Autism on Screen- Rain Man

Greetings Earthlings! 🙂

I’m going to change things up a little today with a new series examining the portrayal of autism on screen.

Film scholars have remarked that the portrayal of autism on film is generally inaccurate and highly stereotyped, so I’ve decided to take a closer look at things from a personal and scientific perspective 🙂

So let’s start at the very beginning with perhaps the most famous portrayal of autism in cinema- 1988’s ‘Rain Man‘.

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For those of you who have not seen the film, ‘Rain Man’ focuses on the relationship between brothers Charlie and Raymond ‘Rain Man‘ Babbitt as they embark on a cross country road trip to Los Angeles (Raymond refuses to fly unless it’s with Qantas- the safest airline in the world!). Charlie grew up without any knowledge of Raymond, only discovering his existence upon learning that his father’s multi-million dollar fortune had been bequeathed to the mental institution in which he resides. And so Charlie sets out to be Raymond’s carer in order to access the fortune, but *SPOILER ALERT*- ultimately has a change of heart. Classic Hollywood ending.

Here’s a trailer for anyone who’s thinking of watching it 🙂

‘Rain Man’ is often considered to be the main reference point for autism on film, as it prompted the breakthrough of autism into the wider conscious of the public. Prior to this, characters displayed autistic like traits in film, but autism itself was not discussed- likely due to the fact that the diagnostic criteria for autism was only just emerging in the late 1980’s. The term ‘Rain Man‘ has also become synonymous with autism and other mental disabilities in popular culture, as seen in this example from the film ‘Miss Congeniality‘ (2000):

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As a “female rain man”, I find this highly insulting, so try not to brand autistic people using the term 😛

Winner of  4 Oscar’s, ‘Rain Man’ has been highly critically acclaimed- but does the film match up to the reality?

Rain Man‘ is generally thought to be an accurate portrayal of the autistic condition in scholarly papers. Indeed, there are many areas in the film in which Raymond perfectly demonstrates some of the classical signs of autism- sensitivity to touch, restrictive and repetitive behaviors, specialist interests, coordination issues, deficits in social communication, autistic meltdowns etc.

Interestingly while I thought that I would not be able to relate to Raymond from previous viewings, I found that his literal thinking had me written all over it. There’s a scene in the film (which you can see in the trailer) where Raymond stops in the middle of the road on a pedestrian crossing after the light flashes “DON’T WALK”! I have a terrible habit of dawdling at pedestrian crossings. Oftentimes I can see that the road is clear, but still I’ll wait for the green man (although this may be related to getting clipped on the ankle by a car crossing the road in Dublin as a teenager! 😛 ). However, I’m not as bad as I used to be since learning to drive; hesitation gets you nowhere on a roundabout after all! 😉

The story where Raymond inadvertently burned Charlie in the bathtub as a child (which led him to be institutionalized), also brings back many memories from my childhood. There have been many cases where I have inadvertently harmed my siblings- why just yesterday I threw a foam roller at my sister in an attempt to help her stretch out her legs, only for it to whack her in the throat…oops!

Bad Aoife! 😛

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But my intentions were good!!

Acting without thinking is something that I tend to do an awful lot of (probably why I overthink and don’t act when it comes to love 😛 ). My mother had to keep a really close eye on me growing up after she found me attempting to push hair-clips down my sisters throat…I have no real answer for why I did that, but based on similar experiences, I’d say scientific curiosity probably had a role to play! 😛 😉 We’ll explore curiosity and impulsivity a little bit more in the coming weeks.

On the other hand however, this film has largely perpetuated the stereotype that autists typically have superb memories and savant skills. As I’ve stated previously, these traits are rare, and the vast majority of autists do not possess them. The same goes for card counting- a family friend actually inferred that I should be able to do it once! 😛

In addition to this, Raymond is also described as ‘high functioning’ in the film, BUT Raymond is incapable of living independently. Whilst the definition of what constitutes high functioning autism varies, for many, Raymond does not fit the high functioning category and therefore does not come across as a true reflection of autism.

One of the biggest issues here I believe, is the fact that the character of Raymond is based on Kim Peek- a “megasavant” who did not in fact have autism, but FG syndrome (a rare genetic syndrome characterized by intellectual disabilities, low muscle tone and an abnormally large head).

