Autism and Periods

Greetings Earthlings! 🙂

Continuing on from last week’s post about autism and puberty, this week I’d like to talk about autism and periods. I know, I’m about to alienate about half of my readers (sorry guys!), but this is a very important topic to cover for the often overlooked autistic female demographic.

Periods can be challenging for lot’s of women, however, for autists the experience can be somewhat of an ordeal. There can be a lot of overwhelming sensory issues where periods are concerned- new smells, sensations, and sensory issues related to the use of feminine hygiene products. Autists struggle greatly with change, and periods can be quite unpredictable over the course of our lives due to stress, hormonal changes, childbirth and eventually menopause (which I will discuss in a separate post at a later stage). As a result of this, female autists can develop a number of behavioural issues related to menstruation such as increased aggression and repetitive behaviours, not to mention changes in mood and mental health. Throw in a side of cramps and it’s no picnic!

In addition to the mental and behavioural toll, research has shown that periods are biologically much tougher on the autistic body. Studies have shown that women on the spectrum have higher levels of testosterone than their neurotypical peers (likely caused by dysfunction in the hypothalamus in the brain), leading to a number of menstrual related issues such as severe acne, hirsutism, irregular periods, polycystic ovary syndrome and dysmenorrhea. Premenstrual syndrome (PMS) is also highly prevalent in autistic women. Autists are also known to have high levels of inflammation in the body, which can further aggravate menstrual symptoms. Periods can even cause an increase in seizures in autists who also suffer from epilepsy due to hormonal fluctuations.

So what can you do to help a young autist through her period?

  • Educate them clearly about their changing bodies– autistic women can be particularly vulnerable, so they need to know exactly how their reproductive system works and the importance of consent. Use clear language that can not be misinterpreted or taken too literally. Understanding their body will also help them to better normalize menstruation so it is far less scary. As discussed in my last post, autistic women enter puberty much earlier than their peers, so it is essential that they are educated sooner rather than later about their changing bodies.
  • Check out autism friendly books about puberty/periods– there are a number of books available targeted at growing autists to help them navigate this challenging time. There are even books specifically about periods for young autistic women that may help.
  • Chat about different feminine hygiene options– as no two autists are the same, so no one option is better or worse when it comes to feminine hygiene products. There are far more options available these days to young women than just sanitary towels and tampons- they even make absorbent period underwear which could be very helpful for girls with sensory issues.
  • Setup a calendar/diary to track periods- the unpredictable nature of life and unexpected change can be particularly frustrating for autists. While periods can oftentimes be unpredictable and don’t always run on time, a calendar can nevertheless be very helpful to prepare an autist for upcoming periods and establish a routine. Knowing that an event is approaching can help to offset the scariness of it.
  • Break the taboo– reassure them that periods are a normal part of life and that there is nothing to be ashamed of. Periods may be overwhelming for autists, but they are by no means alone in their menstrual struggles.

Hope my female Earthlings at least enjoyed this week’s post! 😉

Have a lovely weekend! 🙂

Aoife

Autism and Puberty

Greetings Earthlings! 🙂

This week I’d like to talk about a frequently sidelined aspect of life on the spectrum- puberty. So often people focus on childhood autism we forget that autistic children will grow up and go through puberty just like everyone else.

Puberty is a challenging time for everyone, but often even more so for those on the autistic spectrum. Research is limited on pubescent autists, but some studies have suggested that behaviours can worsen in autists during this time, in particular, aggressive behaviours. The smallest of changes to routine can trigger meltdown’s in an autist, so imagine how this response is amplified when your entire body decides to change. You couldn’t pay me to go through puberty again- the raging hormones were a minefield (although there are day’s during this pandemic where I might consider it to travel back to a time when I had freedom 😛 )!

There can be a lot of sensory issues arising from the onset of puberty that can trigger further distress- body odours, sensory reactions to hygiene products, and my own personal hell, the sensory discomfort from wearing a bra. As I’ve discussed in previous posts, I went to war for years with my mother against wearing one as the sensation of it against my skin freaked me out and I was incredibly uncomfortable- but as I was un-diagnosed, this was passed off as just being awkward 😛

During puberty, socialising, an already challenging task for autists, becomes even more complicated. When you’re a child, everything is easier as kids haven’t developed a filter yet, but once those hormones kick in, conversations become more nuanced, boys and girls interact differently and your peers start to become aware of your mind blindness and excentricities. It can be quite a socially lonely time for autists.

So how can we navigate this difficult time in an autist’s life?

