has to energy to try to overcome their difficulties.

Some people have even reported that these skills did not come back at all after recovering from a severe burnout- hence the name autistic regression.

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From a scientific perspective, the autistic burnout has not been explored as of yet on a medical level, however, there is much discussion of burnout within the autistic community.

Thankfully I have not really experienced such a full on burnout, but I have circled the drain a few times. When you’re particularly under pressure from doing too many things at once, sleep deprived, dehydrated, hungry etc., that’s when the mask starts to slip. In times like these I have felt much more symptomatic than normal, causing me to snap or say inappropriate things and act more eccentrically than I ordinarily would. It’s as if a part of your brain switches off to keep from overloading- and that part seems to be the one that controls our cloaking device, like the faulty invisibility booster on Arthur Weasleys flying Ford Anglia!

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So how can burnouts be avoided?

Much in the same way as meltdowns and shutdowns ๐Ÿ™‚

As I have discussed in a number of previous posts, the key things to remember are:

  • Self Care– Stay hydrated, get plenty of snacks, get lot’s of sleep etc.
  • Utilize stress busters– Find respite in hobbies, in exercise, specialist interests or relieve stress through stimming
  • Take a break– If a situation is taking it’s toll, take a step back. Leave the room, take a holiday (if work related) or go outside for a walk; time in solitude to decompress and reset can be particularly helpful ๐Ÿ™‚

Here’s a useful chart from the Autistic Women’s Network summarizing autistic burnout:

Hope you enjoyed this post dear Earthlings! ๐Ÿ™‚

Remember to make time for you this weekend ๐Ÿ˜‰

Aoife

Autism and Memory

Greetings Earthlings! ๐Ÿ™‚

In today’s post we’re going to explore the concept of memory and autism.

When we think of autism and memory, we often picture the ‘Rain Man‘ stereotype- an individual with superb, photographic memory.

Whilst this is a stereotypical view of autism, stereotypes often are based on fact. It is indeed true that many autists possess impeccable and often eidetic memories (although the scientific jury is still out as to whether or not true eidetic memories really exist).

Just check out this autstic artists sketch drawn entirely from memory!ย ๐Ÿ˜ฒ

However, the opposite is also true in that many individuals with autism equally possess a number of memory deficits such as difficulties with short term and working memory (a part of the short term memory that temporarily stores information for processing-e.g decision making, reasoning and behavior). As a result of this, children with autism often have poorer memory for more complicated information.

My own memory has always been kind of strange- I fall somewhere between having a normal memory and an eidetic one (I definitely don’t have a full eidetic memory- school would have been a lot easier if I had! ๐Ÿ˜› )

bitmoji792226925Whilst I can’t recite the entire works of JK Rowling word for word, my brain does however, tend to randomly churn out eidetic memories every now and again (known as sporadic eidetic memory). I sporadically come out with full eidetic memories recalling such minuscule details as clothes, smells, songs, haircuts etc. My memories are so detailed that I once when recounting the previous night’s episode of Desperate Housewives to my Physical Therapist went so far as to mention the likely flavour of smoothie that the ladies of Wisteria Lane were drinking as they gossiped!ย ๐Ÿ˜‚๐Ÿ˜ฌ

I’ve unwittingly been dubbed the “family historian” as a result ๐Ÿ˜›

But what has the science to say about memory and autism?

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The research is conflicting. Scientists have had great difficulty in obtaining consistent results across memory studies- they are as diverse as the spectrum itself!