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Bit hard to write a film about autism when the inspiration doesn’t actually have autism if you ask me! 😛

On top of this, Dustin Hoffman famously prepared for the role by observing autistic adults for months in psychiatric institutions. However, Hoffman by his own admission describes Raymond’s character as an unrealistic grouped composite of high functioning autists he encountered during his research.

With this in mind, don’t believe everything you see in the movies folks! 😉

When I first got my diagnosis, this film naturally came to mind, however, I really struggled to relate what was presented on screen to my reality. Indeed, ‘Rain Man‘ reflects some of the realities of autism, but not all. ‘Rain Man‘ is an excellent film with superb acting from Dustin Hoffman, but it comes from a time before the ‘spectrum‘ when knowledge of autism was limited.

So when it comes to films about autism remember- autism is a spectrum; one size does not fit all 🙂

Aoife

Autism 101- Digestive Problems

Greetings Earthlings! 🙂

Today I’m going to discuss the issue of digestive problems for people on the spectrum- but don’t worry, I’ll stick to the science! I won’t regale you with any personal tales on this occasion 😛 😉

Gastrointestinal (GI) problems are among the most commonly associated conditions with autism.

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Evidence suggests that autists may be over 3.5 times more likely to suffer from issues such as diarrhea, constipation, food allergies, gastroesophageal reflux disease (GERD), irritable bowel syndrome (IBS) and inflammatory bowel diseases (i.e. Crohn’s disease and ulcerative colitis).

I know- not the most pleasant of subjects, but we can all be adults right? 😉

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Joking aside- these are serious issues for people with autism, especially for children. Autists are already sensitive to such stimuli as sound and touch. Adding GI discomfort to the mix can make things so much more difficult. The associated pain from these conditions can worsen behaviors, and in some cases, trigger regressions.

So what does science have to say about all of this?

As with autism, it’s another game of Cluedo- research is ongoing to determine ‘who-dunnit’. There are many suspects, but the culprit remains unclear.

Bacterial Abnormalities & Carbohydrate Digestion-The gut is home to trillions of bacteria naturally living in harmony with us.  Our gut provides them with food and shelter, and in return they digest certain dietary substances and produce vitamins B and K for us to absorb. This forms what is known as the gut microbiome. Ordinarily bacteria and host exist in harmony, however, if there is an overabundance of certain bacterial strains, this can lead to a number of GI problems. Studies have shown that such overabundance exists in children with autism.

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Abnormalities in carbohydrate digestion have also been reported in cases of autism. The cells of the intestines appear to have difficulty in breaking down and transporting carbohydrates in the gut causing malabsorption of these vital nutrients.

It’s been suggested that these issues with carbohydrates may be connected to the high level of bacteria present in the autistic gut as digestive alterations may influence nutrient availability within the microbiome, but further investigation is needed.

Furthermore, in recent years, evidence is emerging that gut microbes can influence brain development and behavior!

Wuttttttt???!!!

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I know!!!

In particular, there is evidence to suggest that people with autism are missing one specific bacterium- Lactobacillus reuteri.

One study in mice showed that following the addition of this bacterial strain to their diet,  the natural microbiome of the was gut restored AND further restored some behaviors associated with ASD’s! Interestingly, L. reuteri promotes the production of oxytocin, which as previously discussed, is essential for human bonding and social behavior.

Who knew that bacteria could control our brains this way?!

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Brain-Gut Communication and the Role of Serotonin-As in the picture below, the brain and the gut share a very close relationship in the human body.

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The gut in actual fact has it’s own complex nervous system (the enteric nervous system) which regulates the activity of the gut- kind of like a second brain. Together, the gut and the brain form what is known as the brain-gut axis, a two way street where each can influence the other. For example, signals travelling from gut to brain can influence satiety, whereas stress/anxiety signals from the brain to the gut affect gut sensitivity.

Serotonin is an important neurotransmitter (chemical messengers that allow neurons to communicate) within this axis. For example, serotonin plays an important role in the control of intestinal motility. As such, alterations in serotonin levels have been implicated in a number of GI problems.

But how does this relate to autism?

Yep- you guessed it, serotonin levels, like oxytocin, are dysregulated in autism, and therefore likely contribute to associated GI issues.

Further to this, there is also evidence to suggest that certain gut bacteria are involved in the production of serotonin in the body by interacting with serotonin producing cells (enterochromaffin cells). So perhaps alterations in these serotonin producing bacterial colonies may also contribute to these GI issues.

