Autism and Temperature

Greetings Earthlings! πŸ™‚

With the summer drawing to a close, this week I’d like to talk about thermosensitivity and autism.

As I’ve discussed on multiple occasions, autists’ are very sensitive to sensory stimuli, so it should come as no surprise that autists have different reactions to temperature versus their neurotypical peers.

temperature

In my experience, I have found that I can be sensitive to higher or lower than average temperatures. I’m a bit like Goldilocks- I don’t like to be too hot, don’t like to be too cold, but I do like a nice moderate temperature (which is why Ireland suits me so well I suppose!πŸ˜‚). If the temperature starts to drift in either direction away from my comfort zone, I tend to get quite irritable and my masking abilities are impacted by the distracting temperature change. I may have gotten some weird looks from some girls a few rows in front of me at a Paramore concert once as my voice started to get higher, shout-y and more strangled from the frustration of sitting beneath a freezing vent while waiting on the band 😬

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I’m also more likely to have a meltdown if other buttons are pushed while dealing with temperature fluctuations, particularly where hotter temperatures are concerned-needless to say, I’m not a fan of sun holidays and dread to think what menopause may bring for me in the future! πŸ˜›

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I’m even quite picky when it comes to the temperature of food, being unable to stomach some foods under certain temperatures. For example, I’m a real carnivore, but if the meat is cold I can’t stomach it; similarly, hot drinks are an uncomfortable sensory experience, so even though I like the taste of hot chocolate, I won’t drink it!
Like me, many autists are quite thermosensitive, and find fluctuations in their surrounding temperature to be an overwhelming experience. On the other hand, several autists have also reported temperature insensitivity or an indifference to thermal stimuli.

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So what has the science to say?

The literature is a little contradictory when it comes to thermosensitivity. A 2015 study found that children with autism had a lower perceptual threshold for detection of hot and cold temperatures, indicating decreased temperature sensitivity and perception in certain brain regions. This was thought to be related to cognitive impairments and deficits in attention, so it could be that some autists are more distracted by other stimuli to notice temperature fluctuations. However, a more recent 2019 study found that there appeared to be no differences in temperature perception between autists and neurotypicals, concluding that temperature perception was entirely individual to the autist- which makes a lot of sense given the vastness of the spectrum.

On another scientific note entirely, research suggests that autistic behaviours are positively impacted by elevated body temperature. Multiple studies have noted that when an autist has a fever, many of their negative behaviours (such as irritability, hyperactivity, repetitive behaviours etc.) improve, but return to normal post-recovery. The reason for this remains unclear, however, one such theory cites the impact of temperature on neural circuits where it can either enhance or suppress brain activity in certain regions. This seems quite likely given that autists brains have an excess number of brain connections and increased neurochemical activity compared with neurotypicals, factors which heavily contribute to autistic behaviours. Brain activity might also be impacted by certain chemicals produced by our immune system to fight infection during a fever.

Perhaps it might be worth exploring the severity of autism between autists who live in hotter or colder climates to see if an increase in surrounding temperature could help manage autistic symptoms.

All in all it would seem that temperature response, like autistic traits, is entirely individual to the autist πŸ™‚

Hope you enjoyed this post dear Earthlings! πŸ™‚

Have a lovely weekend!

Aoife

Autism in ‘The Rosie Project’

Greetings Earthlings! πŸ™‚

This week I’d like to talk about a book that was recommended to me by several people around the time of my diagnosis (most notably by my grandmother, the name pressed into my hand on a folded piece of notepaper as if my diagnosis were a state secret!πŸ˜‚)- Graeme Simsion’s ‘The Rosie Project.’

You reading group: The Rosie Project by Graeme Simsion | Daily ...

The Rosie Project‘ tells the story of Don Tillman, a genetics professor that struggles with social interaction, who creates a questionnaire to determine the suitability of potential female romantic interests (something that he calls ‘The Wife Project’). In the process, he meets Rosie, a completely “unsuitable” candidate with whom he strikes up a friendship, helping her to track down her biological father (“The Father Project”), and falling in love along the way.