However, there are a couple of areas in which scientists seem to agree:

  • Visual memory is thought to be a particular strength in autists due to increased activity in visual areas of the autistic brain, resulting in enhanced perceptual processing (and eidetic memory formation)
  • Deficits in working memory may arise from alterations in the brain networks involved in working memory such as the amygdaloid complex and the medial temporal lobe (MTL) affecting their ability to encode and process information

Fun Fact: The regions of the brain involved in declarative memory (memory of facts and events) are thought to compensate for social deficits in autism, becoming activated in social situations to allow autists to maskย (for example using formulaic speech i.e. learned phrases)

That’s all for this week dear Earthlings- I hope this post was ‘memorable’ ๐Ÿ˜‰

Enjoy the weekend! ๐Ÿ˜€

Aoife

Non-Verbal Autism

Greetings Earthlings,

Leading on from my recent post about voice control and autism, this week I’d like to briefly talk about non-verbal autism.ย bitmoji-39779843

Granted, I cannot provide any personal insight into the matter,ย (I could never be described as non verbal ๐Ÿ˜› ), but I’ll do my best to explain it! ๐Ÿ™‚

So first things first, what is non-verbal autism?

Affecting approximately 25-50% of autists, non-verbal autism is pretty self explanatory- the autist is unable to speak.

So what causes non-verbal autism?

Again, as with most aspects of the spectrum, the cause is unclear. Non-verbal autism is highly under-researched and therefore poorly understood. However, one particular study does indicate that there may be differences in the structure of the brains of verbal and non-verbal autists in areas associated with language. Brain imaging analysis of toddlers indicated that autists who grew up to be verbal showed similar signs of activity in these areas to their neurotypical peers. Toddlers who grew up nonverbal however displayed signs of reduced brain activity in the same areas which would likely explain their struggles to formulate speech.

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With early intervention and improved techniques, many nonverbal children can now learn to speak, however, a minority of autists will remain silent. But don’t despair, technological advancements in speech generating devices are now helping to reveal the inner voice of nonverbal autists.

Take the inspirational Carly Fleischmann for example. As I have discussed previously (lesser known ASDs), Carly is a non-verbal autist…and talk show host! :O Carly never let her inability to speak to keep her from her dreams of being a talk show host ๐Ÿ™‚

Here’s a video of Carly in action ๐Ÿ™‚ :

 

That’s all for this week dear Earthlings! ๐Ÿ™‚

Enjoy the bank holiday weekend!! ๐Ÿ˜€

Aoife

Autism and Voice Control

Greetings Earthlings! ๐Ÿ™‚

Today we’re going to briefly talk about an aspect of the spectrum that many of you may not be familiar with- voice control.

 

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We’re all aware that autism is often accompanied by difficulties with speech (non verbal autism, apraxia, speaking in monotones etc.) however, few are aware of the challenges to control the pitch and volume of our voices.

This is especially challenging for me as I often struggle to accurately gauge my volume. For example, I may think that I am singing along at an appropriate volume, buuuuuut those who are listening to me may have slightly different reactions…

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I’ve probably deafened several members of my friends and family at this stage! ๐Ÿ˜›

For years I could never understand how I was chastised for my mumbling in school, but a shouter at home- I just could never seem to get the balance right.

I naturally tried to rationalize my shouting with waxy ears and struggles to be heard over the din of the school- but is there any scientific explanation for my struggles to regulate tone?

Many acoustic studies have found that prosody (an area of linguistics that focuses on linguistic functions such as tone, intonation, stress and rhythm of speech) is impaired in autists. Prosody is used to reflect emotional states, sarcasm, stress, emphasis and other areas of language that are not conveyed through grammar and vocabulary- an area where many autists struggle.

MRI studies have shown that the areas of the brain involved in the perception and processing of prosody (the left supramarginal gyrus (SMG)) are abnormally activated in autists compared to their neurotypical peers. Neurons in the left precuneus,ย the left medial prefrontal cortex and the right anterior cingulate cortex should be deactivatedย when exposed to prosody, however these areas are active in the autistic brain.

As a result, we are often unable to discern the exact pitch, tone or emphasis we should use in conversation. Thisย  abnormal activation also explains why autists often struggle to accurately interpret another persons meaning/intention through their use of prosody in their speech.

Impairments in auditory processing of sound in the brain may also feed into this issue- so try not to judge me too harshly the next time I blow your eardrums outย ๐Ÿ˜ฌย ๐Ÿ˜‰

Have a good weekend Earthlings! ๐Ÿ™‚

Aoife

Autism and Masking

Greetings Earthlings! ๐Ÿ™‚

This week I’d like to discuss something I’ve briefly touched upon in previous posts (women and autism, ‘Please Stand By‘)- autism and masking.