Diet-As people with autism often have restrictive eating habits, it was proposed that perhaps diet may contribute to GI issues. However, studies have shown that although autistic diets may differ, overall nutritional intake does not. On the other hand, many people report improvements in both GI and autistic symptoms following gluten (a protein found in grains like wheat) and casein (a protein found in dairy) free diets, but there is insufficient scientific evidence to support this.

Genetics- Finally, scientists believe that as with autism, genetic abnormalities likely contribute to these GI issues. Moreover, as autism and GI problems are so frequently linked, researchers have suggested that perhaps they both share the same underlying genetic mutation or may be caused by some other unknown biological mechanism.

So there we have it! 🙂

Hope you enjoyed this ‘alimentary’ introduction to digestive issues and the spectrum! 😉

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Aoife

Discussion: Love and Romance

Greetings Earthlings! 🙂

In continuation from my previous post, today I’m going to expand a little bit more on the social problems autists experience in romantic situations.

We’ve already explored some science on the subject, so now I’m going to try and clue you in a little bit on what it’s like inside my head 🙂

As a person with autism, my life is often governed by rules- don’t tell lies, never go over the speed limit, don’t put raisins in a scone (a serious crime against cake! 😛 )!

Hence when it comes to socializing, things start to get tricky. Even trickier in matters of the heart. Rules exist when it comes to love, but these rules are in a constant state of flux- and I just can’t seem to keep up! 😛

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Social rules are a cornucopia of contradictions- a source of constant frustration for the black and white autistic mind.

Opposite’s attract, but birds of a feather flock together. Absence makes the heart grow fonder, but out of sight is also out of mind. Treat them mean to keep them keen,  but do unto others as you would have them do unto you.

It’s enough to make your brain explode!

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The majority of autistic people want to love and be loved as much as anyone else, however, when the goalposts keep moving and the game keeps changing, it can be extremely difficult to navigate the battlefield of love.

Growing up, love always seemed so easy on screen. Boy meets girl, boy asks girl out on a date- both know where they stand and so relationships blossom.

Easy peasy right?

Wrong! 😛

Boy was I in for a shock when I got smacked with the reality stick! I was in no way prepared for the games that teenage boys play with your mind and heart.

Wide eyed and innocent, I believed the boys who said they fancied me, I believed the so called friends who encouraged me- but all along I was being set up for a fall. It was all just a game to mess with the weirdo who’d never been kissed, and I never saw it coming.

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In hindsight when I see pictures of my atrocious hair cut at the time, I really should have seen through them! 😛

I was in for an even bigger reality check when it came to night’s out.

People grabbing you on the dance floor, stinking of booze and cigarettes, expecting you to just fall into their arms! Whatever happened to chat up lines, buying someone a drink, or even just learning their name? I struggle with things as innocent as hugs, how was I meant to cope with this invasion of space, not to mention the sensory fallout?!

This wasn’t the path to romance, this was carnage! 😛

If you are one of the lucky few who can get past this awkward stage to forge a real connection, communicating one’s feelings can be a real struggle for an autist. Saying the words ‘I love you’, even to family members, does not come naturally for me. I can tell my dogs I love them a thousand times a day, but ask me to say it to my parents and I freeze. It’s not that I don’t love them, I just can’t seem to get the words out…

Advice for family and significant others (SO): Don’t take this struggle personally. Your child/SO does really care about you, they just struggle to show it 🙂

Psychologists are of the opinion that we don’t see a need to repeatedly tell people that we love them, and hence we don’t say the words. Personally, I’m not sure that I’d agree with this explanation. I do want to say the words, they just won’t come out. In their absence, I’ve learned to do what I can through action to show people I care- a cake or a knitted present say more than I ever could 🙂

When it comes to romantic situations, this struggle for words is multiplied tenfold! With so many conflicting rules about showing affection or revealing your feelings, as with empathy, sometimes it’s easier to stay silent. I weigh up all the options, assess every social rule, turn myself upside down and inside out over my feelings- and then do absolutely NOTHING about it by default! 😛 Painful as it is, sometimes it just feels like the easiest option. There’s no drama, no outright rejections, no awkward moments…but also no requited love! As a result, I’ve landed myself in the friend-zone more times than I can count! 😛

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Over the years I’ve become a little more assertive in this regard. I eventually work up some bit of courage to communicate my emotions, but it’s still a real struggle to get there. I frequently undergo these periods of hyper-analysis prior to opening my mouth!