Fun fact about the book- a former colleague of the author did in fact create a “Wife Project” questionnaire just like Don (however, as far as he knows this worker was never diagnosed as autistic)!

You can find a trailer of sorts from the author here where he talks about the book and the challenges of translating it for other countries:

 

It’s an endearing, unconventional love story, but how does it’s depiction of autism fare?

Unlike ‘The Curious Incident of the Dog in the Night-Time‘, the book was never explicitly linked to autism in the blurbs, however, many agree that Don is on the spectrum. His logical thinking, strict routines, social awkwardness, his intellect (here we go again πŸ™„) and struggles with emotions are highly indicative of Asperger’s syndrome, albeit somewhat stereotyped traits. Moreover, Asperger’s and it’s symptoms are directly discussed by Don multiple times throughout the book, but Don never explicitly reveals whether or not he has been diagnosed with it- a clever move by the author as it infers the diagnosis, without accountability for any potential misrepresentation.

Graeme Simsion completes his mega-selling Rosie trilogy

Β  Β  Β  Β  Β  Β  Β  Β  Β  Β  Β  Β  Β  Β  Β  Β  Β  Β  Β  Β  Β  Β  Β  Β  Β  Β  Β  Β Author Graeme Simsion in 2019

Nevertheless, the book delivers the highly positive message that autists are not just capable of love, but of also being loved in return- and by neurotypicals no less (shock, horror! πŸ˜› ), and I would highly recommend a read of it πŸ™‚ .

In preparation for this post, I recently discovered that this book is part of a trilogy, so I will definitely be checking these out and will write about them in the near future.

Hope you enjoyed this post dear Earthlings! πŸ™‚

Enjoy the weekend!

Aoife

Autism on Screen- Love on the Spectrum

Greetings Earthlings! πŸ™‚

This week I’d like to discuss an Australian documentary series that I recently watched on Netflix called ‘Love on the Spectrum‘.

Love On The Spectrum - ABC and SBS - Media Spy

So what’s it about?

As the title suggests, the documentary follows several young adults on the autistic spectrum as they look for love, many venturing into the world of dating for the first time. The show also features some recently engaged autistic couples discussing their experiences of love on the spectrum.

You can see a trailer for the series here:

So what did I think of the series?

As I’ve discussed in previous posts, the path to love isn’t always the easiest for an autist. The search for love can be difficult enough for neurotypicals, but throw in sensory issues, social awkwardness, mind blindness and difficulty reading social cues however, and dating becomes a lot more complicated. The show-creator’s did a great job of accurately conveying these struggles to the public. Too often we’re told “if you made more of an effort”, “if you did this, said that etc.” you would have no problems finding love, but the reality is far more complicated.

It was heartening to see my fellow autists putting themselves out there, taking a chance on finding love when so many deem us “unlovable”. While some autists are content with the single life, the vast majority of us want to find love, so it was great to see this stereotype blasted by the show.

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On the other hand, I did feel a little ill at ease with the documentary at times. Dating can be extremely stressful, and I often felt that the ever present camera crews may have made the experience more difficult than it had to be. I know if it were me, the combination of first date awkwardness and the knowledge that my every move was being recorded (and judged) would have made me very uncomfortable. There was a lot of hovering during the dates, and I felt that producers weren’t as sensitive as they could have been to the needs of their subjects- it just felt like there was a real lack of emotional intelligence on their part (which is ironic given how many neurotypicals have told me I need to work on mine πŸ˜› ).

I also felt it was a little bit odd that the producers only sought to set up the autists with other autists, or with other people who also had some form of intellectual disability. Many autists find love with neurotypicals, so why not feature them in the dating pool? I understand that for many on the spectrum it can be easier to date a fellow autist, especially given that they might better understand you, but for me the documentary just gave off the vibe that autists should only date “their own kind.” Perhaps if future seasons are planned, it would be useful to set up dates with greater neurodiversity, like in the British TV series ‘The Undateables.

