Paracetamol and Autism

Greetings Earthlings! 🙂

It is with my face cupped in my hands that I write this post for you after the latest “recommendations” coming from the States in recent weeks. In case you’ve been living under a rock, US president Donald Trump and RFK Jr., announced that there is a link between the use of paracetamol (also known as Tylenol) during pregnancy and the development of autism 🤦🏻‍♀️Historically this has been the safest drug that a woman can take during pregnancy to treat pain and fever (from infection), but now the Trump administration is slapping a warning label on this essential medication to scare women about the risk of autism when they’re at their most vulnerable.

So let’s separate fact from fiction- what does the research actually say?

Experts and researchers across the world have come out against these recommendations as the evidence largely does not support a causal link between autism and paracetamol. With regard to the current literature, there are often conflicting results in studies as it’s very hard to pin down accurate usage rates from medical records alone as paracetamol is an over the counter drug. Moreover, as it’s often used to treat other conditions, it’s hard to determine if any increase in autism rates is linked to the drug or the condition that paracetamol was used to treat. One of the largest studies of this type examined data from 2.5 million Swedish children from 1995-2019 to see if rates of paracetamol usage aligned with autism diagnoses. This study found that there was an increased likelihood, buuutttt not by much- 1.42% of children exposed to paracetamol were autistic versus 1.33% in those who were not exposed. I don’t think a 0.09% increased risk of autism is anything to write home about!

Sibling studies were also conducted to compare pregnancies where paracetamol had been given for one but not the other. These were performed as siblings are raised in the same environment, share genetic traits, and the health of the mother would have been similar for both pregnancies, removing a lot of factors that can influence the development of autism. This makes it easier to tell if paracetamol is having an impact in pregnancy. No links were found between the drug and autism in these studies.

On another note, researchers are of the opinion that the latest review of the research being pushed by the Trump administration hasn’t used the most robust of research methods. A more rigorous review of higher quality research was published on this topic earlier this year, and again, found no clinically significant risk of developing autism after paracetamol exposure in utero. The conflicting results seem to indicate a motivated agenda- and we all know how well that worked out last time with vaccines

Research aside, telling a pregnant woman to “tough it out” instead of taking paracetamol is simply not good enough. High fever in pregnancy can be extremely dangerous, increasing the risk of complications like miscarriage, preterm birth, or neural tube defects (congenital malformations of the brain and spine such as spina bifida and Anencephaly- a fatal brain defect where parts of the brain don’t fully develop). If doctors are discouraged from administering this vital medication, the outcomes could be so much worse for the baby than autism. It beggars belief that Trump essentially deems the risk of autism to be worse than death. Even more so given that most experts agree that the American president himself is on the spectrum!

The important thing to remember about the research is that this link, however miniscule, is just an association. Just because it’s associated with autism, does not make it the cause. My mother, and thousands of others on social media, never took paracetamol during pregnancy, but all of them have children on the spectrum. If you’re an expectant mother, don’t let Trump scare you into avoiding paracetamol if you require it. Listen to your care provider and make the best decision for your health and your baby’s.

Hope you enjoyed this post dear Earthlings!

Have a lovely weekend! 🙂

Aoife

Robert F Kennedy Jr.’s Autism Beliefs

Greetings Earthlings! 🙂

I can’t even remember what I was planning to write about this week, so incensed am I about these comments that Robert F Kennedy Jr. (the US Health secretary) has been making about autism in recent weeks.

For those of you who haven’t heard, RFK Jr. has vowed to find the cause autism by September, as he believes that it is an entirely preventable epidemic resulting from exposure to environmental toxins. A vaccine skeptic, he plans to launch a major study to identify the right toxin to rid America of autism, going against the multitude of studies that indicate a genetic cause (he claims genes just make you more susceptible to environmental toxins🙄). This study is coming on the back of the Trump administration’s ban on research and services related to diversity, equity, inclusion and accessibility. Naturally, the autism community is in uproar about these flippant, uneducated comments leaving RFK Jr. baffled by the “tsunami of anger” that has come his way.

Here’s just a taste of his comments:

“These are kids who will never pay taxes. They’ll never hold a job. They’ll never play baseball. They’ll never write a poem. They’ll never go out on a date. Many of them will never use a toilet unassisted.”

This sort of statement beggars belief… He has since clarified that he only meant the 25% of autists who are severe level 3, but that doesn’t make it any better. Let’s go through this checklist for a minute:

  • Never pay taxes or hold a job? My employers and Irish revenue would beg to differ (the latter have made a fortune from me!)
  • Play baseball? I could (badly) if I wanted to, but baseball is boring
  • Write a poem? I’ve written many (and this blog can attest to my writing skills)
  • Go out on a date? I recently sat through 32 speed dates (though it did require painkillers and chicken nuggets to reset after 🫠)
  • Use the toilet unassisted? Always- unless I need a hand getting out of a jumpsuit!

Every single neurodivergent I know will equally pass this list. As we have discussed many times on this blog, autism is a spectrum, you cannot make generalizations. We’re all unique and experience autism differently. Not to mention how damaging it is to claim that he intends to “cure” autism, seeing our existence as a problem to be fixed.

And when you think things can’t get any worse, it’s been reported that there are plans to monitor autism records and make major cuts to disability services. The National Institute of Health (NIH) is collecting private medical records to provide researchers with data for RFK Jr’s new study, with reports saying there are plans to craft a new registry to track people with autism🤦🏻‍♀️.

Compiling such a list could have huge implications for data security. Who’s to say this registry wouldn’t be made available for potential employers who could use it discriminate against candidates? As much as we’d like to believe we live in a society more accepting of neurodivergence, prejudices still exist when it comes to disability in the workplace. Whilst my current employers are very supportive (they’ve even asked me how to make the snacks more autism friendly 😂), I’ve had other experiences where I was discriminated against for my diagnosis.

Even worse, if this registry made it into the hands of criminals, they could create a campaign to defraud you, playing on your social inadequacies and trusting nature. It’s a disaster waiting to happen…

Just saying, it’s beginning to sound an awful lot like another person with harmful ideas who took a registry…

This will be an interesting story to follow over the next few months.

Hope you enjoyed this post (or at least my commentary since the subject matter sucks)!

Have a lovely weekend!

Aoife

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