Advice for SO’s/potential SO’s: Be direct and let us know how you feel. We can’t read between the lines, we struggle to comprehend the rules of love and fathom the games- the direct approach is the way to go. The object of your affections may seem aloof, but they might simply not know how to act on their emotions. Just ask them out- their answer may surprise you 🙂

If my future husband happens to be reading this- when you meet me, no games please! 😛 😉

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Happy Valentine’s Day everyone! 🙂

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Aoife

Discussion-Trust, Intimacy and Sexuality

Greetings earthlings! 🙂

As we are approaching Valentines Day, I thought it would be interesting to explore the romantic side of autism a little bit.

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When it comes to romance and the spectrum, this is what most people think of:

Prior to my diagnosis, I too would have pictured this scene.

Asexuality, or lack of sexual attraction/interest, is often associated with autism. However, whilst asexuality occurs more frequently in the autistic community compared with the neurotypical population, one size does NOT fit all.

Stereotype Alert!!! The majority of people with autism are not asexual- we want to experience love just as much as the next person!

In fact, studies have shown no marked differences in sexual interests and behaviours when compared with neurotypicals…we’re just a little bit worse at the whole initiation/communication side of relationships! 😛

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Our social struggles can make it quite difficult to convey our intentions and feelings in romantic situations. As previously discussed (see empathy), we struggle to identify our own emotions to ourselves, let alone convey them to another person!

According to Asperger’s expert Tony Attwood, there is a tendency among adolescents with AS to seek out the relationship advice we are lacking from rather unreliable sources… Males tend to derive their information from pornography, while girls turn to soaps, rom-coms and books, failing to recognize that these works are not reflective of the real world.

You may think that surely we would be able to tell fact from fiction…. buuuutttt, this is a fairly accurate description. I’ve be been burned this way in the past! Let’s just say that I attempted to apply something I read in a book to reality…and it backfired…spectacularly! 😛

In addition to these social struggles, the sensation of touch can also be an issue for many people with autism in romantic entanglements. Studies have shown that gene mutations associated with autism can cause hypersensitivity to the sensation of touch. As a result, we oftentimes shy away from physical contact, which can give the impression of romantic indifference.

Advice for friends, family & significant others: If we brush off your touch, it’s generally nothing personal. Just be patient. We can learn to condition ourselves to touch over time 🙂

In my own experience, trust can be especially important when it comes to physical intimacies.

Thankfully, I’m not particularly sensitive to touch, but I don’t like people I don’t trust having physical contact with me.

For example, contrary to common autism stereotypes, I very much enjoy a nice hug- but only if I trust/feel comfortable around that person.

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I’ve always felt that hugs are an intimate experience, so for me to hug someone that I don’t like or trust feels wrong. Over time I’ve conditioned myself to accept unwanted hugs to uphold social etiquette, but my heart’s not in the action.

Many people with autism have issues with trust. In a world that doesn’t make sense , it can be very hard to discern what is trustworthy from what is not. Where black and white thinking is concerned, one bad experience can ruin your trust in an instant.

But ruins can be rebuilt- it just takes a little bit of time 🙂

 

Considering all these challenges that we face in the pursuit of love, might there be any underlying biological factors contributing to our romantic ineptitude?

Few studies have explored sexuality and relationships in autism, however, from my reading of the research one hormone stands out from the crowd- oxytocin.

Oxytocin, also known as the ‘love’ or ‘cuddle’ hormone, has been linked to autism in a number of studies. Research has shown that levels of oxytocin are dysregulated in individuals with autism.

This is basically a fancy science term meaning that our oxytocin levels are out of sync! 😛 😉

Oxytocin is thought to contribute to a human’s ability to effectively socialize. For example, studies correlate oxytocin levels to degree of social functioning where low oxytocin levels are linked with diminished social functioning and high oxytocin concentrations are associated with augmented social functioning.

Evidence suggests that levels are lower in cases of autism, with the lowest concentrations in low functioning forms and higher concentrations in high functioning cases.

Oxytocin is perhaps best known for it’s role in the formation of emotional bonds, as it is released when we cuddle up to or bond socially with a person. Research suggests that it even plays an important role in emotional bonding with man’s best friend, with levels rising in both owner and pet after several minutes of stroking! 🙂

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Oxytocin has further been shown to increase trust in humans, so it stands to reason that lower oxytocin levels present in autism can make it harder to trust, interact with and connect with a person romantically.