All in all however, this quirky series was a delight to watch for the characters alone- it was so nice to just see these autists bouncing around, completely comfortable just being themselves. We could all learn a lot from them πŸ™‚

Hope you enjoyed this post dear Earthlings! πŸ™‚

Have a lovely weekend!

Aoife

Autism and Face Masks

Greetings Earthlings! πŸ™‚

Leading on from my recent post about autism and COVID-19, I’d like to focus in on the issue of face coverings and autism.

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With the debate raging in the media as to the true efficacy of face masks, there has been little discussion as to the impact that face coverings may have for autists. Face masks are not fun for anyone (except for maybe playing dress up), but for autists, they can pose a serious sensory challenge. Overheating, irritating materials against sensitive skin, the uncomfortable sensation of elastic bearing down on your ears, and last but not least, the feeling of suffocation from the mask pressing against your nose and mouth.

Thankfully in many countries such as Ireland, guidelines have been issued for people with sensory needs that do not require them to wear a face mask if they are unable to do so, however, if you can, it is recommended that you should. Unfortunately, we’ve all seen viral videos of anxious people berating those who do not wear face coverings, which can further compound anxieties for autists should they be targeted.Β  In these difficult times, whilst I know it can be hard not to judge people when they don’t wear a face mask in public spaces, try to spare a thought for autists. Autism is an invisible disability after all; when you don’t see a mask, consider what else you may not be seeing.

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It is also worth noting that face masks can create further issues for autists as they act as a communication barrier. As autists struggle to read nonverbal cues and facial expressions, wearing a face mask can make communicating all the more difficult- especially given struggles with eye contact. So don’t judge us too harshly if we completely misread social situations with greater frequency than normal πŸ˜‰

Interestingly, in my own experience, I have discovered that face masks have an unexpected advantage in that they have actually helped to suppress meltdowns and have kept me from getting overwhelmed! When you hyperventilate (as I often do during a meltdown), the carbon dioxide levels in your blood drop as you are over-breathing. This can also cause your oxygen levels to drop. The restrictive nature of the mask creates a seal around the face causing you to inhale more carbon dioxide when you hyperventilate which will help to re-balance your blood gas levels and calm you down- just like breathing into a paper bag.

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So ironically whilst the face mask may trigger a meltdown, it can equally help to offset one! πŸ˜‚

Hope you enjoyed this post dear Earthlings! πŸ™‚

Have a nice weekend!

Aoife

Autism and Weather

Greetings Earthlings! πŸ™‚

This week, I’d like to delve into an somewhat unusual subject- how weather impacts people with autism.

I know what you’re thinking, she’s run out of things to say so she’s falling back on Ireland’s favourite topic of conversation πŸ˜›

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Joking aside, while this might seem like a silly topic, weather can have a surprisingly significant effect on autists both psychologically and physiologically. Coping with the sensory impact of extreme weather conditions, the lack of predictability and issues with change, and routine disruptions surrounding seasonal weather transitions can all be overwhelming. Something so simple as an unexpected shower or a really hot day could potentially trigger a meltdown (have certainly come to the brink myself when I’ve been overheated on occasion- although granted this was often coupled with hunger or exhaustion πŸ˜› ).

Thankfully, a life spent living in the highly unpredictable Irish climate where one often experiences all four seasons in a single day has made me immune to most fluctuations, but for many others the weather poses daily challenges.

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Sensory issues aside, many studies have noted some behavioural changes in autists under certain weather conditions. Research has found that autists are particularly susceptible to drops in atmospheric/barometric pressure i.e. the weight of air pressing down on us from the earth’s atmosphere. When pressure is high, we have dry, sunny weather; when pressure is low, rain and dark clouds. This drop in pressure results in a drop in blood oxygen levels. Consequently, the body adjusts heart rate and blood pressure to adapt to these changes which can interfere with brain activity. This often leads to mood swings, increased impulsivity and autists are more likely to indulge in destructive behaviours (especially for those with ADHD).

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In addition to this, if you’re anything like me, drops in barometric pressure may also make you very sleepy and sluggish due to the fluctuations in brain oxygen levels (nice to know why taking naps has become somewhat of a pastime in recent weeks staring up at a perpetually wet and grey sky πŸ˜› ).