  • Talk openly about the facts of life– Talk them through the changes their body will experience in clear, concrete language. Don’t leave any room for confusion or misinterpretation so that they will be fully prepared and less thrown by the changes to come- there were certainly a few books that I read growing up where overly simplified language such as “a special hug” was used to describe sex that would only confuse and misinform the more literal autist
    • An important thing to know about puberty and autism is that it can have a much earlier onset in girls. Studies have shown that female autists tend to enter puberty and start menstruation on average 9 and a half months earlier than their peers, so girls need to be prepared and educated about the facts of life earlier than you might expect
  • Use visual tools– Sometimes words are not enough to create the correct mental picture for an autist. Illustrated books about puberty can be very useful here, and there are now many books specifically targeted at autists which can really help them to navigate this time
  • Discuss appropriate/inappropriate behaviours– don’t leave it at just the facts themselves. Autists will need to be taught about consent, sexual behaviours and inappropriate conversational topics just like anyone else. As female autists often mask their behaviours, it is especially important that they are taught about these things as they can be quite innocent and may be taken advantage of if not adequately prepared for adulthood
  • Sensory friendly clothing– For the young women out there, the market is now opening up to produce sensory friendly bras to help combat the issues of traditional brassieres. Bralette’s and lightweight sports bras may also be helpful alternatives
  • Normalise the experience– Reassure them that everyone goes through this, that it’s a normal part of growing up. Don’t attribute the entire experience to their autism
  • Be positive– Don’t assume things will be harder for your child as everyone is different. A positive attitude can go a long way to easing your child into the murky depths ahead

Hope you enjoyed this post dear Earthlings!

Have a lovely Easter weekend! 🙂

Aoife

Autism and Ageing

Greetings Earthlings! 🙂

As I am approaching a new decade in the coming days (eep!), this week I’d like to explore the topic of autism and ageing.

For the most part when talking or reading about autism, children with autism are the focus, but what happens when the child grows up? Autism is a lifelong condition, it doesn’t just magically go away once you’ve turned 18! Sadly, it is around this time that many services are taken away from autists and we “age out” of the system.

So what happens now? What do we know about ageing and autism?

As autism is still a relatively young diagnosis, there is limited data about about the impact ageing has on an autist. The first autists were diagnosed in the 1940’s, so the long term data is only now starting to emerge. So what does it indicate?

The data so far is a little bit mixed about outcomes for autistic adults. Some studies indicate that autism improves over time, but many of these have focused on outcomes for younger autists, all of whom were diagnosed and received interventions during their developing years.

Other studies indicate that autism in fact get’s worse with age where features such as communication, flexible thinking and social awkwardness become more severe over time. This study however focused purely on adults with autism, most of whom received their diagnoses later in life, so it’s hard to predict if their outcomes would have improved with age had they received support and useful interventions at an earlier age.

These studies also fail to take into the account the outcomes of the “lost generation” of autistic adults in the world, walking through life as I did, knowing something wasn’t quite right about me, but unable to put my finger on it.

Speaking from my own experience of autism over the last 30 years, my outcomes have improved dramatically over time. In particular, things have most improved in the years since receiving my diagnosis, as I now finally understand myself, and have been able to adjust my lifestyle accordingly 🙂

On a slightly more morbid note, recent studies have indicated that autists have a shorter life expectancy than neurotypicals (18 years younger!😱 ), as we are at higher risk for accidents, cancers, diabetes, cardiovascular disease and mental health issues!

However, the risk may be indirect correlating to our tendency towards maladaptive behaviours and lifestyles, so I wouldn’t worry too much about it if you’re keeping on top of your health and fitness 🙂

Finally, age has also been implicated as a factor in the risk of developing autism. Multiple studies have shown that there is a correlation between parental age and autistic risk i.e the older you are, the greater the risk that your child may be autistic.

I wouldn’t worry too much about this though- we’re not so bad 😛 🙃

Hope you enjoyed this post dear Earthlings! 🙂

Have a lovely weekend!

Aoife

Autism and Going Away to College

Greetings Earthlings! 😀

This week I’m going to to talk about perhaps one of the biggest challenges for a teenage autist- going away to college.

Ah college, some of the best years of your life- but years that can be difficult to adjust to for people on the spectrum. Granted, going away to college is a huge step for anyone, but considering an autists’ difficulty with change the stress can be tenfold. Living away from home, living with new people, finding your way around campus, the lack of routine, social expectations etc.- it can be completely overwhelming!

When I think about preparing for college, it always put’s me in mind of this Blink-182 song:

I haven’t been this scared in a long time, and I’m so unprepared…

This is exactly how it felt for me when I went away to college- sure, I was sick of school and excited to learn new things, but it is still one hell of a transition! I definitely cried a LOT those first few days/weeks settling in.