Moreover, recent studies indicate that oxytocin also plays an important role in the strengthening of negative social memories. It appears that following a stressful social encounter, such as bullying or romantic rejection, oxytocin activates a part of the brain which causes the memory to intensify, promoting anxiety and fear in similar situations.

Seeing as oxytocin is dysregulated, this could also explain why autists find romantic situations difficult. I’ve certainly found that previous failures in this area have made me quite hesitant to reveal my feelings to guys for fear of reliving those moments!

Autism, like love, is truly complicated 😛

In keeping with my Valentine’s theme, I’ll discuss love and the spectrum in greater detail on Monday! 🙂

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Aoife

 

Discussion-Neurodiversity

Greetings Earthlings! 🙂

Today I’m going to discuss the movement of neurodiversity within the autistic community.

Originating in the late 1990’s, neurodiversity is a concept which suggests that neurological conditions such as autism, are simply a variation in thinking or wiring, rather than a disease that needs to be cured.

Think of iPhones and Windows Phones- both perform similar functions, but each have different circuitry.

Neurodiversity advocates that neurological differences should be considered a separate social category (such as sexual orientation, gender and ethnicity) and respected as such.

The movement is represented by this symbol:

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^^^ These colours make my brain happy 🙂 😉

Further to this, neurodiveristy classifies people as being either ‘neurotypcial’ (exhibit “normal” cognitive functioning) or ‘neurodiverse’ (autistic).

In a nutshell- neurodiverse people are wired differently, so we think differently; BUT, this difference is the same as any other genetic variation- like having blue eyes or brown.

You follow? 🙂

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However, this movement is seen as controversial and problematic in some circles as this broad term covers both low and high functioning forms of autism. It is thought that the concept of neurodiversity is skewed in favour of higher functioning and milder forms of autism.

This is a tricky one, but not necessarily relevant.

Let’s look at the case of Iris Grace, an autistic child artist.

Iris at 7 years old, is world-renowned for her astonishing and mesmerizing paintings, however, Iris has severe autism. Indeed, she struggles greatly with speech and communication, but her paintings are truly the product of a gifted and neurodiverse mind.

You can see Iris in action below:

Neurodiversity is central to one of the biggest discussions in the autistic community- the search for a cure.

Now if we consider neurodiversity to be a regular genetic variation, this begs an important question- should we be seeking a cure for autism?

Think of the Windows Phone again. Sure it’s not as slick as the iPhone and doesn’t have the same range of apps, but you wouldn’t try to change it very much would you? Updates can be installed to improve the model, but ultimately we accept that a Windows Phone will never be an iPhone. We see them as a separate smart phone category- individual in their own right.

Ironically, I’m a Windows Phone girl in real life! 😛

(^^^Update- Withdrawal of apps has since forced me to go Android 😦 )

If we can accept diversity in the world of electronics, why then do we seek to expunge it from the human race?

The autistic mind is wonderful and unique in its own right. With it comes new insights, quirks and ideas, unique gifts and talents. If we endeavor to cure the autistic community, do we risk the destruction of this uniqueness?

Personally, I would not wish a cure for myself. Don’t get me wrong, there are indeed times when life would be much easier if I could be just like everyone else, but I wouldn’t have my brain any other way.

If I had to pop a camouflage pill everyday to pass for “normal”, how could I still be me? If you took away my autism, would I still see the world as a source of infinite curiosity? Would I still have the same talents and interests?

A family member asked me shortly after my diagnosis, what was I going to do now? What was my plan- as if I had some terrible disease! 😛

Neurodiversity challenges us to rethink our perceptions of autism. It should not be seen as something to be cured, but managed with love and support.

Leading autism expert Simon Baron-Cohen once said that:

“having autism [is] like being a fresh water fish in salt water. In that environment, [we] are disabled. In the right environment, the disability reduces and [we] not only blossom but can fulfill [our] potential.”

It is not autism that needs to be cured, but our attitudes towards it.

And yes for those of you wondering- he is the first cousin of this guy 😉 :

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Freshwater and saltwater fish, Windows Phones and iPhones, neurotypical and neurodiverse- these are all natural variants.

What makes one more desirable than another? Why should one be changed while the other stays the same?

At the end of the day, “normal” is subjective.

Autism is my normal-why would I ever want to change that?

No cure? No cure needed.

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I may not want to change my brain, but hopefully I can help to change people’s perceptions of autism with this blog.

Autists may think in black and white, but autism itself is a spectrum of colour 🙂

Aoife

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