There’s no clear reason why low pressure impacts autists more than neurotypicals, but given that our brains are wired differently, pressure related fluctuations in brain activity are bound to have more of an impact. Moreover, given the impact of deep pressure stimulation and it’s calming effect on the autistic nervous system, perhaps this could explain why our brains go a little bit crazy in response to drops in atmospheric pressure.

Hope you enjoyed this post dear Earthlings! πŸ™‚

Have a lovely weekend!

Aoife

Autism in ‘The Curious Incident of the Dog in the Night-time’

Greetings Earthlings! πŸ™‚

This week I’d like to talk about a book that I’ve been meaning to discuss for quite some time- ‘The Curious Incident of the Dog in the Night-time‘ by Mark Haddon.

The Curious Incident of the Dog in the Night-Time - Scholastic Shop

If you haven’t read the book (or seen the stage adaptation), ‘The Curious Incident of the Dog in the Night-time‘ is a mystery novel, centering on a teenager named Christopher as he investigates the murder of his neighbours’ dog Wellington. Christopher describes himself as a “mathematician with some behavioural difficulties”. Whilst Christopher does not discuss a specific diagnosis, the book’s blurb refers to Asperger’s, Autism and savantism and is often considered one of the most popular novels featuring autism. Interestingly, Mark Haddon only did some cursory reading about Asperger’s in preparation for the novel as he did not want to put Christopher in any particular box given the broadness of the spectrum. He has even said in interviews that he now regrets that Asperger’s was mentioned on the cover of the book and subsequent editions as he regularly get’s calls from people who perceive him as an expert and would like him to give talks about Asperger’s.

With this in mind, how close to the mark is the books depiction of autism?Review: The Walnut's engrossing 'Curious Incident' - WHYY

The book hits a lot of the common autistic traits dead on with literal thinking, mind blindness, sensory issues, struggles with social cues, colour sensitivities, and one of my personal favourites, Christopher’s tendency to separate foods on his plate. As I have discussed previously, I vividly recall reading about Christopher arranging his food so that it didn’t touch on his plate, and remarked to myself about how much that sounded like me, but laughed it off as it was the only trait I identified with in this book! Who would have known that 10 years after I first read that story, I would find myself getting an autism diagnosis! πŸ˜›

To this day, there is one thing that has always plagued me about this book (which is saying something given that it’s been about 15 or 16 years since I read it!), and that is the way that Christopher speaks/writes. His tone of writing was very simplistic, which from a literary and character point of view was a useful approach to take, however, Christopher’s use of language didn’t really add up from an Asperger’s perspective.

A line that I have never forgotten (as it irked me soooo much from a grammatical perspective), was Christopher’s reference to people as “doing sex” not “having sex” (and the phrase was used multiple times). This poor use of English wouldn’t generally be accurate for people with Asperger’s as one of the most common traits is an unusual tendency towards more formalized and sophisticated language, often from a really young age. This is why aspies were nicknamed “little professors” in early research. The vast majority of aspies are quite verbacious (you may have noticed my own proclivity towards the use of big words in many of my posts πŸ˜‰ ), so Christopher’s self narrated exploits in the book don’t exactly equate to how a real life aspie might narrate their story.

The Curious Incident of the Dog in the Night-Time is returning to ...

I was further irritated by Christopher’s mathematical and savant like traits (so many autists out there just once would like to see someone that’s terrible at maths in a literary/film setting!), however, in light of the fact that Mark Haddon based this character on two people that he knew and had set out to make his character a mathematician without Asperger’s fully in mind, I suppose the book could be forgiven for taking artistic (or should I say “autistic”) licence.

Moreover, several medical professionals that have reviewed the book have praised it highly and deemed it an essential read for anyone with an interest in the autistic spectrum. If it’s good enough for them, it’s good enough for me!