But never fear- here are some tips that I found helpful for starting out in college:

  • Register with the university disability service– If you think you need a little extra support when starting out, don’t be afraid to ask. Even if you don’t currently need any of the disability support services the college offers, it’s always good to have the safety net there when academic problems related to autism arise
  • Join a club/society– I know it can be really scary and overwhelming at first, but you won’t regret it! There’s loads of societies to choose from, and surely one that will suit your interests- they even have Harry Potter societies and Quidditch teams in colleges now (which sadly didn’t come to my university until after I had graduated 😥 )  It’s a great way to meet like minded people, make new friends and give you a break from the books 🙂 And if there isn’t a society that you like, why not set one up?
  • Get to lectures early– This is one that could really have helped me out during my first few weeks in college (but sadly I tend to me a tumble out of bed, last-minuter in the mornings). Give yourself plenty of time to get to the right room/building; universities aren’t always designed well and can be an absolute maze to navigate (which won’t help your stress levels). But more importantly, this can help you to keep an eye out for people you know. In my first month in college, sitting in a lecture hall with 300+ science students, I found it very difficult to get to know people, and when I did get chatting, I found it even harder to physically find the same person to chat to a second time among the masses. In getting to class early, you can pick a prime seat to watch out for familiar faces so you can flag them down to sit with you
  • Get a head start on your assignments– An obvious one I know, but a critical one if you tend to be a last minuter. College life is stressful enough coursework aside; don’t risk needlessly stressing yourself out and melting down

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  • Invest in scented candles/air fresheners– If you’re anything like me, the smell of some unfamiliar dishes cooked by your roommates can turn your stomach! Find a scent that you’re comfortable with or something that reminds you of home when offending odors threaten your senses. But make sure you test it out before you buy it- some odors can be even worse than the offending stimulus (I had a bout of nausea from a Christmas Yankee Candle last year- although that could have been a side effect of the antibiotics I was taking! 😛 )
  • Buy a decent pair of earplugs/noise cancelling headphones– the night time activities of the average student can often impact sensitive ears (I went through a few weeks of insomnia in my first year due to late night partying, fire alarms and drunken doorbell ringing), so plan ahead to ensure you get your full nights sleep
  • Google, Google Google– When navigating a new city, Google is your best friend, Google Maps, Google Street View, Google everything! When you’re not feeling confident about your directions, where to find shops, college facilities, timetables for public transport etc., pull out your smart phone and within a few clicks you’ll have everything you need. I would not have gotten through college without Google Street View. It really helped to put my mind at ease when travelling to unfamiliar parts of the city/university and kept me from getting overwhelmed
  • Make use of video chats– Video chatting has become far more accessible than it was when I started out in college, but nevertheless having the comfort of Skyping my family every evening really helped me to settle in during my first year (after that I rarely needed this crutch). Seeing my sisters in the familiar office at the Desktop after they came home from school every day really helped the transition from my old routines to my new college life

Going away to college can be a very scary experience, but try not to stress it- everyone finds it tough at first, but before long you’ll wonder why you ever resisted this change 🙂

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Hope you enjoyed this post dearest Earthlings! 😀

Have a great weekend!

Aoife

Should I Tell My Child They Have Autism?

Greetings Earthlings! 🙂

So today we’re going to discuss a very important question when it comes to growing up with autism- should autists be made aware of their diagnosis?bitmoji185739333

Now this question is a little bit tricky.

On one hand, we have the parents who do not want their child to know at all; they want their child to grow up as “normally” as possible so that they may never be held back by the autistic label.

In a sense, part of me would agree with this approach. In a lot of ways, growing up undiagnosed was a blessing in disguise. I was never treated differently (well, by teachers at least- children are another kettle of fish!) and I grew up to be a “normally” functioning adult with a job and friends, never held back by the autistic label.

Buuuuuuutttttttt…

Whilst I can appreciate a parents desire for their child to thrive, the decision not to tell a child about their diagnosis ultimately amounts to sticking your head in the sand.

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We cannot ignore autism and pretend that it’s not happening. There needs to be interventions, strategies and most importantly, understanding.

We don’t just grow out of autism, we need to cultivate an environment so that we can grow around autism. Without self awareness, this will ultimately make life difficult for your child.

What if they found out some other way that they were autistic? If they overheard a teacher, accidentally caught sight of their notes or were taunted by another child? How would you feel if your parents kept something like this from you?

At the end of the day, your child needs to know about their diagnosis; maybe not today or tomorrow, but when the time is right, they will need to know.

Yes, there were some advantages to getting a later diagnosis, but ultimately, life would have been so much simpler for both my parents and I had we known that I was on the spectrum. We would have known how to manage meltdowns, my peers would have understood me better, I wouldn’t have tortured myself for being different- I would have understood and learned to better accept and love me all the sooner.

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So don’t worry about holding your child back, or upsetting them; take a deep breath and find a way to tell them- they will thank you for it in the end 🙂

Aoife

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