So what is masking?

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Masking is a common behavioural trait within the autistic community wherein social mimicry is used to “mask” other autistic behaviours in social settings.

Basically this means that autists consciously employ techniques from social observation (such as forced eye contact and rehearsed conversations) in order to better blend into the social landscape to prevent their autistic traits from sticking out. You may not see the autism, but it’s still there behind the mask. Some autists even carry multiple masks to be used for different audiences.

Masking mainly tends to happen among girls with autism rather than boys (boys have also shown signs of masking but not to the same extent). Studies have shown that autistic women are generally better at recognizing emotions than their male peers (almost as good in fact as neurotypicals) and show greater social attentiveness which feeds into our ability to mask.

For example, take a quick look at this video I shared in my previous post where a group of autistic women go speed dating with an oblivious group of neurotypical men:

For me personally, social masking kept me under the ASD radar for many years. Without realizing it, I had been giving an Oscar worthy performance for most of my life.

I figured out how I was “supposed” to act from observing those around me, reading books and watching films (though sadly the amount of rom coms/romance films/novels I consume led to some unfortunate learning curves! ๐Ÿ˜› ). I forced myself to make eye contact and to watch my mouth more, I even devised a sort of mental go-to phrase card with acceptable answers to such tricky questions as ‘How are you?’ or how to appropriately answer the phone (which I still dread by the way ๐Ÿ˜› )

In one of my more extreme forms of masking, I somehow developed the ability to cry only out of my right eye when I would experience mini meltdowns in school so that the tears would roll down unseen behind a curtain of hair!ย ๐Ÿ˜ฌ

I became really good at being invisible….well, at least between meltdowns! ๐Ÿ˜› ๐Ÿ˜‰

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Social masking in girls is thought to be one of the primary reasons that women with autism often go undetected into adulthood, if at all. Research suggests that the ability to mask may even prevent those who have been flagged for assessment from getting the formal diagnosis that they need. In addition to this, a recent survey of autistic adults reported universal exhaustion from their masking exertions which is why it is so important that we develop better diagnostic tools for women on the spectrum.

Have a good weekend everyone! ๐Ÿ™‚

Aoife

Talking to your Child about Autism

Greetings Earthlings! ๐Ÿ™‚

Continuing on from my post discussing if you should tell your child that they have autism, this week I’m going to discuss how to talk to your child about their diagnosis.

When should I tell my child they are autistic?

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As with autism, the answer to this question is entirely individual. Some higher functioning autists may be ready for this information at a younger age than others, or may even be so high functioning as to not need this information during their formative years (as in my case- though in hindsight it would have helped a lot!).ย Timing can also vary with the age of diagnosis. Girls for example are often diagnosed much later in life than boys with autism.

In general, many experts recommend telling your child around the time they start to become self aware of their differences to their peers- roughly around 6 years old, but this awareness will vary among autists. I, for example, always felt that I was different to my peers, but I never openly questioned it until after I had received my diagnosis in my 20’s.

How do I tell my child they are autistic?

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As with when, there is no right or wrong way as to how you talk to your child about autism (just maybe don’t spring it on them out of nowhere the way my parents did ๐Ÿ˜› ), but here are some tips and tricks that may help you:

  • Pick your moment– be very careful with you timing. Make sure that your child is content and calm in a familiar place, things will be much harder if they are anxious
  • Don’t rush– Ensure that there is plenty of time to talk things through with your child. They will have questions and may need extra time to process what you are saying
  • Keep it simple– There will be plenty of time to introduce them to the world of neurodiversity as they grow. Just introduce them to autism one toe in the water at a time. Top Tip– There are a lot of useful kids TV shows (such as Sesame street andย Arthur)ย  and books explaining autism in an age appropriate way which could help this conversation ๐Ÿ™‚
  • Emphasize that this is a good thing– Whilst an autism diagnosis can be difficult to process initially, ultimately it is a good thing. Your child will get the help and supports they need to thrive, they will better understand themselves and be understood. However, the black and white autistic mind deals in good and bad. Sometimes an autist cannot perceive the difference between a little bit bad and plain bad which can cause great distress (ร  la 6 year old Aoife who thought she had to leave home as she could not be good! ๐Ÿ˜› ). Highlight the importance of difference and make it clear that this is not a bad thing for them- different, but not bad ๐Ÿ™‚

How do I explain autism to my child’sย siblings?