All in all, the book is worth a read, and a surprisingly good depiction of autism given that this was not the author’s direct intention! It may not be what I would personally consider to be the most accurate of depictions of Asperger’s, but given that it’s one of the few popular fiction books to feature a main character with autism, it get’s brownie points for that πŸ™‚

Hope you enjoyed this post dear Earthlings! πŸ™‚

Have a lovely weekend,

Aoife

Autism and Hair

Greetings Earthlings! πŸ˜€

This week, I’d like to talk about the topic of autism and hair. Don’t worry, this isn’t going to be a weird post about people with autism having an excessive amount of hair or something!πŸ˜‚

Cousin It GIFs - Get the best GIF on GIPHY

Hair can however be a an issue for autists on a sensory level when it comes to getting a haircut and is also tied to many behavioural issues.

Thankfully in my case I have no issues with hair cuts (in fact I actively look forward to them!), however, for many autists, the simple act of sitting in the hairdressers chair can be a completely overwhelming experience. Sensitivities to touch can make a hair cut extremely difficult- hair washing and touching, head tilting and hair styling could be painful or overwhelming. Moreover, the noise of the scissors, clippers and styling equipment like hairdryers can equally trigger a meltdown. You can find some useful tips for navigating visits to the hairdressers here: https://www.autism.org.uk/about/family-life/everyday-life/hairdressers.aspx

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In terms of behaviours, trichotillomania (TTM) has been linked to autism. Trichotillomania is a hair pulling disorder marked by a compulsive urge to pull out your own hair, often resulting in noticeable baldness. The condition can occur in response to stress and anxiety where the pulling action provides a calming sensation. MRI studies have shown that people with trichotillomania have more grey matter in their brains. As MRI’s of autists brains have also shown increased grey matter, this could explain why autists can tend towards this type of behaviour. Treatments for this behaviour include CBT and in some cases the anti-depressant clomipramine. In addition to trichotillomania, some autists with pica eat their hair known as trichophagia (also known as Rapunzel syndrome).

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On a scientific level, hair has interestingly been used to identify autism in some patients! In a recent study, researchers noted that children with autism also had abnormal hair whorls (tufts of hair that were growing in the opposite direction to the rest) in addition to prominent foreheads and an asymmetrical face suggesting that these features could be used for diagnostic criteria. Makes me wonder about the shape of my own face/direction of my own hair growth! πŸ˜‚

Hope you enjoyed this post!

Have a good weekend dear Earthlings! πŸ™‚

Aoife

Autism on Screen- The Accountant

Greetings Earthlings! πŸ™‚

This week I’d like to take a look at a film I’ve been meaning to write about for a while, the 2016 action thriller ‘The Accountant‘ starring Ben Affleck and Anna Kendrick.

The Accountant [DVD]

So what’s the film about?

As the name suggests, the film follows an accountant named Chris (Affleck) with high functioning autism and genius level maths skills (yawn! Can we get a new angle please Hollywood?). By day, Chris is a talented forensic accountant and expert cooker of books, but by night, he exacts violent revenge on the criminals he encounters through his work for breaking his moral code (his father put him through grueling military and martial arts training as a sort of coping mechanism/management strategy).

If you haven’t seen the film, you can watch the trailer here:

 

So what did I make of the depiction of autism?

It was hard to focus on the film at times as the acting was not great- Ben Affleck was basically expressionless throughout the entire film. Not sure why I’m surprised after Affleck’s pitiful take on Batman! The filming schedule for this would have coincided withΒ Batman vs SupermanΒ so maybe he was channeling Chris instead of Batman πŸ˜› Acting aside, this lack of emotion annoyed me. Yes, some autists struggle to express theirΒ emotions, but that does not mean that we are all emotionless robots or supercharged killing machines.

The Accountant review – Ben Affleck autism thriller doesn't add up ...

In terms of scientific accuracy, the film is a fairly bland affair. It get’s the basics relatively right with little things like separating foods, routines, stimming behaviours, social awkwardness and lack of eye contact, buuttt as with many other films, it hinges on stereotypes of savantism and mathematical genius. I did however appreciate the angle of Chris’s vigilante retribution for those that violated his moral code- a refreshing take on an autists propensity for rules/black and white thinking (albeit his response to the rule breaking was not the best…). In addition, I did find the military style induction of sensory overload through loud music, flashing lights and self injury to be an interesting new take on stimming and autism management, although a wildly extreme one!

The film however was not well received by the autistic community. The American Journal of Psychiatry for instance criticized it for not balancing clinical reality with the films action and entertainment value. Moreover, many have criticized the film for it’s links between autism and violence. Indeed, some autists can have violent outbursts during meltdowns, however, it’s the cool, calculated intent that is particularly unsettling in this inference.

All in all, The Accountant is a fairly run of the mill action movie that doesn’t deliver a significant portrayal of the autistic experience- if you really want to see Ben Affleck run around as a brooding, emotionless vigilante, you’d be better off watching Batman Vs Superman πŸ˜›

Hope you enjoyed this post dear Earthlings! πŸ˜€

Have a lovely weekend!

Aoife

What I Wished I Knew About Autism

Greetings Earthlings! πŸ™‚

This week I’d like talk about some of the things I wished I had known about autism when I was first diagnosed. There’s so much to learn about the autistic spectrum, but here are just a selection of things I personally wish I had known:

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Autism is neurological not psychological– This is something that really stems from a lack of proper education about autism in the world. Because autism is so behaviour orientated, there is often a lot of onus on the psychology of the condition, and as such, people can be very dismissive of it. “If you just did this..”, “if you just tried to fit in…”- it’s not that simple. The autistic brain is wired completely differently to the neurotypical brain. There are chemical differences, differences in multiple structures in the brain, even differences in the number of brain connections. Behavioural changes can be made and coping strategies developed, but we need to be aware of the biological aspect- you can’t just swap out your brain for another. I wish I had understood that my own brain was hardwired to drop me into unfortunate situations growing up!

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Autism is a different way of thinking– The autistic brain is built differently, so therefore it thinks differently. It doesn’t mean that autistic thinking is not “normal”, just different.Β 

Autism is a spectrum- I know this one may seem silly as we’ve all heard of the autistic spectrum, but I wished I had known what being on the spectrum really meant. I had often heard the phrase “oh so-and-so is on the spectrum”, but took it to be a catch all term for people who were a bit odd, didn’t quite learn like everyone else, didn’t quite act like everyone else- basically people who weren’t quite “normal”. I never understood the minutia of the spectrum, that there were high functioning and lower functioning forms of autism. I wish I had known that traits were highly variable, that not everyone with autism is the same and that every case is unique. Perhaps if I had known this, I would have been far more understanding and less dismissive of my fellow autists growing up.

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Autists do experience empathy– We just may not be the best at expressing it. In fact as I’ve previously discussed, research suggests that we feel emotions on an even greater scale than neurotypicals.Β 

Autists want love– Asexuality is often thought to go hand in hand with autism. As I’ve previously discussed, most autists want to be loved, we’re just not sure how to communicate that or navigate the complexities of romantic relationships. Yes, there are a number of asexual individuals on the spectrum (as there equally are in the neurotypical population), but as with the spectrum of autistic traits, there is also a spectrum of sexuality.Β 

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That I wasn’t alone– For much of my life I felt like I didn’t fit in, like the world just didn’t understand me. I was always saying or doing the wrong thing, regularly subjected to looks of disappointment and dismay followed by lectures about my behaviour. When I would meltdown, I was ridiculed or punished as I sat there baffled by my own reactions, unable to explain to myself or others what had happened. Everything changed once I got my diagnosis; suddenly my behaviour was not so abnormal after all. There were articles, books and blogs filled with thousands of similar stories to mine. There was a name, an explanation, a community- I never have to feel alone again.

That I was “normal” (whatever that means) – As a result of being undiagnosed and misunderstood, I was constantly berating myself for not conforming to the accepted “norm”. The world told me that I was weird, that I was “wrong”, where nothing I ever seemed to do outside of academics seemed to be “right”. Had I truly known and understood that there is no such thing as “normal”, had I, and the world, known that being autistic is “normal” for millions of people, my life could have been so much simpler.