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In much the same way as you would tell a child they are autistic, sit them down and have a casual chat about their sibling (or even friend- awareness in the community is crucial to changing societies attitudes for future generations of autists ๐Ÿ™‚ ). Depending on the age of the child, what you tell them can vary to suit. Show them videos, give them a book, tell them a helpful analogy (I do love my Supergirlย one!) etc to help them understand. Explain that their friend/sibling works a little bit differently and that they don’t always mean to say or do certain things, but we must love and accept them as they are ๐Ÿ™‚

Hope you found this post useful Earthlings!

Enjoy the weekend! ๐Ÿ™‚

Aoife

Broad Autism Phenotype (BAP)

Greetings Earthlings! ๐Ÿ™‚

Today we’re going to discuss a type of autism that lies just outside the spectrum- the broad or broader autism phenotype (BAP).

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What on earth is that when it’s at home?!

BAP is a term used to describe a wider range of individuals just beyond the spectrum who have difficulties with language, personality, and exhibit a number of social and behavioural traits at a higher level than the average neurotypical, but not so high as to be diagnosed with autism.

In other words, this means that you have “a touch of autism” or “not quite autism (NQA)”.ย The individual has a high number of mild traits, but not enough to interfere with daily life.

So what do we know about BAP?

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Relatively little- it doesn’t even have a Wikipedia page!

This intermediate description is most commonly associated with family members (parents, siblings, and other extended family members) of those with ASD diagnoses (14โ€“23%), but it can also be found in the general population as well (5โ€“9%).

Interestingly, evidence of an intermediate autism phenotype has existed since the late 1970’s (the term itself was coined in 1994), but it is only in recent years, with the expansion of the spectrum, that it has become a source of research interest for scientists seeking to understand the range of ASD’s that lie beneath the spectrum rainbow.

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Much of the research in this area involves using the BAP to better understand autism- in particular it’s severity and genetics. By analyzing autism traits in families through the prism of BAP for example, researchers may be better able to identify the specific genes which underpin ASDs, paving the way for better therapies for autists.

Apologies for the shortness of this post dear Earthlings, but there is sadly very little information out there about BAP. Perhaps in the future there may be new research that will shed greater light on this subject ๐Ÿ™‚

Have a good weekend everyone! ๐Ÿ™‚

Aoife

Autism and Smell

Greetings Earthlings! ๐Ÿ™‚

As I mentioned in last weeks post on taste sensitivity, this week we’re going to discuss sensitivity to smell in autism.

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As with other senses we have discussed, autists can be eitherย hyposensitive or hypersensitive to odours. One autist may enter a malodorous environment without noticing anything amiss, another autist may wretch, or worse!

As a child, my nose was particularly sensitive to my environment (although judging by how I could taste the beer my friends were drinking yesterday evening from the fumes alone, this may still be the case on occasion ๐Ÿ˜› ). Bad smells were especially trying- the smell of salads, fish, cigarette smoke, incense, even something so simple as a bag of popcorn could easily turn my stomach.

But it wasn’t all bad- this sensitivity comes with a heightened appreciation for pleasant smells too ๐Ÿ™‚

Baking, chocolate, nice perfumes, the outdoors, the smell of metal (don’t ask me why I love this one so much- must be something to do with my taste in music! ๐Ÿ˜› ๐Ÿ˜‰ )- in fact, such smells are not only a sensory sensation, but can also be used to help calm an autist.