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Hope you liked this post dear Earthlings! πŸ™‚Β 

Enjoy the weekend!Β 

Aoife

Late Autism Diagnosis

Greetings Earthlings! πŸ˜€

This week after reading that British comedian Johnathan Ross’s daughter received an autism diagnosis late in life, I thought I’d write about my own experience of receiving an autism diagnosis as an adult.

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As you may know from my blog intro, I was diagnosed with Asperger’s Syndrome a few weeks shy of my 24th birthday. With autism diagnoses on the rise in recent years, it seems hard to imagine that a person would not be diagnosed until their twenties, but this was my reality. As it turns out, I was far from alone in my predicament with such notable autists as Susan Boyle, Anne Hegerty, Dan Aykroyd and Gary Numan all receiving adult diagnoses.

So why are so many autists only being diagnosed as adults?

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Leading autism experts have described a “lost generation” of autists who grew up during a time where autism was poorly researched and understood. Many high functioning autists did not fit the criteria for classic autism, and as such slipped through the diagnostic radar. It is only in recent years following the introduction of the spectrum concept that many previously undiagnosed autists are finally getting the diagnosis they should have received decades previously.Β 

In my case, I was both academic and social in school, so no one really batted an eyelid or questioned that something was amiss. My meltdowns were put down to stress (you would not believe the amount of school reports to my parents that said I needed to chill!πŸ˜‚) or temper tantrums, or just plain being a drama queen- oh if my teachers/friends only knew that I wanted none of the attention that my meltdowns brought! πŸ˜› It was only after I failed to grow out of my quirks in college and worsening social anxiety that my family sought to diagnose me (you can read the full story here).

In fact, statistically speaking, the vast majority of women with autism do not get their diagnosis until they are adults, often going unnoticed due to our ability to socially mask, or in some cases, misdiagnosed with conditions co-morbid with autism. Moreover, as I have discussed in numerous posts, women often present with completely different autistic traits to men, but these differences went unnoticed by the medical community for decades as the original descriptions of autism were based on a largely male cohort of patients.

So you’ve got your autism diagnosis, what happens now?

For many, the diagnosis comes as a relief. It feels as though you’ve got the final missing piece of a jigsaw puzzle, like you’re just seeing the full picture of yourself for the first time. However, it equally takes a while to get your head around it all, and the experience often leaves you with more questions than answers. You’re handed this life changing diagnosis, but realistically there are little to no supports available for autists over the age of 18 in most countries. So where does that leave you?

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Here are some tips that I found helpful for dealing with a late autism diagnosis:

Educate yourself- I’ve always had a thirst for knowledge, so whenever I don’t understand something I hit the books. Learning about autism was one of the cornerstones to helping me to better understand and embrace my diagnosis, allowing me to be a little kinder to myself in my symptomatic moments.

Check out some autism blogs/diagnosis stories- I found that reading the stories of other autists was quite comforting as I was coming to terms with my diagnosis. You’re not alone in this πŸ€—

Link up with local autism support groups/charities– there’s no better source of information and available supports than those who’ve gone through an autism diagnosis in your area. They will all have been through the same thing as you, whether as a recently diagnosed adult or as a parent to autistic child, and will be able to provide you with the best resources available in your locale.

Try CBT– as I’ve discussed in a previous post, CBT wasn’t really my thing for helping me manage my symptoms, but it was highly beneficial in those early few months after my diagnosis to have a professional there who knew about autism to talk things through and to help me to understand my behaviours better.

Talk about it with your friends and family– in many ways, an autism diagnosis is not a journey we walk alone; our friends and family walk it with us. They are on a journey to better understand you too and will want to be there to support you in every way you need.

At the end of the day, while it was not ideal receiving an adult diagnosis, the personal and mental benefits that I have attained in recent years have been completely worth it. I finally understand myself and feel comfortable in my own skin. At long last, I’m able to fully be me in all the weird and wonderful ways God made me to be πŸ™‚

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Hope you enjoyed this post dear Earthlings! πŸ™‚

Stay safe!

Aoife

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