As easily as an unpleasant smell could unsettle me, the right smell could calm me back down again as a child.ย  I always kept a teddy or a blanket near at hand that I could smell to help soothe and calm me and to lull me off to sleep- I couldn’t sleep without one particular teddy until I was 16!

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^^^^My teddy was a lot more raggedy than this…๐Ÿ˜ฌ

So why does smell affect autists so much?

Interestingly, some studies indicate that there are no differences in sensitivity to smell between autists and their neurotypical peers, however, much research points to the cortex of the brain. This region is heavily involved in smell processing, and yep, you guessed it- the autistic brain shows signs of dysfunction in this region. In fact, the pre-frontal cortex shows signs of overgrowth and excessive linkage in the neurons (just like an overloaded plug), so no wonder sensory perception is altered in autists! This region is also associated with the formation and retrieval of long term memories, whichย could also explain why smells are often tied to memory recall in autists (which I will explore in more detail at a later stage ๐Ÿ™‚ ).

One study also shows that autists may not inhale smells in the same way to their neurotypical peers. Evidence suggests that autists inhale deeply and intensely for both pleasant and unpleasant smells, whereas neurotypicals will tentatively sniff in the presence of an offending odour, which could further explain differences in scent processing.

In addition to this, research suggests that alterations in smell can influence social behaviours. A recent study in fact suggest that autists cannot smell fear and that there is a reversal in their response to fear. In this study, a group of autists were calm when presented with a sample of sweat from a skydiver, whereas their neurotypical peers exhibited classic signs of fear. In contrast, their fear levels increased when presented with the sweat sample from a calm individual!

In other words, an autists social behaviour may be affected by an inability to interpret social cues carried in odours- the mind boggles!

So there we have it dear Earthlings- hope this post didn’t ‘stink’ too badly ๐Ÿ˜› ๐Ÿ˜‰

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Enjoy the weekend everyone! ๐Ÿ™‚

Aoife

Autism and Taste

Greetings Earthlings! ๐Ÿ™‚

As we have discussed in previous posts (such as sensory issues,ย light sensitivity andย sound sensitivity), people with autism are highly sensitive on a sensory level, so naturally, taste is no exception.

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Many autists have highly sensitive taste buds wherein we find a number of flavours and foods too strong and overpowering to tolerate. This sensitivity to tastes can make life very difficult when it comes to taking medicines, food selection (which we will discuss in greater detail at a later stage) and maintaining a somewhat neutral expression when put in awkward public tasting scenarios (perhaps one of my biggest personal challenges ๐Ÿ˜› ).

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On the other hand, some autists can in fact be hyposensitive to taste, often preferring foods with stronger flavours

So what’s causing these alterations in tongue sensitivity?

The research into this aspect of autism is currently quite limited, however, some neurological studies indirectly suggest that there is evidence of taste dysfunction in autism.

Many studies have shown evidence of brainstem dysfunction in the neurodiverse brain such as hypoplasia, or under development of the facial nerve nucleus (a collection of neurons in the brainstem that innervate the face). This nerve network carries taste information from the tongue and relays it to the brain. Any dysfunction or damage to this pathway can affect a persons ability to detect tastes.

Furthermore, the ability to identify tastes and flavour perception is controlled by a complex nerve network involving several different brain regions such as the thalamus, insula/operculum, the orbitofrontal cortex (OFC) and our old friend the amygdala. Many of these regions have been implicated in autism, suggesting that dysfunctions in these regions may influence an autists taste buds.

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Recent evidence also suggests that autists may be more sensitive to bitter tastes due to genetic mutations in the TAS2R38ย tasteย receptor. Alterations in theย TAS2R38 gene can cause autists to perceive bitter tastes differently to their neurotypical peers which could explain why our taste buds are so sensitive (and why alcohol makes me gag ๐Ÿ˜› )

Finally, an increased sensitivity to smell also feeds into these alterations in tasteย which I will examine next week ๐Ÿ™‚

Until next time Earthlings! ๐Ÿ™‚

Aoife

 

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